Arizona Bleeding Disorders

Arizona Bleeding Disorders

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Dedicated to enhancing the quality of life for people with inherited bleeding disorders.

Bleeding disorders are life-threatening, debilitating, and expensive to treat with many physical, emotional and social challenges. A child with severe Hemophilia will spend over $150,000 annually to prevent bleeding. Some children and adults build up inhibitors to the treatment and the costs can exceed $1,000,000 per year. Failure to preventatively treat the disorder can result in prolonged painful bleeds that cause permanent and severe damage. Proper medical care and an ability to manage through the ‘insurance maze’ becomes paramount. Teens need to fully appreciate the importance of getting a quality education so that they can get a job with sufficient insurance. The entire family is affected by the bleeding disorder physically, emotionally, and financially. With over 40 years experience, we are the only agency in the state of Arizona that provides programs and services to people affected by bleeding disorders so that they can better cope with their disorder and can become self-advocates for themselves and/or their family. We partner with Hemophilia Treatment Centers, other agencies, and medical professionals to provide programs and services unique to the bleeding disorder community to best meet their needs.

09/26/2026

Think you have what it takes to get your tribe across the finish line?! We're ONE WEEK away from our Teen & Young Adult Retreat!

This year's retreat, we're bringing a Survivor-themed weekend to the woods as we challenge participants to find their tribe, work together, and grow through this retreat with others who understand life with a bleeding disorder. You can expect challenges, tribes, idols, votes, and team-building activities.

The retreat is open to individuals ages 15–21.

When: October 2-4, 2026
Where: Prescott Pines, 855 E School House Gulch Rd, Prescott, AZ 86303

Register on our website!

09/26/2026

We want to hear from YOU!

Following NBDF's Women & Girls Advocacy Day in DC, we're continuing the conversation here in Arizona by collecting stories from women and girls about their experiences with bleeding disorders.

Whether you've waited years for a diagnosis, struggled to have your symptoms taken seriously, or faced challenges accessing treatment and care, we'd love to hear your story. If you're still searching for answers, we want to hear from you, too!

You can share your experience in writing, submit photos, or record a video testimonial. Share as much or as little as you're comfortable with. Help us tell the stories of women and girls in our community!

Submit your experience here: https://forms.gle/x72MvftRBm1Xy3L4A

09/25/2026

Just think! This time next month we will be making s'mores with our families out in the pines.

Camp H.U.G will be Halloween-themed fun for a spooktacular weekend! It's more than just a retreat, it's a chance for generations of the bleeding disorder community to come together and share in the magic of camp. From ghost stories to costume contest, this is a weekend you won’t want to miss!

When: October 24-26, 2026
Where: Friendly Pines, 933 E Friendly Pines Rd, Prescott, AZ 86303

Please email Vickie at [email protected] to be placed on the waitlist!

09/23/2026

Can you believe we're already talking about the HOLIDAYS?!

Save the date for our Phoenix Holiday Party at ZooLights! Join us for an evening of festive lights, Santa, and time with your AZBD community. It's a great way to celebrate the season and look back on another year together!

When: December 12, 2026
Where: Phoenix Zoo
455 N Galvin Pkwy, Phoenix, AZ 85008

Register on our website!

Photos from Arizona Bleeding Disorders's post 09/23/2026

Queremos dar las gracias a todas nuestras familias por haber asistido a nuestro evento sobre la herencia hispana.

Nuestras familias participaron, interactuaron y escucharon las historias de los demás. ¡Este evento demostró realmente lo mucho que nuestras familias se preocupan unas por otras y el gran espíritu de comunidad que hay entre ellas!

¡Muchísimas gracias a nuestros patrocinadores, Takeda y Specialty Rx, por este gran evento!

09/22/2026

We're already in Week 3, but there's still time to Play It Forward with AZBD!

For just $25, you can support Arizona Bleeding Disorders AND have a chance to win prizes throughout the football season. No picks, fantasy team, or football expertise required. Your Play It Forward card comes with randomly assigned teams each week, and their actual game scores determine your points. That's it!

One card is just $25, and you can purchase as many as you'd like for even more chances to win. The earlier you join, the more weeks you'll have a chance to win, but Play It Forward registration will remain open through Week 8 of the season!

There's still time to get in the game: https://www.charitymania.com/give/SG088

09/22/2026

Thank you to everyone who joined us for our FAME dinner last week! It was so great to see everyone and be there for the QFIT broadcast. Thank you to Sanofi for putting on the evening!

09/21/2026

We're finalizing the details to take the show on the road! AZBD is heading north, and we're so excited for the opportunity to connect with our members in Northern Arizona!

Save the dates:
Flagstaff- October 10
Prescott- October 11

More info and registration available soon, but for now, mark your calendars. We can't wait to hit the road and see you there!

Photos from Arizona Bleeding Disorders's post 09/17/2026

Thank you to the Congressional offices who took the time to meet with us and and learn more about the women in the bleeding disorders community!

35 advocates from across the country came together in DC for NBDF’s Women & Girls Advocacy Day. Women with bleeding disorders can wait 16 years or more to receive an accurate diagnosis, and far too many continue to have their symptoms overlooked or misunderstood.

We spent the day talking about the FED UP with Bleeding Disorders Act, legislation focused on identifying and addressing gaps in research, provider education, access to care, and inclusion in clinical trials for women and girls with bleeding disorders.

For too many women, getting answers has meant years of symptoms, appointments, and trying to get someone to take their bleeding seriously. We will continue to advocate for a future where women and girls don’t have to wait years to be heard and believed to get the care they need.

Rep. Yassamin Ansari Rep. Joe Wilson Congresswoman Sarah McBride Congressman Raul Ruiz, MD

09/17/2026

Football season is underway, but there's still time to Play It Forward with AZBD!

For just $25, you can support Arizona Bleeding Disorders AND have a chance to win prizes throughout the football season. No picks, fantasy team, or football expertise required. Your Play It Forward card comes with randomly assigned teams each week, and their actual game scores determine your points. That's it!

One card is just $25, and you can purchase as many as you'd like for even more chances to win. The earlier you join, the more weeks you'll have a chance to win, but Play It Forward registration will remain open through Week 8 of the season!

There's still time to get in the game: https://www.charitymania.com/give/SG088

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Telephone

Address


826 N 5th Avenue
Phoenix, AZ
85003

Opening Hours

Monday 8am - 3:30pm
Tuesday 8am - 3:30pm
Wednesday 8am - 3:30pm
Thursday 8am - 3:30pm
Friday 8am - 3:30pm