Grin2b Foundation

⏰ Reminder: Registration for the GRIN2B Family & Research Weekend closes THIS FRIDAY! 🐝

July 17-19, 2026 • Bethesda, Maryland

If you have been meaning to register, this is your sign! Don't miss your chance to connect with other GRIN2B families, learn from leading researchers, and be part of a weekend built just for our community. 💛

Once Friday passes, registration closes, so don't wait!

👉 Register today - https://grin2b.com/family-research-weekend-2026/

We are so grateful for our Visionary Sponsor, ARIA (Aligning Research to Impact Autism)! 🐝💛

Because of their support, our families get to spend this weekend doing what matters most: learning together, connecting with one another, and walking away with renewed hope for the road ahead.

ARIA is working to accelerate scientific discovery and create more therapeutic opportunities for people with profound autism and related neurodevelopmental conditions, including GRIN2B. Through their IMPACT Network, GRIN2B is one of just a handful of genetic conditions selected for a multisite clinical trial infrastructure spanning the US, UK, and Canada, building the tools and research pathways needed to move discoveries from the lab into real care faster. 🌟

Thank you, ARIA, for believing in our community and helping pave the way toward a brighter future for every GRIN2B family. 💛

Learn more about the 2026 GRIN2B Family & Research Weekend.
https://grin2b.com/family-research-weekend-2026/

Happy Father's Day to the most incredible dads we know! 🐝💛

To every GRIN2B dad, you show up every day with strength, patience, and a love that knows no limits. You are seen, celebrated, and so deeply appreciated.

Happy Father's Day from your GRIN2B family! 🌟

We are so grateful for our Presenting Sponsor, GRIN Therapeutics! 🐝💛

Their generous support of the GRIN2B Family & Research Weekend makes it possible for our families, researchers, and clinicians to come together in one place, connecting, learning, and building hope.

GRIN Therapeutics is leading the charge to develop the first targeted treatment for GRIN-related neurodevelopmental disorders. Their investigational therapy, radiprodil, is currently in a global Phase 3 clinical trial enrolling patients in the US, UK, and Europe, bringing our community closer than ever to a real treatment. 🌟

Thank you, GRIN Therapeutics. We are honored to have you by our side. 💛

Learn more about the 2026 GRIN2B Family & Research Weekend.
https://grin2b.com/family-research-weekend-2026/

What an incredible day in Naperville! 💛🧡💙💜

On June 13th, the Cure GRIN Foundation and GRIN2B Foundation joined forces for another unforgettable GRI Get Together in Naperville, Illinois. Seeing so many families connect, laugh, and make memories together is exactly why we do what we do.

A heartfelt thank you to Cure GRIN Foundation volunteer Sarah Johnson and GRIN2B Foundation President Liz Marfia-Ash for pouring their hearts into making this event so special. We are so proud to connect and collaborate on these events!

And none of this would be possible without the incredible generosity of our sponsor, GRIN Therapeutics. Their unwavering commitment to the GRIN community makes events like this a reality, and we are so deeply grateful. 🌟

🥳 Stay tuned on details for future GRI Get Togethers in 2026!

Don't forget to register for our GRIN2B Family & Research Weekend in Bethesda, MD this July! 💛🐝

Registration closes on June 25th:
https://grin2b.com/family-research-weekend-2026/

"Cody and I are looking forward to meeting other GRIN2B families and learning any tips and tricks our family can apply through the years as he grows. We also hope to learn about active and future research opportunities that will be available to our community." -Aileen Lussier, mom to Cody and GRIN2B Foundation Secretary

👋 Join Us at the GRIN2B Family & Research Weekend
📍 Bethesda, Maryland
🔬 Research Roundtable | July 17
🐝 Family Meeting | July 17–19
⏰ Don’t miss your chance to be part of this incredible gathering!
🤝 Connect, 💛 Support, 💪 Empower

💛 Have You Supported a Dependent Into Adulthood? Share Your Story With Simons Searchlight.

The transition to adulthood is more than a milestone. It is an emotional journey filled with questions, decisions, and change.

As young people with rare genetic conditions grow up, families navigate independence, care, and shifting roles in deeply personal ways.

If you’ve been through this, your experience can help others and guide what comes next. By sharing your story, you can:

✨ Support other families on a similar path
✨ Help shape practical, real-world resources
✨ Strengthen research across the lifespan

Share your story: https://bit.ly/Transition_To_Adulthood

“I am so appreciative of the family weekend event. As a mother of a newly diagnosed GRIN2B child, it answered so many of my questions, and I walked away renewed and so thankful for this awesome community!” – Frieda Stoltzfus, GRIN2B parent

👋 Join Us at the GRIN2B Family & Research Weekend
📍 Bethesda, Maryland
🔬 Research Roundtable | July 17
🐝 Family Meeting | July 17–19
⏰ Registration closes June 25! Don’t miss your chance to be part of this incredible gathering!
🤝 Connect, 💛 Support, 💪 Empower

https://grin2b.com/family-research-weekend-2026/

We have extraordinary news to share with our community. 📣🐝💛

GRIN2B-related disorders have been selected as one of the very first conditions prioritized by ARIA (Aligning Research to Impact Autism): a fully funded initiative bringing together leading researchers, clinicians, and patient communities to accelerate clinical trial readiness and therapeutic development for people with profound autism and related neurodevelopmental conditions.

For our families, this is a profound milestone. ARIA's focus on clinical trial readiness, biomarker development, and translational research means we could see meaningful impact for individuals living with GRIN2B today.

This moment didn't happen by accident. It happened because our community has spent years participating in registries and natural history studies, and building a powerful global network of families, clinicians, and scientists.

We are deeply grateful to everyone who has been part of this journey. The future is arriving faster than we ever dreamed and we are so proud GRIN2B has a seat at the table. 🌟

As we work with the ARIA team in the coming weeks and months, we will share more about how families can participate in this initiative.

👉 Read more: https://ariaroadmap.org/research-hubs/impact-network/