amomcoping

Found out today that these two are full sisters (biologically) 😁 We suspected as much, but now we know for sure. They have been and always will be double sisters!! 💕🤟

Happy to the two most talented, loving, smart, silly, and overall fantastic darlings a mom could ever have. Sophia, Ava - Mommy loves you to the moon and back a billion times over 💕🤟

I love these people so much 💕

Losing 80 lbs has been nuts but I feel like a million bucks now that I've learned what was making me so sick for so long. Thank you

First Day of School!! ✅💕

She deserves BETTER. After yet ANOTHER wait (this time 3 months - the previous one was 2 years), we had another nowhere appointment with Rady Children's Hospital, just so we can wait for another 6+ weeks just to THEN be added to a third waiting list for services.

I'm so done and yet I CAN'T BE. Monday, I'll start making calls to see who nearby will take cash to start providing her therapy RIGHT NOW. Cold, hard, under the table money if need be. My daughter deserves better.

And this is just for OT. One of SEVERAL services we're trying to get her. We keep getting the run around time after time, place after place. Told they'll call us "soon", told to call back, told to be patient, told to try some other place/number/extension/department, put on such-and-such waiting list, etc etc. It's EXHAUSTING.

She's had evaluation after evaluation and we have all her diagnoses and treatment recommendations. Those took YEARS to get and I thought having them was the key. I was wrong. Those don't get her help or services. They don't get her anything but medical bills.

Why do we care so little for children?

I've spent over $15k in the last 8 years trying to get my daughter services she needs and still, next to nothing for her. No one cares. I'd trade a kidney for ONE service for her and I can't even get a return phone call from most places.

I'm broken. The system is broken.

I will send one thank you, however, to the STAR Institute on Sensory Processing in Colorado who have been the ONLY people who have actively cared and tried to help my baby. It's just not enough.

She's suffering and no one cares enough.

Bubba gets to check an item off his bucket list....going outside to explore! He can't get over-exerted, but after the initial WHAAA?! from his sweet face, he was as calm as could be, exploring the backyard with his sisters! 💕

Thank you "Mister Dylan" for our babies' swim lessons today 😁🏊🛟🤿

Amazing evening seeing and in concert last night! 🍷🎸🎤

I've debated posting anything about this because I still don't have answers, but it's not easy to hide anymore, so here's what I'm able to tell of this story.

I woke up one morning in March with a persistant cough that hasn't left me since. No illness, no COVID, no obstruction of any kind to cause it. It just appeared.

I've been to doctors, had several tests done, x-rays, pulmonary function, etc. and still no definitive cause. Either tests come back clear or inconclusive.

We're still on the path to diagnosis and I'm getting as many second and third opinions as possible and seeing as many specialists as I can, but appointments are hard to come by and unfortunately, I'm beginning to struggle to breathe. It's disrupting my daily life and it won't be long until everyone notices. Hence this post.

I'm not yet really worried since we're trying everything, we've ruled out some truly gnarly things, and no doctor has given up on me, it just takes time and I'm uncomfortable. Medicines and inhalers aren't working. The only thing that gives me some relief is my nebulizer, which I use with Albuterol.

Unfortunately, I have crippling anxiety and using the nebulizer makes it worse in the moment (go figure). I've also noticed it makes me have more psychogenic tremors in the moment too (yay), so while a nebulizer is relaxing for some, it's nerve-wracking for me (plus it's just loud lol and I'm Deaf).

The coughing disrupts everything and every friggin person hears me and is like "OMG SHE HAS COVID RUN AWAY!" so that's fun. Plus, ladies, we all know what happens when you cough too much or too hard. The worst. Like, THE. WORST.

I'll keep y'all updated of course but for those who see me often, I can't get you ill (haha) and please, try not to worry, I'm working on it. I'm getting desperate for relief so I won't be giving up until I know what's wrong and how to fix it/manage it.

Until then, please be patient with me as I won't be very active, cheery, or out and about as usual. It simply takes a lot out of me and I have to rest a lot. Thank you for reading my story as I know it right now. I love y'all. 🤟💕

She wanted the "whole box" of candles on her cake 🎂😂 Happy birthday, baby!

was so kind and put on a great show (as always), thank you, for giving me equal access and thanks for the Meet and Greet !! 🤟💕🎹🎸