Chronicallymanette

I want to celebrate it. After all it’s part of who I am.

Got Second diagnosis
Of
Ehlers Danlos
I HAVE HYPERMOBILITY

Having a hard time going to sleep. I am in a major flare tonight

Getting a sympathetic Nerve Block. It’s hard living in pain.

I have reached 200 followers! Thank you for your continued support. I could not have done it without each of you. 🙏🤗🎉

Can’t sleep mcas flare with Gastroparesis sucks

Anyone who has pots or a form of Dysautonomia

Do you have diagnosed by a physician? Take the Big POTS Survey, a collaboration between Dysautonomia International, Vanderbilt University & University of Calgary: bit.ly/thebigpotssurvey Help us document the experiences of people living with POTS! Please share widely.

Please do not take this survey again if you have already participated in the Big POTS Survey.

Being chronically ill it’s like having a full-time job. Thank goodness for calendar

My dogs are my babies

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Today I will be officially 41 yrs old. I am most thankful to my lord JC for another year of life. The last couple of months have been rough to say the least. My health took a turn and that is never fun. So I am celebrating it with church,cake, food and bowling🎊

#hypermobilitysyndrome #hypermobileehlersdanlossyndrome #hypermobilityspectrumdisorder #disabledandproud #disabilityawareness #chronicillnessawareness #invisibleillnessawareness #potsiestrong #hypokalemiaperiodicparalysis #mcas #mastcellactivationdisorder #dysautonomiaawareness #spooniestrong #spoonies #complexregionalpainsyndromeawareness