MctdHOPE

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Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from MctdHOPE, Nonprofit Organization, Philadelphia, PA.

Thank You for Raising Your Hand! « Rare Disease Day USA 02/29/2012

Support rare disease like MCTD with one click!

Thank You for Raising Your Hand! « Rare Disease Day USA By raising your hand, you have just shown your support for the 30 million Americans who are affected by rare diseases. Thanks to you, Lundbeck has made a $1.00 donation to support rare disease research (up to a maximum donation of $10,000 for the campaign). The money raised will be contributed to a ...

Events « Rare Disease Day USA 01/20/2012

Check to see if there is a Rare Disease Day event in your area!

Events « Rare Disease Day USA Join NORD in creating awareness for Rare Disease Day. Learn all the ways you can support the 30 million Americans affected by rare diseases.

07/18/2011

This was an exciting weekend for mctdHOPE. We received a generous donation which will cover half of our 501c3 filing fees! Thank you Penny - your support is greatly appreciated!!!

06/30/2011

Chantal Molenkamp is a Dutch competitive swimmer with MCTD. She hopes to earn a medal in the 2012 Paralympic Games in London.

Competitive swimmer with MCTD

Video Project « Rare Disease Day USA 06/02/2011

Another way to spread the word about Mixed Connective Tissue Disease!

Video Project « Rare Disease Day USA Join NORD in creating awareness for Rare Disease Day. Learn all the ways you can support the 30 million Americans affected by rare diseases.

Using karate, fighting condition 04/27/2011

Here's an inspirational story about a woman fighting back against MCTD symptoms with karate!

Using karate, fighting condition A pallor swept over Darla Loy’s hands and feet when she was cold. Her hair thinned. Headaches pounded. Arthritis shot pain through her 28-year-old frame.

L.I.F.E. Scholarship - About The Scholarship 04/08/2011

Do you know a college student with Mixed Connective Tissue Disease or Lupus? Every summer, L.I.F.E provides a few students living with the diseases a college scholarship. The application deadline is July 1st and the recipients are announced in August.

L.I.F.E. Scholarship - About The Scholarship The L.I.F.E. Scholarship will be awarded to one or more students each year in August. Award recipients will receive a minimum award of $500.00 made payable to the educational institution at which they are enrolled for tuition, fees, and other educational-related expenses.

04/08/2011

Help Cure MCTD, Help Support mctdHOPE is raising funds to support Mixed Connective Tissue Disease research.

Mother sets out to buy iPads for other autistic children 04/06/2011

Check out this story about a mom with MCTD helping her son & many other autistic children communicate! Also take a look at her organization Loud Mommy http://www.facebook.com/pages/Loud-Mommy/189490214397830

Mother sets out to buy iPads for other autistic children The profound transformation in the Oathout household, as Grady slowly began to reveal his thoughts and feelings via his iPad, triggered a transformation in Tara Oathout herself. She is now dedicated to getting the same device in the hands of other families like her own –– families who are struggli

04/06/2011

The National Organization for Rare Disorders (NORD) is offering one of their annual grants for Scleroderma research. If we keep creating awareness, maybe MCTD will be one of next year's candidates!

Raise Your Hand to Fight Rare Diseases 02/28/2011

Today is International Rare Disease Day. 1 click = $1 donated to research for rare diseases! Click & Share!

Raise Your Hand to Fight Rare Diseases Click here and Lundbeck will donate $1 to the National Organization for Rare Disorders general research fund.

mctdhope.org - Home 02/23/2011

mctdhope.org - Home We are dedicated to increasing awareness of Mixed Connective Tissue Disease (MCTD), a rare autoimmune disorder in which the body's defense system attacks itself. The disease manifests differently in each patient. For some, it is debilitating. There is no known cure for MCTD.Together we can increase

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Philadelphia, PA