HD-CARE

HD-CARE

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HD-CARE is a UC Irvine all volunteer group supporting Huntington's disease research & patient care Please take a look at “A Year In Review” under “Events”.

Our inspiration has been driven by the compassion that UCI researchers have demonstrated. This, in turn, has motivated our families with courage to continue advocating for an HD treatment and one day to end the devastation of Huntington’s disease. HD CARE funded several preclinical studies in the Thompson lab to evaluate ways to slow or delay disease in stem cell and other models of the disease. T

04/09/2026

You are invited to join us for our Spring Symposium Saturday, April 25, 2026 from 8:30am - 2 pm, in-person only at the UCI Sue & Bill Gross Stem Cell Research Center.

Registration: Registration is required. Please register today to secure your spot and feel free to share this invitation with your colleagues and friends who might be interested.

To register, please visit tinyurl.com/2026HDsymposium

We look forward to your participation in this informative event.
Event details provided on the attached flyer!

Melody Bandley,
President HD-CARE

Photos from HD-CARE's post 11/25/2025

The 2nd annual Portillo Children's Memorial Pickelball tournament was a fun day of bringing together research scientists, HD clinic Physicians and Pickelball participants to raise funds research at the UCI Thompson lab and UCI HD Clinic. Thank you EMST150, Frances Saldana, Sports Basement , OCCT: Orange County Children's Theatre, Yorba linda woman's Club and Leslie Frias for sponsoring and prize donations.

Photos from HD-CARE's post 11/18/2025

Winners of the Beginner Portillo Children's 2nd annual Pickellball tournament. Thank you Starbucks South Coast Plaza for the prize gifts of coffee & tumblers!

11/17/2025

The top 4 teams for the Intermediate 2nd Annual Portillo Children's Memorial Pickleball tournament. Thank you Sports Basement for the prize donations!

Photos from HD-CARE's post 10/25/2025

Come join us and win great prizes:
Prizes will be awarded to the top two teams in each bracket. Prizes include:

Newport Beach Duffy Harbor Cruise for 12 people;
Orange County Children's Theater tickets and gift basket,

Joola Pickleball Paddle Steffi Graf Edge &.Carryall Bag; Pack of 12 Pickleballs; Gift Certificate to Sports Basement & more!

Any level of player is welcome to join as we will have multiple brackets. Teams are guaranteed 4 games. We will provide snacks and refreshments.

There are 18 team slots available, so sign up today!

Register here: https://tinyurl.com/HDCAREPICKLEBALL

When: Saturday, November 8, 2025, 12:00 - 4:00 p.m.

Where: Fountain Valley Tennis & Pickleball Center, 16400 Brookhurst St., Fountain Valley, CA

Please reach out to Joey Wong at [email protected] if you have any questions.

See you on the courts!

Melody Bandley
President, UCI HD-CARE

Photos from HD-CARE's post 05/03/2025

May is . Since 2012 HD-CARE has been supporting research led by Dr. Leslie Thompson at UCI and the UCI HD Clinic. HD-CARE was cofounded by Frances Saldana who lost her three beautiful Children to Huntington's disease.

Press Releases | Investors & Media 04/26/2025

uniQure Announces FDA Breakthrough Therapy Designation Granted to AMT-130 for the Treatment of Huntington’s Disease

Press Releases | Investors & Media Reimagining the future of healthcare through the power of gene therapy.

03/17/2025

On February 19, Dr. Sarah Tabrizi from University of College London visited the UC Irvine campus and gave a comprehensive talk on current Huntington's disease clinical trials. What an honor! We are beyond grateful to bring together this Southern California HD community. Thank you to HDSA Orange County Chapter as well for hosting the event with us!

01/08/2025

HD-CARE & HDSA are excited to host a guest lecture featuring world renowned HD researcher and clinician Dr. Sarah Tabrizi at the UCI Sue & Bill Gross Stem Cell Research Center on February 19th, 2025 from 4pm - 5:30pm.

Join us for the lecture followed by a reception.
To Register, go to https://shorturl.at/Yj8uZ or scan the QR code on the flyer.

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2644 Biological Sciences III
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