Washington RARE Action Network

Facebook Live Panel: Coping During Covid-19 https://www.seattlechildrens.org/events/facebook-live-panel-coping-during-covid-19-143929579/

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Protect Education Rights During COVID Congress could use COVID-19 to strip students with disabilities of access to education by allowing schools waivers to opt-out of providing free appropriate public education.

We want social distancing, not social isolation In light of the coronavirus outbreak in King County, we are following Public Health’s recommendations to avoid large gatherings and practice “social distancing” – increasing the physical distance b…

Sopris Elementary students take a peek into the world of rare genetic disorders — and share a message of inclusion A group of Sopris Elementary School fourth grade students put their research hats on recently to learn more about rare diseases, including a disorder that afflicts one of their classmates. Beyond the academics of it...

Raising Rare - Parents quest to find cure for son's rare disease SalemOaks and CureGPX4.org presents Raising Rare. Raising Rare is a podcast following a parents quest to cure their son’s ultra rare disease. You will listen...

#ShowYourStripes PSA | Thank You Over 25 million Americans live with a rare disease. 90% of the 7,000+ rare diseases are without an FDA-approved treatment. By showing your stripes, you can s...

Researchers Find Evidence of Childhood Rare Disease in 60 Million-Year-Old Dinosaur Tumor - Global Genes Rare Daily StaffA 60 million-year-old tumor, found in the fossilized tail of a dinosaur in Canada, has been shown to have the pathological features of Langerhans cell histiocytosis, a rare and painful disease that still afflicts humans, researchers reported. In a study in the open access journal Sci...

Why Every Human Being Stands to Benefit From Rare Disease Research "Rare disease research shouldn’t matter only to those whose friends and family members who have rare diseases."