The Riley Rose Foundation
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The story:
On September 21st our world came crashing down on us. Since then we have struggled to find a way to cope.
Mission statement:
To assist those in the Central New York area to overcome the difficulties of living with Epilepsy and to aid people by providing financial support for therapies that will help minimize or even stop seizure activity. Our one and only beautiful daughter, Riley Rose Lehner succumb to a seizure that lead to a fatal aspiration. Shortly after this tragedy, some of our closest friends
01/06/2025
Wishing Drew a speedy and full recovery! Donate if you can.
Donate to Aid Drew Zebert's Path to Recovery and Healing, organized by Jordan Zebert Dear Friends, Family, and Kind Supporters, At just 39 years old, … Jordan Zebert needs your support for Aid Drew Zebert's Path to Recovery and Healing
09/30/2024
Congratulations on another successful Swing & String event! A huge thank you to the The Riley Rose Foundation for their generous support of our epilepsy services in the CNY area. Together, we’re making a difference! &String
We are down to 3 spots left for the Golf Portion of the Riley Rose Swing & String on 9/28 starting at 1pm. First come first serve.
09/13/2024
A dear friend and a generous contributor to the Riley Rose Foundation. Every little bit helps. 👇
https://www.gofundme.com/f/support-alexanders-fight-against-kleefstra-syndrome?utm_source=copy_link&utm_medium=customer&utm_campaign=man_sharesheet_dr&fbclid=IwZXh0bgNhZW0CMTEAAR196zecx-JG4y0SebeAywtXhULtvwp_B2zz0I5inMRbs49_jBSMJkgz0KM_aem_iL18QYkcwHWvB8Lt2wRQRg
Donate to Alexander's Great Fight to Raise Awareness About Kleefstra, organized by Luke Jeraci Family, Friends, and the open community, We are humbly star… Luke Jeraci needs your support for Alexander's Great Fight to Raise Awareness About Kleefstra
Hello Beautiful People.
The Riley Rose Foundation's 4th Annual Swing & String Event will take place on September 28th, 2024 @ Kanon Valley Country Club (note the venue change).
The golf portion of the event will be at 1PM and the afterparty (food, music, raffles) will take place at 530PM.
If you're interested in golfing, teams will be $400 per team - please DM Zach Raynsford or us directly if interested.
If you're only interested in the afterparty, tickets will be $25 and can be purchased ahead of time or at the door (please message Chris Lehner or the foundation if paying advance).
08/09/2024
Just want to share this and thank all of our donors and volunteers. These beautiful stories aren't possible without you! Thank you to EPI for helping us source those in need. Please save the date for September 28th! More details to come!
We had an inspiring day at our Scholarship Luncheon, where we honored two incredible young women from the CNY region who have overcome the challenges of epilepsy with grace and determination. The scholarship awards were made possible by the generous support of The Riley Rose Foundation. Nela and Gianna, we are so proud of your achievements and wish you the very best as you embark on your college journeys. Here's to your bright future and all the success that lies ahead!
07/24/2024
4G Smart Watch with SOS,HD video call,GPS tracking,Falling alarm This 4G Smart Watch is perfect for keeping your loved ones safe. With its SOS feature, they can easily call for help in emergencies. Enjoy HD video calls and track their location with GPS history tracking. Plus, the Falling alarm will alert you when they fall, giving you peace of mind.
07/12/2024
Big thanks go LocalSyr for having us on and Nave Law Firm for their continuous support!
Stay tuned, new location and date for the Annual Swing & String Event coming soon!
Nave Law supporting Riley Rose Foundation to fight epilepsy (WSYR-TV) — People with epilepsy can experience reoccurring seizures. The brain disease can impact a person’s quality of life. Our friends at Nave Law Firm are here to raise awareness a…
06/22/2024
We here at The Riley Rose Foundation want to give our deepest and heartfelt thank you to the Oneida Fireman's Benevolent Association/Local 2692 for choosing the Riley Rose Foundation as one of the recipients of their annual boot drive to assist local charities. They were able to raise $8000 and generous enough to allocate $2000 to our Foundation! Amazing people doing amazing things!
Thank you to the Oneida City Fire Department for what you do on a day to day basis to keep our community safe!
Stay tuned, as we will be announcing a September date for our annual Swing & String golf tournament soon! We love and appreciate you!
05/02/2024
We are honored to be one of the local foundations the Oneida Fireman are raising money for with this year's boot drive. If you have the time, please consider swinging by Walmart Saturday May 11th or feel free to use the go fund me below! We all appreciate your time and effort!
Donate to Oneida Fireman's Benevolent Association Boot Drive, organized by Charles Kazlauskas This year the Oneida Fireman's Benevolent Association is doing o… Charles Kazlauskas needs your support for Oneida Fireman's Benevolent Association Boot Drive
Hello all you beautiful people out there. We hope the holiday season treated you well!
Today, we made a donation of $500.00 to the Golisano Children's Hospital on behalf of The Riley Rose Foundation. Golisano has a pediatric Epilepsy Program in tandem with UR Medicine. This would not be possible without your generous donations and volunteerism. We appreciate and thank you!
We will be nailing down a date for this year's event soon. Stay tuned and stay well folks.
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Oneida, NY
13421