Immune Deficiency Foundation

Chronic illness affects more than your body—it impacts your mental wellbeing too. The uncertainty of unexplained symptoms can be exhausting. Knowledge is your strongest medicine. When you understand your symptoms, you become your best health advocate. Start your wellness journey here. https://bit.ly/4blrKZK.

We're closed today, Monday, May 25, in honor of Memorial Day. We'll be back tomorrow, Tuesday, May 26!

Learn the importance of seeing a rheumatologist to determine if you have autoimmunity along with your primary immunodeficiency (PI) diagnosis during a presentation by Dr. Daniella Schwartz at the Immune Deficiency Foundation's 2026 National Conference, June 25-27, in San Antonio, Texas. https://bit.ly/3QRDQmQ

Rheumatologist to discuss autoimmunity at National Conference | Immune Deficiency Foundation Dr. Daniella Schwartz will discuss immune dysregulation in people with primary immunodeficiency (PI), including autoimmunity and autoinflammation, and the importance of seeing a rheumatologist.

Walk & Community Days 2026 is officially here! Registration is now open, and this year's walk cities are Milwaukee, Philadelphia, Boston, Seattle, Tampa, San Antonio, and a virtual Coast to Coast event. Make a difference with every step and sign up today: https://bit.ly/3Pe1mde

Have you read the Spring 2026 ADVOCATE newsletter yet?🤔 There's something for everyone!

• What the MIRACLE study hopes to learn about fertility, pregnancy, & PI.
• A Kids Korner explainer on Ig replacement therapy.
• How a family supports their son with ataxia-telangiectasia.

Check it out: https://bit.ly/42xIby0.

Spring 2026 IDF ADVOCATE newsletter | Immune Deficiency Foundation This edition of the IDF ADVOCATE features articles on a Wiskott-Aldrich carrier study, appealing health insurance denials, and state advocacy priorities.

Many people with primary immunodeficiency (and other conditions) rely on plasma for lifesaving treatment. Learn more about how plasma saves lives!

Thanks to the efforts of our Advocacy Day participants 🙌🏽, & joined & to sponsor H.R. 8528, the PI Post Acute Access Act 🎉 It addresses barriers to receiving immunoglobulin replacement therapy in skilled nursing facilities: https://bit.ly/42xDzId

Protecting access to immunoglobulin therapy | Immune Deficiency Foundation IDF advocates with policymakers and payers for insurance coverage of immunoglobulin (Ig) replacement therapy for those with PI, including access to specific Ig products, modes of administration, and sites of care.

Alex Olive, diagnosed with ataxia-telangiectasia (A-T), a primary immunodeficiency (PI) and neurodegenerative condition that requires him to use a wheelchair, is an outdoor enthusiast who has hiked with his family through Canadian mountains and the Grand Canyon. https://bit.ly/4nqiHwe

Teen with A-T explores passion for adventure | Immune Deficiency Foundation Alex Olive, who lives with ataxia-telangiectasia (A-T), a neurodegenerative condition that causes loss of muscle control and primary immunodeficiency (PI), enjoys traveling to new places and outdoor activities.