NF Family Association

NF Family Association, a parent volunteer group that exists to support families and individuals at CHOP who are affected by Neurofibromatosis.

The Neurofibromatosis (NF) Family Association is a parent volunteer group that exists to support families and individuals at The Children’s Hospital of Philadelphia (CHOP) who are affected by NF1, NF2 or Schwannomatosis Our goal is to help enhance and expand CHOPS NF Clinical service and research endeavors, and build an NF community through robust educational and fundraising activities.

04/13/2026

We’re just 13 days away from our 2026 Spring Picnic. Please be sure to let us know you’re coming. (Please include the number of people in your group.)

03/11/2026

Save the date for our spring picnic!

10/20/2025

We’re excited to announce that we will be hosting an in-person Neurofibromatosis Symposium on Sunday, November 2, 2025, from 10am to 2:45pm at the CHOP Buerger Center for Advanced Pediatric Care, in rooms 1212, 1213, and 1214.

Kindly RSVP so we can plan accordingly.

https://www.eventbrite.com/e/neurofibromatosis-symposium-tickets-1797012465659?aff=oddtdtcreator

10/18/2025

Join us for a Neurofibromatosis symposium

08/30/2025

Register today for the Philadelphia Shine a Light NF Walk.

https://join.ctf.org/event/2025-shine-a-light-walk-philadelphia/e666984

04/15/2025

NF Northeast's Steps2Cure NF Walk is right around the corner.
Registration starts at 9:00 am
Walk starts at 10:00 am
Enjoy a beautiful 1.5 mile walk around Wilson Farm Park.
Registration information: Steps2Cure NF 2025 - Steps2Cure NF - Greater Philadelphia 2025
Questions: Sara-Jane ~ [email protected] ~ 7819272-9936