PBC Research Foundation

Calling PBC patients who want to make change: We are so close to our goal! We want to include YOUR Voice in a compliant and secure manner! All PBC patients can enroll! Https://TheLiverMatrix.acrossmatrix.com
, , , , ,

PBC patients: Help us get accross the finish line! We will start analyzing data soon and need YOUR journey shared. All PBC patients can enroll! Https://TheLiverMatrix.acrossmatrix.com
, , , , ,

Madrigal Pharmaceuticals is hosting MASH Across America in San Diego! Join us and United Liver as we learn about liver health and walk through a giant liver. We are excited to see some of our friends there!

Registration is Open
Liver Q & A Webinar: The Alphabet Soup of Viral Hepatitis in Kids with Kathleen Schwarz, MD from Rady Children's Hospital-San Diego, happening on Wednesday, September 30th at 5:30 pm.
Click Here >> https://livercoalition.zoom.us/webinar/register/WN_FazFIEuVShWIb-Hb57pXbA

The 2026 National Liver Gathering brings people together to connect, learn, and create meaningful change. We are more than excited to welcome you!

By creating space for open conversation, connection, and collaboration, the Gathering strengthens the liver community and promotes greater awareness and understanding. Together, we can share knowledge, support one another, and work toward a future where everyone affected by liver disease has access to the information, support, and care they need.

Learn more and apply now at
communityliveralliance.org/national-liver-gathering

In honor of PBC awareness month, let's make our voices heard with patient led, regulatory grade data! Join our IRB approved registry and patient study today!

https://TheLiverMatrix.acrossmatrix.com

www.pbcresearchfoundation.org for faqs and more information

Support PBC advancements and education. Connect with PBCers Organization and our PBC Research Foundation!

Edited to add links:
https://TheLiverMatrix.acrossmatrix.com
www.pbcresearchfoundation.org for faqs and more info
Calling PBC patients who want to make a change! We are enrolling all patients in our IRB approved, longitudinal study/registry. This study is different in that WE, as PBC patients, own our own data.

Please see the graphics below for more information and FAQ. Let us know you are interested in the comments and one of our patient research coordinators will contact you personally! Not survey savy? No problem, we can set up a call and/or virtual appointment and walk you through it all and it is all HIPAA compliant. Prefer to register on your own? See link in the graphic!

May Is Hepatitis Awareness Month.
Hepatitis affects millions of people worldwide, and many don’t even know they have it. That’s why awareness matters. Getting tested, learning the risks, and understanding prevention can save lives. Your liver plays a vital role in your health—don’t take it for granted.
Early detection can lead to treatment, management, and in some cases, a cure. Break the stigma, start the conversation, and encourage those around you to get checked.
Know your status. Protect your future. Spread awareness.

The PBCers Organization (Carol Roberts ) hosted a lunch and learn event in San Diego county yesterday. Dr. Julio Gutierrez MD lead an engaging and interactive talk that was so informative for all of us patients and our caregivers. So many of us had never met a PBC patient that was local to is and for many, they had never ever met another PBC patient! We had a great turnout! Having a rare disease is lonely and that is why events like this are so important. Ipsen and Gilead Sciences thank you for sponsoring this event! Brenda Tocko Remo you did an amazing job!