PCOS Diet

THIS. Changing the name of PCOS to PMOS (polyendocrine metabolic ovarian syndrome) may make sense but does potentially complicate things a lot. While in some ways it’s appropriate as it has long been a badly named condition named for a symptom you don’t even have to have, and it’s metabolic health effects extend way beyond the ovaries, a lot of awareness raising and advocacy has happened over the last 25 years that may now be at risk due to confusion. I’m not sure what it could have been, but I so wish they could have come up with a more appropriate name without changing the acronym. Need to continue to think about this. Change was never going to be easy here.

For many in the PCOS community, today is complicated.

Some are concerned the change will cause more harm than the problems it aims to fix. Some welcome it. Some are uncertain. Some feel relief, others feel sadness and anxiety. All of these responses belong in this community.

WHAT YOU ARE LIKELY TO HEAR
That this change is straightforward and all upside. It is not. A change of this scale carries significant risks and impacts that have not been adequately assessed or disclosed.

QUESTIONS THAT NEED ANSWERS
There are many questions that need answers, including:
◾ How will confusion and delays in care be prevented?
◾ How will long-standing patient-provider relationships be protected?
◾ How will the advocacy efforts, support programs, research and communication networks, and the people and organizations patients rely on every day be sustained?

WHAT IS AT STAKE FOR THE FIELD
A name change impacts the infrastructure that clinicians, researchers, and patients depend on. That includes:
◾ decades of PCOS research
◾ clinical guidelines built on PCOS evidence
◾ patient education materials and resources
◾ patient recruitment networks that fuel clinical trials
How this carries forward under a new name has not been resolved.

WHO PAYS
◾ The direct healthcare costs of PCOS in the United States already exceed $15 billion a year. Do those costs get passed on to patients, who already carry a significant share of that burden?
◾ PCOS has always been underfunded and under-supported. Where are the resources to support this global change supposed to come from? Again, who pays?

THE STANDARD
"First, do no harm" is a principle healthcare asks of itself. Decisions made in the name of patients should be held to that same standard. Patients deserve to be informed, included, and protected in any process that may reshape their care and community.

WHERE PCOS CHALLENGE HAS STOOD
Since 2015, PCOS Challenge has advocated that the patient remains the central focus of this decision, and that the experiences of all people with PCOS are represented, including those often left out of the record.

WHERE PCOS CHALLENGE GOES FROM HERE
PCOS Challenge will continue to convene patients, clinicians, researchers, industry, legislators, and regulators, and to help build the capacity that lowers the economic burden of the condition, advances earlier diagnosis, expands research investment, strengthens integrated care, and ensures equitable access.

We will always support and advocate for you. 🩵

Hi everyone! Ever been interested in adding to the much needed research on managing PCOS? If so, here's your chance!

Research Opportunity for Women with PCOS (Ages 18–35)
Hello everyone,
My name is Mahmooda Hotak, and I’m a PhD researcher at Maharishi International University. I’m currently conducting a 4-month research study exploring how holistic aromatherapy may support emotional well-being and menstrual cycle patterns in women diagnosed with PCOS.
We are recruiting 50 women with a confirmed PCOS diagnosis. Participation is voluntary, confidential, and begins with a short eligibility survey (10–15 minutes).
👉 Eligibility survey link:
https://forms.gle/6gWdoZgo4D7zfMT98
If you’re eligible and choose to participate, you’ll receive full details before deciding whether to join.
Email me directly with any questions at [email protected]
Please feel free to share this post with anyone who may benefit or be interested.
Thank you for helping spread the word and for supporting women’s health research!

https://podcasts.apple.com/us/podcast/spot-on/id1448760100
Whether we realize it or not, we all know women with PCOS. It affects up to 15% of all women, and affects many aspects of life and health, including being the #1 cause of infertility related to not ovulating regularly. To learn more, take a listen to my conversation with . It's a dietitian to dietitian conversation! Thanks for having me Joan!

Spot On! Nutrition Podcast · 12 Seasons · Updated Semimonthly

Hello Facebook tribe. This is me and my middle son Matt who recently moved to NYC and is trying to network for a job. Thought it couldn’t hurt to tap my amazing network of social media peeps to assist. He’s doing whatever he can to pay the rent in the meantime but is trying to build his contacts as we all know so much about the job hunt is who knows who. He graduated with a degree through UMass Amherst that allows you to propose your own major. His is sound production, journalism and communications. He is interested in anything at any level even tangentially related to the music industry, but also has sales experience and is open to just about anything to get his feet wet. If anyone has any contacts in the city that may be open to speaking with a nice young guy about career issues please feel free to forward. Thank you!

It always feels like a treasure hunt to look for your books in a book store. Yesterday was 2 for 3 at in Manhattan!

PCOS lives on after the reproductive years. Check out my interview with fellow RD and PCOS advocate Ginger Hultin for tips on navigating diet and lifestyle issues through the menopause transition and beyond!

Women’s Hormonal Health and its Connection to Diet & Lifestyle with Hillary Wright, MEd, RD, LDN (ep – 47) | The Good Clean Nutrition Podcast

Happy birthday to this guy! Love you Johnny Holowitz!

Handsome husband. Can always be counted on for a b**r garden outing!

Writing books is a ton of work, but this is why we do it. Makes it all feel worth while. Thank you Karen C!