Osteogenesis Imperfecta Foundation

Share Your Experience in the Menopause & OI Survey!

This project is part of the OIF Adult Health Initiative and is being conducted through The Global Adult OI Initiative, an international collaboration of OI clinicians, researchers, and patient advocacy partners, including contributors from Osteogenesis Imperfecta Federation Europe (OIFE) and members of the OIF Medical Advisory Council. The survey was developed to better understand how menopause may impact women with OI—including symptoms, bone health, daily life, and access to care. Your input will help guide future research, resources, and care recommendations.

This survey is in English and open to women age 35+ with OI living anywhere in the world. Take the survey at https://www.surveymonkey.com/r/OIMenopause

Calling all performers! Are you ready to be a STAR?

Do you sing, dance, play an instrument, tell jokes, perform magic, or have another special talent you’d like to share? We encourage attendees of all ages to take the stage and showcase their talents by signing up for the 2026 OIF National Conference Talent Show.

Sign up today at www.oif.org/conference2026 under the Talent Show section.

Thank you to our Talent Show Sponsor, Children's Nebraska.

The June issue of the OIF E-Newsletter is here! Read about the Updates from the OIF, OIF National Conference, upcoming events, OI research news, and more at https://mailchi.mp/oif/june2026.

Sign up for the National Unbreakable Spirit® Walk-N-Wheel and raise at least $25 to receive an event T-shirt!

To guarantee your T-shirt, please submit your size selection by June 15. We encourage everyone to register, fundraise, and join us as we celebrate the strength the OI community.
Thank you for your support, and we look forward to seeing you at the Walk-N-Wheel!

Visit www.givebutter.com/unbreakablespiritwalknwheel2026 to get started today.

This year's Walk-N-Wheel has raised more than $20,000 so far! With 25 teams already registered, we're blown away by everyone who has joined in the fundraising efforts - but we still have a long way to go. Register today and start building your team.

Together, we are unbreakable! Head to www.givebutter.com/unbreakablespiritwalknwheel2026 to get started today.

TONIGHT!

Join the OIF as we discuss the National Conference program via Zoom tonight at 7:30PM ET. As the final call of the OIF National Conference Series, this call provides an opportunity to have any last-minute questions answered by veteran conference goers as well as make connections with this year's attendees prior to the big event.

Head to www.oif.org/confcall5 to register to attend!

Medical Consultation Day during OIF National Conference offers families and adults with OI the opportunity to have a face-to-face meeting with a physician or physical therapist who has extensive experience with OI.

With medical consultants from a variety of specialized fields, it is the chance to get questions answered, to have a test or diagnostic letter explained, or to get a second opinion about a treatment. Appointments are FREE of charge and 20 minutes each (conversations only).

Adults and parents must be registered for the National Conference by July 1st, 2026 to receive a priority appointment. To request an appointment, make sure fill out the form found at www.oif.org/conference2026.

Thank you to our Medical Consultations Sponsor, Children's Brittle Bone Foundation.

Did you know that the OI Foundation’s online Information Library includes medically verified information about OI, video resources, toolkits and factsheets? Visit the OIF's online Information Center at https://oif.org/oif-information-library