Epilepsy Association

"The wound is a reminder of the love." Delaney Kilbane's mother shares how she's learned to honor her 8-year-old daughter's legacy — not by moving on, but by living the way Delaney did. Her story will change how you think about kindness: https://www.wkyc.com/article/news/community/heartstrings/avon-lake-delaney-epilepsy-live-like-foundation-saint-joseph-school-chalk-the-walk/95-82001b73-f2aa-4a4e-a3fc-72ccb5ade81e?utm_medium=social&utm_source=facebook_WKYC_Channel_3_-_Cleveland

Outrace Epilepsy! team update: Luke's Troops leads in both fundraising and number of members with $2,550 and 86 people! That's a lot of donors, runners, and walkers, who care a whole lot about people with epilepsy in our community!

We have so many amazing teams every year, and we are beyond grateful for the effort you all put into raising awareness and raising donations that allow us to provide free services to people struggling because of epilepsy.

Just how incredible is our epilepsy community? So far, we have a small army of 327 people signed up, and 110 people have donated to raise a combined $10,300! Just WOW 💜

You can Outrace Epilepsy with us too! Register or donate here: https://runsignup.com/outraceepilepsy

Are you registered for our next free webinar? Anny Reyes, PhD is a neuropsychologist from Cleveland Clinic who will be talking to us all about brain health for people with epilepsy. We'll also learn what people with epilepsy and their caregivers can do to improve their own brain health.

After the presentation, the speaker will answer questions from the audience.

Sign up for free here: http://weblink.donorperfect.com/2026EAseminars

Seizure warnings before movies or video games have been so common that some people may think that's the biggest cause of seizures. In reality, only about 3% of people with epilepsy have seizures caused by flashing lights.

More likely causes include missing medication, sleep deprivation, stress, alcohol or drugs, and hormonal changes or pregnancy in women. Some seizures are unprovoked, meaning there is no clear reason they occurred.

Epilepsy isn't one-size-fits-all, but there's still a lot of people who have been misled by stereotypes or media to think epilepsy is just someone who shakes when they see flashing lights.

***Update***Unsure what happened- Please share again.

💜 A Little About Us… and a Chance to Make a Difference. 💜

It’s hard to believe we’ve now owned Fat AXXEs for four months! During that time, so many of you have become more than customers—you’ve become friends. Many of you have had the chance to meet our beautiful little girl, Angelina, while others haven’t yet.

This Saturday is a chance to support an amazing cause and maybe even meet the little girl who inspires everything we’re doing.

Angelina lives with Lennox-Gastaut Syndrome, a rare and severe form of epilepsy. Every day she shows us what true strength looks like, and every year my wife participates in the Out Race Epilepsy walk to help raise money for the Epilepsy Association of Northeast Ohio.

One thing everyone looks forward to each year? Her homemade treats! 🍪

If you’ve had them before, you already know why people rave about them. If you haven’t, now’s your chance! Every purchase helps support families living with epilepsy while giving you some seriously incredible homemade baked goods.

🎯 Angelina’s Army Co****le Classic

This Saturday – Starting at 5:00 PM

We’ll also be turning our weekly co****le tournament into a fundraiser!

Instead of increasing the entry fee, we’re simply asking players to consider making a $5 donation when they register.

💜 Regular entry remains $10 if that’s what you’re comfortable with.
💜 A $5 donation is appreciated and will be added directly to the fundraiser.
💜 Want to give more? Every single dollar is welcome.

100% of every donation will go directly to the Epilepsy Association of Northeast Ohio.

Saturday Schedule

🎯 5:00 PM – Singles Tournament (Minimum 3 boards, possibly 4!)
🎯 BYOP – 15 PPR Team Cap
🎯 Blind Draw – Immediately following if time allows

Whether you’ve known us for years, met us in the last few months, or have never met Angelina, we’d love to see you.

Come throw some bags, grab some amazing homemade treats, enjoy great food and cold drinks, and spend the day with us for a cause that’s incredibly close to our hearts.

Every cookie purchased.
Every bag thrown.
Every donation made.

Makes a difference for families living with epilepsy.

From the bottom of our hearts, thank you for supporting Angelina’s Army and helping us make a difference. 💜

Are you an adult with epilepsy? Looking for a place to talk to others who know what you're going through? Learn how to manage your mental and physical symptoms? Join our free online Zoom SMART program!

Starting Sept. 9, the group meets every Wednesday from 6-7pm EST on Zoom or via phone, and is led by a trained nurse and another trained educator who also has epilepsy.

Email [email protected] or call 216-579-1330 to sign up for free or learn more!

Less than a month until hundreds of epilepsy advocates run, walk, or even just spectate at Outrace Epilepsy! at the Cleveland Metroparks Zoo! Be there on Sunday, August 16!

There's something for everyone! Medals for our competitive runners, a scavenger hunt for kids, free drawstring bags and participation buttons for everyone!

Plus, kids 5 & under get in free, and all Outrace Epilepsy! participants get to stay at the zoo after the event ends! Admission is included when you sign up!

Register here: https://runsignup.com/Race/Register/?raceId=75450

Help us bring a feature-length movie about epilepsy to Cleveland! If we get enough votes, an early screening and director Q&A will be held in our city! Voting is free: https://tally.so/r/Bzp12e

Under the Lights is an independent film about a teenage boy with epilepsy who wants nothing more than to go to prom. Finally, a movie about the personality, dreams, feelings, and perseverance of someone with epilepsy. Not just a brief scene where someone has a seizure and everyone gets stressed out, like we usually see on TV and in movies.

Do you know someone who works in a Cleveland independent theater? Contact us at [email protected], we need to find a host for this important film!

Thank you to everyone who voted! The animal on this year's collectible participation button will be an elephant!

Elephants are empathetic animals that care deeply about others in their herd. They've actually been seen using their trunks to comfort other elephants that are sick or upset! We think that's pretty fitting for a group of several hundred people coming together to support people with epilepsy.

The participation button will be free to everyone after the races, whether you ran the 10K, walked the mile, or just cheered on the members of your herd.

Register here: https://runsignup.com/Race/Register/?raceId=75450