Texas Central Bleeding Disorders

For far too long, women and girls with bleeding disorders have faced delayed diagnoses and barriers to care. Now, the work that our advocates and allies in Congress have paid off.

The FED UP with Bleeding Disorders Act aims to advance research, awareness, provider education, and equitable access to care for women and girls with bleeding disorders.

To everyone who has fought for this, THANK YOU! This is an important first step in changing the landscape for diagnosis & treatment for women and girls. Representative Julie Johnson Joe Wilson

Read more here: https://bit.ly/4nQ6SPS

If you are attending the Texas Bleeding Disorders Conference in June, you won't want to miss out on pre-ordering your TBDC 2026 T-Shirt! Deadline to order is MAY 31ST!
Use this link to order now or scan the QR Code: https://www.lonestarbleedingdisorders.org/lsbdf-store/p/tbdc-2026-conference-t-shirt

Turn the volume up, we’re bringing the energy.

March 28 is all about conversation, connection, and live music as NBDF goes live for a one-of-a-kind national event. From powerful community stories to expert insights and live performances, this is your night to tune in and feel the impact.

🔗 Learn more at: https://bit.ly/46wBui2

Don't forget to register for the 2026 Texas Bleeding Disorders Conference! Deadline to Register for TBDC is May 3rd at Midnight!!!

There will be new programming and activities, and as always, fun with your bleeding disorders family! Mark your calendars and join us at the JW Marriott Austin, June 12-14, 2026! Use this link to register: https://cvent.me/lqePlv

Today, along with Lone Star Bleeding Disorders, we are testifying at the Texas Health and Human Services Drug Utilization Review Board to ensure all hemophilia drugs remain on the Medicaid PDL in Texas!