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05/05/2026

Upcoming for Sickle Cell Families, Patients, and Providers!

https://www.facebook.com/share/v/1CjuUDhZvC/

Episode 3 - Sickle cell Awareness with Keyana 03/25/2026

Sickle Cell Families - Check out my dear friend, Ms. Keyana Tucker from Phoenix, AZ, as she shares her life living with Sickle Cell Disease!
https://www.facebook.com/share/p/1BoRYqF1Vb/

Episode 3 - Sickle cell Awareness with Keyana Meet Keyana, an inspiring woman who bravely navigates life with Sickle cell disease. Join us as Keyana candidly shares her personal experiences, shedding lig...

Mark your calendar 📅 Next Thursday, SCDAA President and CEO Regina Hartfield will join other expert panelists for a bipartisan briefing on sickle cell disease hosted by Fulcrum Therapeutics… | Sickle Cell Disease Association of America, Inc. — 03/15/2026

https://www.linkedin.com/posts/scdaa-national_mark-your-calendar-next-thursday-scdaa-activity-7438328146610860032-e67g?utm_source=share&utm_medium=member_desktop&rcm=ACoAABsuPFgBfHfvl2GJFIwrRylbZ5m_d110lj0

Mark your calendar 📅 Next Thursday, SCDAA President and CEO Regina Hartfield will join other expert panelists for a bipartisan briefing on sickle cell disease hosted by Fulcrum Therapeutics… | Sickle Cell Disease Association of America, Inc. — Mark your calendar 📅 Next Thursday, SCDAA President and CEO Regina Hartfield will join other expert panelists for a bipartisan briefing on sickle cell disease hosted by Fulcrum Therapeutics. During this event, Members of Congress, clinical experts, patient advocates and policy leaders will discus...

03/05/2026

Hey Sickle Cell families! Here's an upcoming opportunity for Young Adults living with Sickle Cell Disease! Email [email protected] for more information!
$35

02/27/2026

Good morning and Happy Black History Month to all!
As we celebrate the final 2 days of this glorious month, I'd like to share a final post from Sickle Cell Disease Association of America

"Our final of 2026 explores the life and career of Dr. Charles Drew, a pioneering physician whose work paved the way for our modern-day blood banking system. Thanks to his research, individuals with sickle cell disease have access to safe and timely blood transfusions."

LEARN MORE BY VISITING SICKLE CELL DISEASE ASSOC OF AMERICA https://sicklecelldisease.org/

02/24/2026

Please join me in collectively giving flowers to Dr. Marilyn Hughes Gaston, MD. Her contributions to Sickle Cell Disease health and research date back to the 1960s and led to our public health newborn screenings of not only SCD but many other newborn screenings that happen today. Read more about her as the feature on Sickle Cell Disease Association of America's LinkedIn page: https://www.linkedin.com/company/scdaa-national/

Implications of climatic change on sickle cell anemia: A review 02/19/2026

As our climate continues to change - sometimes for the better, but often times dramatically and for the worse - please keep the following in mind for those of you living with Sickle Cell Anemia:

Sickle cell anemia (SCA), also known as sickle cell disease, is a hereditary condition that alters the shape and function of red blood cells.[1–3] While the disease is primarily caused by a mutation in the HBB gene, environmental factors, including temperature, humidity, and air quality, can exacerbate its effects.[4] With global climatic changes ongoing, the implications for individuals with SCA are increasingly significant.[5] The frequency and intensity of heatwaves are increasing worldwide due to climate change. Elevated temperatures can trigger vaso-occlusive crises, a hallmark of SCA, causing severe pain and organ damage in affected individuals. Additionally, extreme cold weather can lead to vasoconstriction, potentially increasing the risk of sickle cell crisis and tissue damage.[6–8] Climate change can influence regional patterns of precipitation and humidity, affecting the risk of dehydration for individuals with SCA. Dehydration can trigger sickling of red blood cells and lead to painful crises. Changes in water availability may also affect the ability of SCA patients to maintain adequate hydration, potentially influencing their health outcomes.[9–11]

SOURCE:

Implications of climatic change on sickle cell anemia: A review Sickle cell anemia (SCA) is a hereditary blood disorder characterized by abnormal hemoglobin, causing red blood cells to assume a sickle shape, leading to various complications. Climate change has emerged as a significant global challenge, ...

02/17/2026

Let us take a moment to remember Rev Jesse Jackson, Sr. Just found out that he passed away this morning.

Date: Tuesday morning, February 17, 2026.
Age: 84 years old.
Cause: He had been living with a neurodegenerative condition (diagnosed in 2024) and was recently hospitalized in November 2025, notes the New York Times and YouTube.
Legacy: Known for his work with Martin Luther King Jr., his 1980s presidential campaigns, and founding the Rainbow PUSH Coalition, say the Hollywood Reporter and CNN.
Tributes: Leaders including Donald Trump and Kamala Harris honored him, with Reverend Al Sharpton calling him a mentor, as reported by CNN.

Balanced Life Organization – Finding the balance you seek, begins with taking the first step. 02/12/2026

RESOURCE SHOUT OUT!

Attention Michiana area residents:

If you are looking for resources for your youth, food supplementing, or even handyman work - consider reaching out to Mr. Antonio Ewing-Gates, Sr. - AKA Rev/Minister Tone - here in South Bend, IN. He has a Non Profit Organization called Balanced Life Organiation www.seekbalance.net
He has resources that can meet you and your family's needs quickly and efficiently!

Balanced Life Organization – Finding the balance you seek, begins with taking the first step. Finding the balance you seek begins with taking the first step. Welcome!Balance Life Organization Inc.,Non Profit Providing Jobs and Mentoring to Community Youth Ages 16 to 35. Contact574-521-4705Call for free! Certified Non Profit specializing in helping youth and seniorsBLO is a SBEAP certified pa...

02/04/2026

In the news this week for Sickle Cell Information:

Congress Passes Government Funding Bill with significant wins for the SCD Community! News is being passed along by way of The Sickle Cell Disease Association of America, Inc. - Thank you for keeping us in the know!

Sickle Cell Anemia Disease Sickle Cell Disease Akilah Gilbert Tucson - Chw Curtis J. Bethany

https://www.linkedin.com/posts/scdaa-national_sicklecellmatters-advocacy-activity-7424579793242722304-HLBK?utm_source=share&utm_medium=member_desktop&rcm=ACoAABsuPFgBfHfvl2GJFIwrRylbZ5m_d110lj0

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