MSA NJ

An enjoyable summer evening with members of our community watching Banana Ball from the MSA NJ suite.

Hope some of you can make it to this film.

Passion to Persist Passion to Persist is a 48 minute documentary about Hadley Ferguson, who has continued to create breathtaking art while living with a progressive neurodegenerative disease called Multiple System At…

MSA Community - Last chance to join us in our suite for the sold-out Banana Ball game Friday night. Connect with other patients and care partners for an enjoyable evening at the game. Food included. We have just a few seats remaining.

Hadley Ferguson, MSA patient and advocate, has her short film about her story in the Manhattan Film Festival. Tickets are $15 to the 6 p.m. show Sunday evening, June 14.

Passion to Persist Passion to Persist is a 48 minute documentary about Hadley Ferguson, who has continued to create breathtaking art while living with a progressive neurodegenerative disease called Multiple System At…

Last baseball outing was a good time! Looking forward to spending time with our community again at the Banana Ball game, June 12. It's a great chance to connect with each other. There are a just a few suite tickets left for next week - msanj.org!

💜🍌⚾️BANANA BALL TICKETS🍌⚾️💜
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Come out to ShoreTown Stadium on Friday, June 12th and join MSA NJ for an evening of fun and exhibition baseball! 7:00pm game time.

Tickets, which can be purchased on the MSA NJ website (link in comments), include access to MSA NJ's suite as well as food & non-alcoholic drinks.

*Limited number of tickets available. Open only to the MSA community.*

A new experimental stem cell therapy for people with MSA–P (Parkinsonian type) has been approved by regulators in the United States and China to begin clinical trials. The therapy aims to replace or repair damaged brain cells that are lost in the disease, which could potentially improve symptoms. While this treatment is still in the early testing stages (Phase 1), these trials are an important step toward developing new treatments for MSA.

US, China regulators OK trials of stem cell therapy in MSA-P Regulators in the U.S. and China have granted Xellsmart permission to start clinical testing of its experimental stem cell therapy in MSA-P.

This study looked at a structure in the brain called the choroid plexus, which helps produce and regulate the fluid around the brain. Researchers found that people with MSA tend to have a smaller choroid plexus, which was linked to greater brain shrinkage and reduced brain activity. Further research could help determine whether changes in this structure may serve as a biomarker for disease progression in MSA.

Association of choroid plexus volume with brain atrophy and glucose metabolism in multiple system atrophy - Scientific Reports The choroid plexus (CP), a component of the glymphatic system, is essential in homeostasis and producing cerebrospinal fluid. Role of CP in multiple system atrophy (MSA) remains unclear. This study aimed to investigate the implication of the CP in MSA. This retrospective cross-sectional study includ...

March is MSA Awareness month. This month we recognize the strength and resilience of people with MSA and caregivers. Raising awareness helps support research and bring us closer to better treatments in the future.

Caregivers— Have you grounded yourself today? With balancing different tasks it’s easy to get caught in the motions.

Try this:

“Place a Hand on Your Chest or Stomach

As you continue to breathe, feel the rise and fall of your body. Let your hand remind you that you have a body with needs and not just responsibilities. “ (Smith, 2026)

Full Article with more grounding techniques:

https://www.psychologytoday.com/us/blog/unpacking-therapy-culture/202601/caregiver-burnout-in-the-age-of-self-helpy t

Caregiver Burnout in the Age of Self-Help Understand the complex issue of caregiver burnout and how to effectively address it.