Support for Seth

A beautiful update 💕

Seth is now cancer free 👊, and today he completed his beads of courage ❤.

He is full of life, he’s bounced back into full blown toddler mode. He loves swimming, water, going on car rides (even if it’s just for school pick ups) his fish, running around everywhere, and food!
He’s happier, laughing a lot more and more content, he really is full of life now and it’s amazing.
He’s just doing great!

Financially, the family would not have survived this past year without the generosity of mostly strangers. So, to round out what has been a rollercoaster 12 months, we as Seth's family wanted to show you how great he’s doing, and say how grateful, thankful and humbled we are by everyone's support. 💙💙💙

We're all a little bit stunned, but feeling so very very blessed.
The mass that showed on Seths kidney is not cancer 💛💛.
Just had last chemo and now over to genetics and the renal team 💖💖💖

Hi all, it's been a while since we updated.

Since Seths last surgery he's been recovering well at home, with finishing up the lasts bits of chemo.
The expectation from this was cancers gone, manage with the 60% kidney that remains (which is working well) until he's older and needs a transplant. - with a few other bits along the way.
We've been getting ready to write the post that said he's done it! ....But, on the last visit to Starship, whilst having the last chemo, scans and tests, we received very unexpected and gutting news.

The space created by removing part of the kidney and tumour on the last surgery, has been filled with another tumor.
This has just been biopsied, but the expectation is it will show the same cancer.
The Doctors are still working on a plan.

But so far we know, Seths not strong enough to manage without his kidney and go straight to dialysis. He's now about to undergo very strong chemo which comes with it longer stays and potential complications.
He can't go straight for a transplant due to the chemo.

We've all been getting our head around this as a family and what it means for Seth. What we know though is it's not over, the hard stuffs yet to come and it's going to be a very long journey medically for Seth.

We wanted to keep everyone in the loop as our gratitude as a family for all the wider family, community and financial support, have helped in what's been a tough year.

When we know what's clearer ahead of us we'll let you know.

Aunty Amy, on behalf of Seths family 💙..

Thank you post on this beautiful day in Feilding. 💖

Thank you to Whaea Lisa and the beautiful children in Room M from Manchester Street School, for raising money for Seth through a fire wood raffle.
To Janet and the Shaken Oak Montessori children and their families who held a wheel a thon.
The staff and public from Spring Patisserie & Cafe collecting for Seth.
As well as the team from Treadwell Gordon
Thank you for all you've done and continue to do for the family.

Back to Starship on Saturday but hopefully a shorter stay this time 💙

A few days ago Seth got to come home ❤.
It's not yet smooth sailing, and he has to go back to Starship shortly for another op and continued chemo, but things are going forward.
So thank you beautiful people who've sent warm wishes and thoughts, those who've continued to donate to the family.
Everything is received with gratitude and heartfelt thanks 💖

This was Seth last night, looking the most peaceful and comfortable he has been since the operation last Monday.
It was very successful with 60% of his kidney remaining. We are all so thankful to the amazing team of surgeons who salvaged every millimeter they could.

Since the operation he has had every minor complication that could have come from it, alll adding up to quite a major post surgery recovery.

All fingers are crossed though that the worst has passed and he'll be running around any day now 💙

Our little man has had a bumpy couple of days with temperatures, extra tubes, pain managment, blood pressure and bowel issues going on.
But, today has been a better day 💙

His Dorothy and shark stayed with him all day💕

News from Ben in Starship.
Seths not long out of surgery and in High Dependency Care Unit
He had a complex 6 hour surgery where they removed 1/3 of his kidney and part of his bladder. They have too inserted a Stent.
Only in The HDU for the 1-1 care needed due to the huge surgery on his little body. His stats are good just keeping an eye on his bp, no unexpected complications though.
It will be a long recovery and he will require more chemo.
The family are though doing really well and working on facing just one day at a time.

💖

Feilding community rallies, raises $15,000 for toddler with rare cancer Some were there for a bargain, but most of them were simply there for a little boy, and his family, doing it tough.

An update from Seths mum Shanelle from Starship.

We're up at the ward and he’s happy and a lot more relaxed with the nurses 💕.
We spoke to the surgeon that’s doing his surgery tomorrow and he is confident they'll be able to save half of his remaining kidney. They said though there is a likelihood of infection post surgery and as It'll be a long and complex surgery, we've been told expect a long recovery.
He also said that Seth will have to continue chemotherapy afterwards as it is likely he still has cancerous cells in his system.
We'll have to wait till we see Seth’s oncologist to confirm that part, because we assumed the chemo was over and after the surgery he'd be cancer free.

But the good news is the surgeon is confident.
Edited - Prep for surgery at 8am