What are the opening hours?

Monday 9am - 5pm Tuesday 9am - 5pm Wednesday 9am - 5pm Thursday 9am - 5pm Friday 9am - 5pm

https://www.facebook.com/163042447131453/

The Demi Foundation

The extension of the heart and will of a special little girl to help other children to get a second chance at life just like she got.

On the night of September 8th 2011, an amazing little girl went out to dinner with her parents and brother to celebrate her 5th birthday. Her name is Demi Friedel and she is a beautiful girl, with a larger than life personality. She went to dinner that night as a normal 5 year old… she goofed around with her mother, father and brother and they all sang happy birthday to her.

4 days later her life

began to take a path that neither her, nor her family was prepared for. She was having issues with her vision and could not stand or walk or her own. She was in the JHU Pediatric Intensive Care Unit that morning. Demi was diagnosed with a brain bleed in a malformation of blood vessels on her brain stem. This happens to be the worst place to have a bleed, and due to the risks involved, Dr. Ben Carson advised that surgery was a last resort with the hopes that her body would resolve the blood on its own. She underwent several brain scans to monitor the bleed and initially the bleed was thought to have stopped. For 4 days friends and family prayed and hoped that this would be the case. They looked for signs of improvement every minute. Unfortunately, her symptoms continued to worsen. A complication of what she was going through was swelling on her entire brain caused by the fluid around her brain not being able to filter properly. As the week went on, the pressure affected her alertness and she spent less and less time awake. After a very tough 4 days in the PICU, and a second seizure, the doctors decided to perform surgery and remove the blood. The thought of losing their daughter was paralyzing for her family. They prayed to just be able to bring take her home again. Well, angels were watching over her and the surgery could not have gone any better. During surgery the doctors only saw old blood. Once the doctors removed the old blood they were relieved that there was no more bleeding, which indicated that the bleed had stopped. Also, the pressure causing the seizures was immediately relieved by the removal of the old blood. This was the best scenario for Demi. Demi and her family escaped a nightmare that all families with children of any age fear the most. She showed signs of improvement within hours after the surgery. Although small and subtle, they were a welcomed sight. Her post surgery symptoms included muscle weakness, limited motor skills on her left side and loss of movement on the right side of her face, including her right eye. But, more importantly, the larger than life personality that those who know her have come to love was back. The first day or so after her surgery, she never once asked why she couldn’t walk; she just kept trying to walk. She didn’t ask why she couldn’t use her hand the same way, she just did the best she could with what she had. She wanted to make jokes and see people laugh… that was her form of recovery. Demi is now doing remarkably well. She’s in 9th grade now and is doing things that most 15 year would do. She enjoys playing soccer, doing crafts and singing. She’s also quite the fashionista. She’s a big help to us in the planning and running of our events. However, she still deals with some motor skill issues in her left hand, her balance and the right side of her face. She has had 5 plastic surgeries over the past several years, a nerve graph and a muscle graph and some corrective surgery. Although we think she is perfect, all three surgeries are to improve her smile. The surgeries were a success and she’s now able to smile even brighter! The determination that she has shown through this is something that most people only wish they had. She tackled her therapy sessions like a champ, with no complaints. When she was spending her days at therapy this special girl was always asking about the other children and if THEY are OK and if there mommy or daddy were with them. She has the heart of an angel and the will of a lion. She is still here with us for a reason…to open our eyes to what life is all about.

03/25/2021

Special thanks to the Pay it Forward Home Team of ExecuHome Realty, for creating this video & supporting our mission. The Pay It Forward Home Team of ExecuHome Realty team donates 20% of THEIR commission to local charities when you use them to buy or sell a home. They also let YOU choose the charity, so PLEASE, consider The Demi Foundation when you chose them to buy/sell your home!

Visit: www.PIFHT.com for more information.

Liam Parker needs your help❤️, organized by Liam Parker

03/17/2021

Liam is the most recent child that The Demi Foundation is supporting. Liam was recently diagnosed with Non Hodgkins Lymphoma/ALCL, stage III, along with other diagnoses and complications.

