National Bleeding Disorders Foundation

Five years of collaboration. 327 research priorities. One shared goal: putting lived experience at the center of bleeding disorders research.

NBDF’s Bleeding Disorders Research Collaborative (BDRC) has published its first findings in five white papers, creating a patient-centered roadmap for the future of bleeding disorders research.

🔗 Learn more about this milestone and what’s next: https://bit.ly/4rKeYvA

Rare doesn't mean it should go unrecognized. ❤️

Women and girls with hereditary Factor X deficiency may experience symptoms such as heavy menstrual bleeding or excessive bleeding during childbirth. Greater awareness of these experiences helps people recognize when to seek evaluation and specialized care.

🔗 Learn more about Factor X deficiency and the importance of recognizing the signs: https://bit.ly/4ytZkHl

A new episode of https://bit.ly/4dlhe6B is here!

What does it really take to care for someone living with a bleeding disorder?

Host Greg Grunberg sits down with caregivers Maddie Lanning and Bridget Tyrey for an honest conversation about the mental load, constant vigilance, and quiet work that can come with caring for someone you love.

❤️ Listen to Episode 3: Holding It All Together: Caregivers and Families on Apple Podcasts, Spotify, or YouTube.

🔗 https://bit.ly/4hCw221

Did you know Factor X deficiency can affect joint health?

Although bleeding experiences vary, some people with Factor X deficiency experience bleeding into their joints or muscles. Recognizing symptoms and working with your care team to protect joint health can make a difference.

Learn more about preventing joint problems and protecting your joints: https://bit.ly/4rFrD2Z?

A major advocacy milestone for the Glanzmann thrombasthenia community. ❤️

Thanks to advocacy led by NBDF in collaboration with the Glanzmann’s Research Foundation and CHES Foundation, Glanzmann thrombasthenia (GT) now has its own dedicated ICD-10-CM code: D69.11.

Effective October 1, this new code will help GT be more accurately recognized across medical records, insurance claims, research, and public health data, supporting a better understanding of the needs and experiences of people living with this rare bleeding disorder.

🔗 Learn more about this advocacy achievement and what the new code means for the GT community: https://bit.ly/4rFojVg

Factor X deficiency may be rare, but its role in blood clotting is essential.

Factor X deficiency is an ultra-rare bleeding disorder in which the body doesn't have enough functional factor X, a protein that helps blood clot. People living with the condition may experience anything from easy bruising and frequent nosebleeds to more serious bleeding, including bleeding into the joints and muscles.

Because symptoms and severity can vary from person to person, awareness and access to specialized care matter. ❤️

🔗 Learn more about Factor X deficiency: https://bit.ly/4rFrD2Z?

Did you know October 10 is Factor X Day? Throughout the month, we’ll be sharing resources and practical tips to support those living with Factor X Deficiency. Save the date: Wednesday, October 7, for a special webinar on Factor X Deficiency.

👉 Register now to save your spot: https://bit.ly/43yV6B3

VWD and hemophilia may both be bleeding disorders, but they are not the same.

From symptoms and inheritance patterns to treatment and daily life, understanding the differences can help people receive the right diagnosis, care, and support.

🔗 Learn more in our latest article: https://bit.ly/4fVnJyM