Fore Hadley Foundation

🩷 Those 👀’s 🩷

One of the newest additions to the Fore Hadley family, sweetest Lucia was born May 1st (along with her twin) and is on the mend in St. Pete. Sending our love and best wishes from all of us Fore Hadley Foundation to the Colon Family

REMINDER - the application window for our 2026 Fore Hope Scholarship grants closes this Saturday, May 18th - please be sure to get all your materials in ASAP.

We already have some incredible applicants and are looking forward to supporting some incredible people within our community!

Link to download application and apply -> https://www.forehadley.com/forehopescholarship

This research update feels different, but after 5 years of supporting ‘s CDH genetic research, we are thrilled to share their findings with you which were recently published in the American Journal of Medical Genetics! Brief summary below, but the entire paper can be downloaded at the link in our bio!

A newly published study analyzing over 500 patients found that genetic factors may play a role in up to 61% of congenital diaphragmatic hernia (CDH) cases—including many previously considered “isolated.” This research highlights the complexity of CDH and the importance of continued investment in genetic discovery and innovation.

At the Fore Hadley Foundation, this is exactly why we fund research—to better understand CDH, improve outcomes, and ultimately bring hope to families facing it every day.

We’re so incredibly encouraged by the progress—and are doubling down our investment to further move the needle!!

🚨🚨 MASSIVE News in the World of Genetic CDH Research via our friends Children's Hospital of Philadelphia 🚨🚨

We're so excited to share this research paper with our community, over 5 years ago Fore Hadley Foundation started funding this incredible research at CHOP, and in March 2026, they published the paper found in the link below in the American Journal of Medical Genetics.

To sum up, their newly published study analyzing over 500 patients found that genetic factors may play a role in up to 61% of congenital diaphragmatic hernia (CDH) cases—including many previously considered “isolated.” This research highlights the complexity of CDH and the importance of continued investment in genetic discovery and innovation.

This is exactly why we fund research—to better understand CDH, improve outcomes, and ultimately bring hope to families facing it every day.

We’re so incredibly encouraged by the progress—and are planning to double down our investment to help further move the needle!!

Link to more detailed executive summary and the entire paper here -> https://www.forehadley.com/chop-jop

Fore Hadley Foundation

What a difference a year makes in the life of a CDH fighter - never give in, never give up! Our man Gus continues to inspire us, and is keeping his parents on their toes crawling all over the house ❤️

We're excited to open the application window for 2026 Fore Hope It's one of our favorite times of the year - scholarship season!! The application window for scholarship applications for survivors and direct family members of kiddos is now open! To learn more about the requirements and to download the application please visit the link below. We'll be accepting applications until May 18, 2026.

Link to apply -> https://www.forehadley.com/forehopescholarship

Best of luck to all of our applicants, we can't wait to learn more about your journeys and plans for the future!

Fore Hadley Foundation | Congenital Diaphragmatic Hernia (CDH) Support and Research | CDH Scholarship. Congenital Diaphragmatic Hernia Awwareness. Interested in applying for a Fore Hadley Scholarship? This is the place! Empowering the next generation of CDH leaders with HOPE.

🚨 🚨 The application window for our 2026 Fore Hope Scholarships opens Wednesday, April 1. Please visit the link in our bio to get information on requirements and submission process, and download the application when it’s available April 1. Please share with your CDH community!🚨🚨

Fore Hadley Foundation | Congenital Diaphragmatic Hernia (CDH) Support and Research | CDH Scholarship. Congenital Diaphragmatic Hernia Awwareness. Interested in applying for a Fore Hadley Scholarship? This is the place! Empowering the next generation of CDH leaders with HOPE.

Cincinnati Born and Bred 📍
Severe CDH Repair Day 3 ✅
Two rounds of ECMO ✅
Ditched the NICU after 62 Days ✅
Taking down full feeds on her own ✅

Go, Scottie, Go!! 💪

Link in bio ⬆️ ❤️

“Even when the battles are hard, I continue to push forward, determined to overcome any obstacle in the way of my goals. I am the One Lung Wonder.”

Let Brooke’s inspirational words carry you into a Happy, Healthy, and Prosperous 2026! A 2025 Fore Hope Scholarship winner, we’re certain she’ll be screaming ROLL TIDE this week!

Link to Brooke’s story in our bio

Fore Hadley Foundation | Congenital Diaphragmatic Hernia (CDH) Support and Research | CDH Charity Scholarships Read Autumn's story - CDH Survivor and future Pediatric Nurse!

One of our favorite support programs every year, Holiday care packages went in the mail today to CDH families in NICUs all over the country! This little elf has been busy…and also wanted to show off this scar 🥰

Thank you to all our donors who make this program possible, it is so impactful for families bedside with kiddos during the Holiday season! 🎅🏻 ❄️☃️