Arizona Bleeding Disorders

Advocacy Update!

Earlier this year, AZBD's Future Leaders traveled to Washington, D.C. for Washington Days, where they met with members of Congress and shared their stories while advocating for issues important to the bleeding disorders community, including the FED UP with Bleeding Disorders Act.

We are excited to share that the FED UP with Bleeding Disorders Act has officially been introduced in the U.S. House of Representatives! This bipartisan legislation aims to address many of the barriers faced by women and girls living with bleeding disorders by reviewing federal programs, improving provider education, increasing access to treatment and services, encouraging inclusion in clinical trials, and creating a national awareness campaign.

This is a great reminder that advocacy works! We are excited to continue building momentum and advancing awareness for women and girls with bleeding disorders!

Don't miss out!

Star Therapeutics’ is investigating a once-monthly subcutaneous prophylactic treatment for VWD called VGA039.

If you or someone in your family has any type of VWD, please join us for an engaging session as Dr. Laura Guido shares how VGA039 works, its clinical development path, and early trial results. Dr. Guido will also discuss our VIVID Clinical Trials and how to explore eligibility and participate.

When: June 10, 2026 from 5 PM – 7 PM
Where: Virtual

Register on our website!

Aaden shared this photo with us showing off his Camp HONOR wall, and we love it!

From camp photos and awards to years of memories, it just goes to show how much Camp HONOR means to so many members of our community. It's been amazing watching Aaden grow from camper to CIT, and we know there are plenty more Camp HONOR memories still to come.

Thanks for sharing, Aaden! Camp month is here!

Beca de viaje Familia De Sangre 2026

Arizona Bleeding Disorders se complace en ofrecer una beca de viaje a una familia miembro de AZBD (hasta 4 personas) para asistir a la 10.ª reunión anual de Familia De Sangre, en la que se celebra la cultura y la comunidad.

Esta es tu oportunidad de reencontrarte con amigos, ampliar tus conocimientos y vivir uno de los eventos familiares más importantes para la comunidad de personas con trastornos hemorrágicos.

El límite para presentar tu solicitud será el 5 de junio de 2026

Regístrate en nuestra página web!

The Camp HONOR Talent Show!

At this point, we're not entirely sure if it's a talent show, comedy show, or complete chaos BUT it's one of our favorite Camp HONOR traditions.

Every year, campers and staff take the stage to show off their talents, perform skits, make everyone laugh, and somehow create moments that get talked about for years afterward.

Last year alone, Pitbull made an appearance, The Cat in the Hat stopped by with Things 1–9, and there may have even been a celebrity wedding.

You never know who's going to show up at the Camp HONOR Talent Show!

Are your kids ready for Camp Honor!

Come join the AZBD, PCH, and Sanofi for a camp HONOR readiness educational dinner and really find out how ready your kids need to be for camp!

We’ll talk through the camp experience, common parent concerns( like packing medication!), and what to expect throughout the week. We'll also go through how Camp HONOR helps campers build confidence, independence, and connection within the bleeding disorders community.

Tucson – Tuesday, June 9
Where: Reform Modern Mexican
4340 N Campbell Ave, Tucson, AZ 85718
Time: 6:00 PM – 8:00 PM

Phoenix – Wednesday, June 10
Where: Barrio Queen
31 S McClintock Dr, Tempe, AZ 85288
Time: 6:00 PM – 8:00 PM

Register on our website!

Great OWN IT! session this month! This weekend, we talked about movement, physical therapy, and how both play an important role in managing a bleeding disorder and maintaining long-term health. Miguel, one of our teens, also lead a quick group workout to get everyone moving!

Our next OWN IT! session will be at Camp HONOR, and we can’t wait to see so many of you there!

Got a future camper asking way too many questions about camp? This one’s for them!

Super 7s is a chance for younger kids to get a preview of Camp HONOR and see what it’s all about. They’ll spend the day at camp doing activities, meeting other kids, and getting a feel for the experience before they’re old enough to attend.

When: June 29, 2026
Where: Prescott Pines
855 E School House Gulch Rd, Prescott, AZ 86303

Transportation will be provided. Register on our website!

Shoutout to Elisea for being featured in the Coalition for Hemophilia B's newsletter!

It's always exciting to see members of our Arizona community connected and highlighted within the national bleeding disorders community. We always love seeing Arizona represented!

Read more here: https://hemob.aflip.in/2025-winter.html /42

Teen Tuesdays are back on June 2nd!

Join us at the AZBD Office this summer from 10 AM to 2 PM on Tuesdays for a chance to hang out and connect with other teens in the bleeding disorder community.

Lunch will be provided. Text us at (480) 489-4098 to let us know you’re coming!