Jax Strong
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Disconnected Pancreatic Duct Syndrome DPDS circumferential disruption continuity of pancreatic duct.
06/11/2026
three year post op was a success! he is growing greatly, he is going above and beyond what they expected him to do! we are blessed beyond compare! Silas is one of his best friends they went through surgery together, recovery together, and now facing life’s challenges together! we couldn’t be more blessed to share our lives with them! as we go into this next year we pray for healthy kids, loving and caring hearts, and many more blessing as we face this next year. what a blessing it is to make it into a family trip for better memories 😌😌😌😌
06/08/2026
this year makes three years post op 🙏🏻🙏🏻🥹🥹🫶🏼🫶🏼 three years we have been adjusting and trying to be as normal as possibl. this year we decided a happy trip was needed to help with the harsh memory of how we got here! I would say it was a success! great wolf lodge was an excellent choice! tomorrow we go to gi then Tuesday we see endo. THREE YEARS!! what a blessing!
This summer will be three year post op!!!! THREE YEARS! It’s so hard to believe our superhuman will receive his three year award! We will be leaving shortly after school gets out! All of us will support him on this trip, we will be there for the better half of three to four days with how appointments are lining up.
Since surgery the biggest issues we have faced is blood sugars not wanting to regulate like they are suppose too. We have been through tech issues with Dexcom not wanting to stick, omnipods seemed to not want to stick neither. He was switch to the g7 and the tandem mobi. Seems to be going well. We have hhit a bump along the way where certain areas are no longer allowing insulin to get through, we are contantly having to change areas to find what works for his body to accept the insulin. It can be extremely tough from time to time. We also face infections a lot quicker than the normal kids with spleens. This constantly requires close watch, Jax will go down very quickly. Headaches, then fever, then throwing up. In that order and all within and hour! It goes from normal to scary very quickly. Thankfully since our move, he has a wonderful team that listen to me and not try to treat them like they know more. (We have had this issue in the past)
Other than that he is a normal, I know I said that like it’s not a lot, kid! He loves soccer, going to school with his AB honor roll, swimming, and definitely climbing trees. He has come along way in his care and we couldn’t be prouder!
01/13/2026
Today our Superhuman is 11!!!!!!!! Being told he wouldn’t make it to 9 and here we are at 11!!!! Today we celebrate our little man! Happy 11th birthday our soccer loving, Fortnite playing, wide open superhuman!!!! We love you more than you will ever know 💕💕💕💕💕🎉🎉🎉🎉🎉
06/18/2024
It has been a long year but thankfully with only two hospital trips outside of Ohio our boy has made it to his appointments 💕💕💕💕💕💕 he is doing great and passing with flying colors! They are now taking him off of his penicillin even if it’s one med thankfully we are down that! He will continue to take creon and dekus probably all his life! Let’s see if we can come off insulin too 💕💕💕💕💕💕 mix meal test this morning to check on islets and then our journey of 10 hours home!!!!! Thank you to everyone that follows our little dude, that prays with us, that have helped in all ways, that have called messaged, dropped by! We love you all ❤️❤️❤️❤️❤️❤️
02/13/2024
Superhuman update:
All appointments went well. Healing perfectly, no other pains or issues. We have to work on getting his sugars where they should be this is tricky with him, he is high energy and tends to drop at dosing. We changed his numbers again and just have to keep on keeping on and get these numbers right. It was an amazing visit. Met a few new Tpiat friends today at appointments saw one our first friends. All in all little dude is doing amazing 😌😌😌😌🤟🤟🤟🤟🤟🤟 we finally arrived home just a little bit ago.
02/12/2024
Finally touched down in Ohio! Waiting on the family to log on and play before settling to bed ❤️ check ups tomorrow
Today is the day!!!
Packed the last bit this morning. We head back to Ohio to check on our superhuman islets 😌😌😌😌😌😌 we check on his diabetes, his scars, and his medication, all new pa’s need to be written! We have a long drive ahead of us today and doctors appointments tomorrow and turning around to come home. It may take a little time for the update but i will post as soon as i can ❤️❤️❤️❤️🤟🤟🤟🤟 we love you all thank you for the continued prayers and outreach on our superhumans behalf.
01/13/2024
Today we are glad to say our SUPERHUMAN has made it to his 9th BIRTHDAY!!!!!!! Our superhuman they told us wouldn’t make it to his 9th birthday has made it! God had bigger plans for him! We thank every one of you that have traveled this road with us this year! In 5 days will be the one year anniversary since our world came crashing down! Here we are today with a healthy, happy, gaming 9 year old!!!!
01/04/2024
Since our last hospital visit our little superhuman has been as normal (our new normal) as physically possible. We want to wish everyone a happy new year and hope this year is a great one! JAXS 9th birthday is coming up. Anyone who would like to send cards to help us celebrate the birthday they said he wouldn’t have, our address 10 Jed court Sumter sc 29150 ❤️❤️❤️❤️❤️❤️
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