Fighting HARD

We can't believe that the 6th annual Fighting H.A.R.D. "Fore" the Kids Golf Outing is less than 1 week away! 🥳 None of this would be possible without the support of our amazing event sponsors: Howell P.B.A., Datavant, and Hackensack Meridian Health! We are so grateful for your continued support. Thank you for helping children with rare diseases and chronic illnesses to know they are not alone! It's "Fore" the Kids! 💜

Happy Father’s Day to all the amazing dads, grandpas, and father figures out there! All that you do does not go unnoticed. Thank you for all you do to help make HARD life easier, and we hope you have a great day! 💜💜

As we get ready for our SOLD OUT upcoming golf outing happening on 6/29 generously sponsored by Howell Township PBA Local 228, Datavant, and Hackensack Meridian Health, we are hoping the weather will be exactly like today!!!

Getting our last minute gift auction items together this week so for anyone who would like to donate a basket or an item, please reach out to Tara or Jonna or email [email protected] to set up a pick up or drop off! We are SO grateful for all of the support to help make this year’s outing the best one yet! It’s “Fore” the Kids!!!

HUGE thank you to everyone who came out to make yesterday’s clothing drive such a great success! It was a VERY hot day but our wonderful volunteers and foundation kids really worked HARD to make it amazing! Shout out to Kaylee Mescal and fam who hosted her own clothing drive in Hazlet and rented a U-Haul to deliver more than 50 bags! And to the wonderful Breden Family who also collected in their town and brought three carloads! To The Hansen Family who also collected in Point Pleasant and made several trips to deliver all the goods, The Fleming Family for all their help and support, The Jaochim family (Gianna and Jesse really helped to make the day super special, to the Colonna Family (Luke is director of this event and Remi was a HUGE help!), all of the wonderful volunteers, board members, dear friends and family, and to every single person who donated one bag or ten! The greatest part of this annual event is having everyone come together to support the foundation and to help these Fighting HARD Families to know they are not alone! We are so grateful! Here are just a few pictures from the day! Thank you, thank you, thank you! 💜

We are HERE and ready to go!! Come join us for our clothing drive from NOW until 12 pm at the Howell Fire Department Substation on Maxim Southard Road!! 💜☀️

Tomorrow is the day! Huge thanks to Southard Fire Department for all their continued support and letting us use the substation at 1320 Maxim Southard Rd. for our clothing drive! For families and supporters who are planning to hang out with us for the day and for the volunteers who will be there with us, please be sure to bring your own chair, sunblock, and water bottle or snack if you would like, as we will have some crafts and games as in past years. Always a fun day to get together and help collect bags for our annual clothing drive! Still have room for volunteers if anyone would like to join in the fun from 9-12 tomorrow! Thanks to everyone who has already dropped off bags to get us started! Can't wait to see you all tomorrow! So grateful for the community support! 💜

Get those bags ready to go! Hope to see everyone next Sunday, 6/14 for our 9th Annual Clothing Drive!!!

Check it out! We have an amazing new feature on our website! This was an initiative by students at Rutgers in the Industry Pharmacists Organization (IPhO) led by the Community Service Chair, Erache Rivera, to help raise awareness for rare diseases and chronic illnesses. These students created educational videos about conditions that affect many of our Fighting H.A.R.D. rockstars! Check out https://www.fightinghardfoundation.org/shareable-awareness-videos.html to see them.

We'd like to thank the incredible students involved in this IPhO and Fighting H.A.R.D. Foundation initiative: Erache Rivera, Anumeha Haldar, Faiza Skaik, Nick DeAngelis, Mateen Abbasi, Nishi Patel, Unnati Patel, Princy Patel, Isabelle Kim, Tiffany Prasad, Puja Patel, Casey Liu, Sophia Mendoza, Marina Martell, Catalina Vasquez, Rhea Sethi, Enoch Adepoju, Danielle Joanne Ortiz, Sravya Sankisa, Isha Patel, and Katrina Lanese. Thank you for Fighting H.A.R.D. with us!

IT'S TOMORROW!! We are so excited for Martell's Music Fest and hope you will join us from 12pm-5pm to see some incredible bands, win some gift auction prizes, and have some fun while raising awareness and helping children battling rare diseases and chronic illnesses to know they are not alone! Thank you to the wonderful bands (The Black Ties, The Mike Dalton Band, Undisputed, Wayward Bus, and Ned Ryerson), the Troutman family, the Martell's staff, and the amazing Point Pleasant rarents and businesses who support this event year after year! We are so thankful! 💜💜

Fighting H.A.R.D. Families, check your emails! We are hoping to gather everyone near the stage for a group photo some time between 3:30-4pm. Of course, supporters are invited too!

Come by and say hello or stay the whole time. We can't wait to see you all there!