ALS TDI
We have one mission. End ALS. We are the world's most comprehensive drug discovery lab focused solely on ALS.
As a nonprofit biotech, our cutting-edge research is fueled by the ALS community. Visit www.als.net to explore our impact and help fund cures. Since 1999, our team has grown from a family working in a basement to a team of over 30 full-time researchers. We are dedicated to discovering and inventing effective treatments to end ALS. We will not stop until there is a treatment for every person living with ALS.
10/07/2026
Here's what Summit Friday looks like.
The 2026 ALS TDI Summit brings our scientists, collaborators, and community together for a full day of the research driving us toward treatments for ALS — from TDP-43 modeling and the SOD1 mouse model to the ARC platform, AI-guided data science, and digital measures of how ALS changes everyday life.
Highlights include a panel on hereditary vs. sporadic ALS featuring Dr. Fernando Vieira, Dr. Danielle Boyce, Dr. Michael Robinson, and Dr. Steven Altschuler, plus our Leadership Awards to close out the day.
Virtual attendance is free and open to everyone. Save your spot: https://fundraise.als.net/alssummit/
10/06/2026
Lauren Clausman will run her fourth marathon for ALS research on October 25th at the Marine Corps Marathon in Arlington, VA.
She began fundraising after losing a family member to ALS in 2012 and discovering how little the disease was understood at the time. This year, she's directing her efforts toward ALS TDI's Champion Insights Study — research into why military service members, first responders, and elite athletes appear to develop ALS at elevated rates. As a lifelong competitive runner with service members in her family, it's a question she takes personally.
"When I finish a big goal or a race like this, it feels 10 times more successful, more productive, knowing I was also able to raise awareness and raise money for people that are close to me."
The Martha Olson-Fernandez Foundation
Read her full story and support her run: https://www.als.net/news/lauren-clausman/
10/05/2026
Leadership Weekend doesn't happen without them.
Thank you to the sponsors who made this year's ALS TDI Leadership Weekend possible; your support brings our community together and keeps our research moving forward.
From all of us, and from everyone living with ALS who benefits from the work you help fund: thank you. 💜
10/05/2026
To everyone who turned their September birthday into something bigger: thank you. To celebrate your day, you asked your friends and family to give to ALS research, and together you raised over $850 for ALS TDI. That's real fuel for the work happening in our lab every day.
Want to do the same? Start a Facebook fundraiser for your next birthday and put it toward a treatment for ALS!
Watch Steve Gleason’s GMA interview to hear about his connections with other football players living with ALS and why studies like Champion Insights are so important to understanding why certain populations may be at greater risk of developing the disease.
Learn more about Champion Insights here: https://www.championinsights.org/
Pevindi knew she wanted to be a scientist when she was nine years old.
She was often sick as a child, and every new medicine made her wonder how it worked. Then she learned that some diseases still have no cure. “Why is this incurable?” That question became the foundation of her career.
Pevindi joined ALS TDI’s research team this year as part of our ongoing expansion. Today, she is studying C9orf72, one of the most common known genetic causes of ALS. Her work involves differentiating stem cells into motor neurons to create cellular models that can help us better understand the biology of C9orf72-associated ALS and evaluate potential treatments.
We are thrilled to have her on our growing team.
Follow along to meet more of the scientists behind the work.
10/03/2026
Six events, one month, one mission.
October brings ALS TDI's Leadership Weekend to Boston — an Open House at our Watertown lab on the 8th, the ALS TDI Summit on the 9th, and the White Coat Affair on the 10th — alongside two community fundraisers in Roanoke and Northbridge, and a virtual Town Hall on the 21st.
We'd love to see you at an event this month!
Full lineup: https://www.als.net/als-events/upcoming/
10/03/2026
Run Grandma's Marathon with Team ALS TDI!
Applications are now open for the 2027 full marathon, half marathon, and 5K in Duluth, June 18–19, 2027.
Grandma's sells out fast — be sure to snag a spot in the race by joining Team ALS TDI. You'll get a team singlet, fundraising support from our staff, and every mile you log will fund ALS research at our lab.
Whether it's 26.2, 13.1, or 3.1, run it for a reason. Apply today: https://fundraise.als.net/marathon/grandmasmarathon/application
We are deeply saddened by the loss of our friend Brooke Eby.
Brooke had a rare ability to talk about ALS with honesty and humor in a way that made people listen. By sharing her life so openly, she helped people understand the devastating reality of this disease and brought many who had no previous connection to ALS into the fight to end it.
In 2023, Brooke performed a stand-up comedy routine at ALS TDI’s White Coat Affair. This clip captures the humor and levity she brought to an incredibly serious subject, and so much of what made Brooke special.
We are grateful that Brooke shared her voice and this moment with us. Our hearts are with her family, her friends, and everyone who loved her.
If you'd like to listen to her full ALS stand up set: https://youtu.be/o2VE6RvHocI?si=22Q3CqSGPWK4wqy2
10/01/2026
Michele is here to help. And so is the rest of our team.
An extension cord. An extra pair of hands settling into a hotel room. Someone to park the van. Specialty foods, larger straws, an outlet close enough to plug in equipment. Whatever a person living with ALS needs at Leadership Weekend, our Development Director and VIP Concierge Michele Dupree will be on hand all weekend long — and she's just a call, text, or email away at any point.
Comfort and care are our #1 priority. If you have a worry, bring it to us. We have people here to help.
TODAY IS THE LAST DAY TO REGISTER. THIS IS YOUR SIGN: https://fundraise.als.net/leadershipweekend
Read Michele's story and get in touch with her directly: https://www.als.net/news/vip-concierge-leadership-weekend/
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