Doors In Time

Why wait till the 31st to start dressing up?! 🕷️

To My Doors in Time Family:

I am sorry for my absence. I have been on social media off and on to entertain myself so that I do not feel so much pain. (I have passed over a dozen kidney stones in the past few months - and still have 1 more to go.) Besides all of that, I have been very ill and unable to film & edit – and I still don’t know how to handle the YouTube situation! At another time, I will explain everything that I can. (Maybe we can live-stream a family meeting soon???) But for now, I am very concerned about all of you! For the most part, you are all much more prone to a serious case of Covid-19 – and I feel that information that you need is being withheld from you.

I haven’t dealt with Covid-19, but I do know what happens when a patient presents with symptoms that baffle physicians. Everything is a guessing game. As many of you already know, my experience was that the doctors guessed incorrectly for over two years. Yet, once they came to some sort of conclusion, all were certain that they were right. The specialists argued with me that science was on their side. Because I never went back and told them that they couldn’t have been more wrong if they tried, they probably still swear by their (incorrect) science.

After tears, frustration, mental exhaustion, I received a text from my daughter’s medical advocate. She wanted to know if I had ever heard of a particular neurological syndrome. It happened to have a bizarre name that I wouldn’t have forgotten if someone had mentioned it to me before. I wasn’t familiar with it.

A few hours of research later, I realized that this syndrome is not accepted as “real science” in mainstream medical circles– and worse, it was going to be difficult to find a doctor to rule out or diagnose it. I contacted one of the two doctors in the entire state of Utah who treat this illness. My daughter was given a cutting-edge test, which made it possible to understand what was happening to her.

The science of the most renowned team of specialists can mean absolutely nothing. In medicine, “science” is not absolute. At best, medical science is an opinion based upon observations, which will ultimately always be clouded by personal prejudices. At worst, it is an opinion easily swayed by monetary rewards or peer pressure. Sometimes, “science” is a stance a physician is forced to accept because of hospital guidelines or fear of reprimands from superiors.

For a good doctor, medical “science” isn’t an absolute, it is fluid. It changes as better information or technology becomes available. Behind closed doors, medical science can be hotly debated and still not be conclusive at the end of the arguments and presentations of studies and evidence. The experts do not agree when science is science, which hopefully helps you to realize that when a TV Personality or a Billionaire Computer Nerd tells you that they are basing something critical on “science” from leading medical experts, somewhere there is a group of just–as-qualified-doctors who would see that science as dangerous bunk.

As a mother, weeding through the different schools of thought – the different opinions labeled “science” was gut-wrenching. I can only imagine what it would be like to have a family member with Covid-19. With this pandemic, the situation is more colluded by “medical science” being hijacked and weaponized for political purposes and monetary gain.

For my family, the suppressed, less-accepted science, was more often than not, the science we needed to heal. I say this not because I am advocating the science of the Right over the science of the Left, but because I want to emphasize that when Facebook, Twitter, or YouTube suppresses information because it has been “fact-checked” and shown to be erroneous, somewhere there is a group of highly-trained, highly qualified medical experts who would label social media “proven-facts” as medical science-fiction.

I don’t want any of you to have your health destroyed because it was the target of a political weapon – Right, Left, or otherwise. Don’t research in an echo chamber. Lastly, pray for inspiration to know which “science,” if any, you should trust.

Much Love, Heidi

Here’s our top nine of 2019! We’re so grateful for all the love and support you have given us this year! We’re so excited to show you what we have planned for 2020! Love you!

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Super hero buddies 😁

Moose’s Halloween costume this year is the dog from the Lucas The Spider polar bear episode 🐶 Happy Halloween!

Lucas the Spider

Advocating for your child with an invisible illness can change who you are as a person. I was so excited to get a chance to do this interview while at CVX-Live.

How Advocating For Your Child Changes You Doors in Time joins us this week, sharing their story of not giving up through multiple doctors, until they found someone who could help their family. Althou...

https://youtu.be/NKu0igUqKWc

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