JAXONstrong

JAXONstrong

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Bringing awareness to DCC (disorders of the corpus Callosum) & PMG (polymicrogyria). #JAXONstrong

08/07/2025

Big yard sale 167 christland drive Sullivan mo. All proceeds go towards Jaxon’s expenses.

His older sister & little brother will be selling lemonade for $1 as well.

02/25/2025

Moving on to less support while walking 💙
He’s doing so good!

Photos from JAXONstrong's post 11/13/2024

Walking walking walking 💙 Jaxon has been doing very well with his physical therapy sessions lately. 🙂

11/04/2024

Jaxon has his big boy bed.💙

Again thank you all so much for caring about my sweet Jaxon.

10/25/2024

I wanted to thank everyone that has supported Jaxon’s benefit in some way. We reached the goal & he will be getting his new bed very soon.

I also wanted to share the results of Jaxon’s stemming with his current bed. As much as he loves to rock for bed time or just anytime he’s upset, he has created 2 big knots on his head. One being right in the middle of his forehead at the top of his hair line & the other being in the back of his head. They have caused bald spots and have now busted 😕 so I’m very thankful he is getting his bed soon because he already goes through so much. We don’t need knicks and bruises from things that make him a happy boy.

10/19/2024

Benefit is tomorrow morning. October 19th at 11am. Location is Sullivan vfw.
We appreciate all that have helped already & all that have shared.

Holding a benefit for Jaxon.
He is in need of a medical bed.
Just sharing helps! Thank you.

Photos from JAXONstrong's post 10/18/2024

If it’s a swing or sunshine it has Jaxon’s heart 💙
Jaxon is doing really well in school. He is also 30 pounds now! Which feels so great to say considering he was stuck at 24 forever it felt like.
He is getting to be such a long boy. Little by little we are getting there!😊

10/13/2024

Raffle tickets for half a hog. 1 for $5 or 5 for $20.
There will be more raffles at the benefit for multiple different things.

09/04/2024

Holding a benefit for Jaxon.
He is in need of a medical bed.
Just sharing helps! Thank you.

08/23/2024

For some reason it will not let me update the address for Jaxon’s page. If you wish to send a helpful pamphlet or donation or even just a special card showing your support. Please message his page and I will get back with you.

Thank you all for the support 💙

08/23/2024

Jaxon finished his first week of school. He is doing good so far. Taking food from his PA & playing ball with some of the other students. 💙

08/02/2024

Wanted to give a life update on this guy since we don’t have any medical updates. He is doing very well in therapy & actually gets to start school to continue therapy! Which is a world of emotions in itself but I know he’ll do great! Hes been wanting to be on his feet more an more a will actually stand unassisted at the couch for a bit! Falling or losing his balance still frightens him so he doesn’t try to take any steps but he is slowly walking with his gate trainer! His therapist said this year will be the year for walking. So fingers crossed!

He is seeing a dr next Monday for knots that are forming anywhere he has pressure on his body. Example: he has knots on the sides of his feet from his AFOs where they apply pressure to correct his ankles. Fingers crosssed we get an answer as to why that happens or at least be told that they are harmless. He also has one right in the middle of his hair line that makes it looks like he has a hack job for a hair cut😂 but bald spot or no bald spot he is so handsome! 💙

One of my favorite pictures, he looks so big.💙

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105 Bogart Boulevard
Sullivan, MO
63080