ALS In Wonderland Foundation

ALS In Wonderland significantly impacts the lives of ALS patients and their families in Arkansas, fostering community support and raising awareness. Engaging with their programs or events is a great way to get involved.

For the fifth consecutive year, I AM ALS will transform the National Mall in Washington, D.C., into a sea of 6,000 flags. Each flag represents a life—honoring those we love, memorializing those we’ve lost, and demanding the urgent action our community deserves.

Every single flag will bear the name of someone living with ALS, a gene carrier, or a loved one who has passed from ALS.

To add your or your loved one’s name to a flag, please fill out this form.

Deadline to submit: April 1, 2026.

5th Annual I AM ALS Community Gathering & Awareness is on May 6 – 9, 2026. Details to follow.

National Mall Flag Submissions 2026 - I AM ALS - ALS is Relentless. So Are We! For the fifth consecutive year, I AM ALS will transform the National Mall in Washington, D.C., into a sea of 6,000 flags. Each flag represents a life—honori ...

It’s never a bad time to lobby for more ALS research funding. 💰

At any given time, 31,000 people in the USA are living with ALS. Their lives matter — and the people who love them matter too.

“Live now, right now in the present.

Out of pure survival, I am forced to stay in
the present. But I don’t wanna be anywhere else.

The past contains regrets. The future remains unknown. So you have to live now.

The present is all you have. Treasure it.
Cherish every moment.”

Eric Dane’s brave fight with ALS showed us the human cost of this disease — and how one voice can move a mountain. In the short time he spoke out, Eric brought visibility, compassion, and momentum to ALS research and support. Your courage changed the conversation and inspired so many. Rest in peace, Eric. We’re still down here fighting for a cure.

I ❤️ Someone with ALS

The stories you’ll read in this book are stories about life. The words are from those living with ALS, their loved ones, caregivers and others working in the ALS community throughout North America. There are happy stories, sad stories, stories sharing frustrations and stories trying to unwind the twisted threads of grief.

ALS, amyotrophic lateral sclerosis, is a progressive neurodegenerative disease with few effective treatments and no cure. All proceeds from the sale of this book will go to the ALS Society of Canada (ALS Canada). Thank you for your support.

Contributors:
Dawn Fougere, Alfred Prevost, Norman Maclsaac, Matt Brown, Shela Storry, Elaine Beyer, Lori Hahnel, Caitlin Hicks, Katrina Byrd, Neil Garvie, Carleen Marie, Jane Ellis,
Isaac Ellis, Emily DiGennaro, Jeremy Hyde, Mark Hannam,
Kathryn Hannam, Tom Glaeser, and Andrew Dundas.

From our dear friend Mark Bedwell

To my friends and acquaintances, friends of friends and those who don't know me yet. My name is Mark Bedwell.

I have been living with ALS for nearly 10 years, longer than they said I would. For most of that time, I’ve fought hard to adapt, adjust, and stay positive. But over this past year, ALS has shifted into what feels like hyperdrive.

Simple things are no longer simple.

Right now, I’m facing two urgent needs in my home:

• My shower is falling apart and must be completely rebuilt to make it usable, and wheelchair accessible for the future.
• A roof leak has caused water damage, and part of my ceiling is coming apart. This is a safety and health hazard.

These aren’t cosmetic repairs — they are about safety, dignity, and being able to remain in my own home.

Hark-ALS has stepped in to help, and I am incredibly grateful. But we need additional support to make these necessary changes possible.

If you are able, I am asking you to consider making a donation and share this message — and if you can’t, sharing this post would mean very much as well.

ALS changes many things, but it does not take away gratitude. Or love.

And yes… I did try to dress up for you — how do you like the new bowtie?

Thank you for reading, for caring, and for standing with me.

With love,
Mark

Hark-ALS is a recognized 501c3 charitable organization. All donations are tax deductible. If you prefer to mail a check, please send it to: Hark 5 Pirozzi Lane Hillsborough, NJ 08844. Please consider adding “Mark B” to the memo line.

To learn more about Hark-ALS, please visit www.hark-als.org.

If your employer does match donations, please send your donation with Hark's tax id: 45-2768674.

Donate Now | Help Mark Battle ALS by Hark-ALS To my friends and acquaintances, friends of friends and those who don't know me yet. My name is Mark Bedwell.I have been living with ALS for nearly 10 years, longer ...

🏠✨ **HOME EMERGENCY SUPPLIES** ❄️

🌪️ **WINTER STORM PREP** 🌨️

Make sure to have at least **3 days** worth of non-perishable food and **1 gallon** of water per person per day. Don’t forget a backup heat source like a generator, wood stove, or an indoor-rated space heater. Since power outages are common, it’s essential to stock up on reliable flashlights and batteries.

Ensure you have a first-aid kit equipped with necessary prescriptions and emergency medical supplies. Staying warm without power can be challenging, so layer up with extra blankets and warm clothing. Finally, double-check that your smoke and carbon monoxide detectors are working properly! ✅