Lipedema World Alliance

Lipedema World Alliance

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Welcome to Lipedema World Alliance, a non-profit organization founded in 2022.

Photos from Lipoedema UK's post 15/09/2025

The Lipedema World Alliance (LWA) is proud to announce that several of our Board Members
✨ Prof. Cornely
✨ Dr.med. Faerber
✨ Dr. Ghods
✨ Fetzer
✨ Kate Forster
will take part in the Medicine and Me: Unmasking Lipoedema - A women’s health condition hidden in plain sight, hosted by the Society of Medicine.

📅 Tuesday, 16 September 2025
🕑 14:00–18:00 BST
💻 Free online webinar
This unique program will explore:
✔️ Advances in diagnosis and treatment pathways
✔️ The latest NICE updates and insights from the German LIPLEG study
✔️ Patient perspectives to better understand lived experience
🌍 Having our Board Members actively contribute is a true point of pride for the LWA, highlighting our commitment to raising global awareness of lipoedema.
🔗 Register now (simple & free): https://lnkd.in/eAMw8RYM

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02/09/2025

🌍✨ Exciting news!
Dr Karen Herbst, Vice President of the Lipedema World Alliance, will be joining the September Research Roundtable 🎙️

Together with Dr Leon Straub, she will share the results of their recent study on the molecular hallmarks of Lipedema/Lipoedema – a milestone in raising awareness and advancing scientific understanding of this condition.

📅 Don’t miss the chance to hear directly from the researchers and gain valuable insights!

👉 Watch the full webinar: https://lnkd.in/giFwMtgc

📑 Read the study: https://lnkd.in/daf9UCff

Join us for the September Research Roundtable, where host Dr. Karen Herbst and guest Dr. Leon Straub will discuss their recent study (https://loom.ly/k6Zauzc) investigating the molecular hallmarks of .

📆 Monday, September 8, at 8:00 PM ET (5:00 PM PT)
🎟️ Free to attend, with recording provided after
💻 Register at https://loom.ly/lkwLzFY

30/08/2025

Great news! 🌟
Prof. (Hon) Dr. med. Manuel E. Cornely, board member of the Lipedema World Alliance, was one of the speakers at the Summer School Lymphologie 2025 (August 28–31, Berlin), organized by the German Society for Phlebology and Lymphology.

✨ He had the honor of giving the opening lecture of the meeting, setting the tone for inspiring discussions and knowledge-sharing.

This event brought together experts, practitioners, and industry partners for interdisciplinary lectures, hands-on training, and networking — all aimed at advancing diagnosis and treatment in lymphology.

We celebrate Prof. Cornely’s contribution to advancing education, collaboration, and innovation in this important field. 💙

18/07/2025

⁩ ⁨🎉 Big News for Women with Lipedema in Germany! 🇩🇪
Liposuction for lipedema is now officially approved for health insurance provision in Germany 🙌💉
🟣 The Federal Joint Committee (G-BA) confirmed today that liposuction is a proven and beneficial treatment for lipedema in the legs and arms — regardless of disease stage.
📋 Eligibility is likely to require:
✅ Official diagnosis from 2 healthcare professionals
✅ 6 months of conservative treatment
✅ Stable body weight
💡 This decision is based on strong scientific evidence — especially the pivotal LIPLEG study — and reflects a major shift toward recognizing patient needs and lived experiences.
📆 Outpatient billing codes are expected by 1 January 2026, making treatment more accessible in clinical practice.

Lipedema World Alliance congratulates all involved in the decisions and contributions, including LWA Board Members Professors Manuel Cornely and Mojtaba Ghods whose surgical centres provided the majority of LIPLEG patients, and Dr Gabriele Faerber co-ordinator and lead author of the German Lipedema Guidelines under the guidance of the German Society of Phlebology and Lymphology. LWA was also pleased to see the Committee considering the patient perspective through the evidence given by Susanne Helmbrecht of the LWA Founder Member patient organisation Lymphselbsthilfe e.V.
Together, we move forward for better care. 💜

16/07/2025

📣 Important Update on Liposuction Reimbursement in Germany
Following the completion of the LIPLEG study, the German Federal Committee for Healthcare Services (G-BA) will be meeting to review the reimbursement of liposuction for patients with lipedema.

🗓 Watch the session live (in German)
📍 Date: 17 July
⏰ Time: 11am CEST (lipoedema to be discussed towards the end of the meeting)
🔗 https://www.g-ba.de/service/livestream-mediathek/

This is a crucial step toward better access to care for those affected by lipedema. Stay informed and join the live session.

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