Please read Liam’s story, and if you’re able to please donate to him and his family. Also, please share this page. Thank you! ❤️

Liam Parker needs your help❤️, organized by Liam Parker My name is Jenn Parker and I am Liam's aunt. My husband Mike is Pat's brother and I am re… Liam Parker needs your support for Liam Parker needs your help❤️

02/25/2021

Things are different this year for the Mix 106.5 Radiothon for Johns Hopkins Children's Center. Everything is virual and they've asked their Mircale kids and families to help them. So, Demi created her Team fundraiser page and would love it if you could help her reach her goal! All proceeds go to the radiothon and JHCC! Demi says thanks you for all your help!

Demi Friedel A fundraising page for Demi Friedel

02/24/2021

Hi folks...It's Radiothon time again and this year Demi has created a fundraising team to help! If you can, she's asking for your help! Please click the link below to help! You can join her team or just make a donation! All proceeds go to Johns Hopkins Children's Center! Thank you!

Demi Friedel A fundraising page for Demi Friedel

12/25/2020

From all of us to all of you, we would like to wish you and your families the Merriest Christmas! Blessings for a safe and happy day! Hug those kids! 🎅🎄🎁🎄🎁🎅

11/24/2020

Good morning all! Please tune into The NFL Network tonight @ 8pm to see the piece they're doing for the main man MO! This kid touched so many lives in so many indescribable ways. RIP MO

Season of Wishes Wish Heroes: Grant Holland - Make-A-Wish Foundation

11/17/2020

Good afternoon! First, in case you didn’t already know, we want to tell that our friend Grant is a rock star! Second, in case you didn’t know he was a rock star, is why. At the age of 16, Grant has already been through a lifetime of doctors appointments, treatments, testing, proding and poking. But now, after all that, he’s giving back and we couldn’t be prouder of him!

Please consider a donation to Grant’s Make-A-Wish cause! No donation is too small, they all count!

YOU ROCK GRANT!! ❤️

Season of Wishes Wish Heroes: Grant Holland - Make-A-Wish Foundation The Wish Heroes campaign celebrates the importance of wish-granting and Make-A-Wish supporters. Each Wish Hero helps make future wishes possible through personal fundraising. Now more than ever, the world needs the hope of a wish come true. Through the help of Wish Heroes and their generous family a...

11/10/2020

We are beyond happy to announce that we were asked to partner with the Pay It Forward Home Team of ExecuHome Realty!! You're asking what this means right? The Pay It Forward Home Team of ExecuHome Realty is giving their clients a choice to have a donation given in their name to any one of the charities they are partnered with! The donation will be 20% of their commission on every transaction! Yes! We couldn't believe either! We're the first non-profit to partner with them and we're looking forward to a long relationship into the future. They're currently in the works putting a promotional video together to get the word out. Even better, they've asked families that we've helped to be a part it! So stay tuned.

In the meantime, if you or anyone of your friends or family are in the market to buy a home either now or in the future, don;t hesitate to reach out to them now. They're ready to help with all your home shopping needs!

We want to thank Ross Hauff - Realtor, Pay It Forward Home Team of ExecuHome Realty and the Pay It Forward Home Team of ExecuHome Realty for their willingness to partner with us and we're humbled that they thought of us as a deserving organization to "Pay it forward"!

09/29/2020

Wanted to update everyone....Scans came back great! No new bleeds, the area of the original bleed is closing and still healing. Also, still no reason for concern of the cyst. Next scan isn’t needed until after high school! Demi thanks everyone for the support and we certainly appreciate it as well!

09/29/2020

This morning Demi is in for a scheduled MRI to make sure all is good. This is a routine scan to just make sure everything is normal. We’ll meet with the Dr this afternoon with the results of the scan. Expectations are that everything is normal, however a little prayer and positive vibes never hurts right!?!? We’re sending them all to our girl! 🙏❤️🙏❤️

Claim ownership or report listing

Want your organization to be the top-listed Non Profit Organization in Perry Hall?
Click here to claim your Sponsored Listing.

Contact the organization

Click here to send a message to the organization

Website

facebook.com

Address

Perry Hall, MD
21128

Opening Hours

Monday	9am - 5pm
Tuesday	9am - 5pm
Wednesday	9am - 5pm
Thursday	9am - 5pm
Friday	9am - 5pm

The Demi Foundation

Share

Category

Contact the organization

Website

Address

Opening Hours