The LAM Foundation

🔎Understanding Pleural Effusions (Chylothorax)

Did you know that pleural effusions can occur in individuals with Lymphangioleiomyomatosis (LAM)? This condition involves fluid (Chyle) leaking into the chest cavity, which can lead to symptoms like shortness of breath and discomfort. These changes are often visible on an x-ray.

Let’s raise awareness together! By sharing this post, you educate others about the signs and symptoms of LAM. Every share counts towards our mission to support those affected by this rare disease!

Compassion. Expertise. Commitment. Dr. Daniel Dilling has spent decades helping people with rare lung disease navigate uncertainty and find a path forward. Discover how he's making a difference in the lives of those living with LAM.

https://www.thelamfoundation.org/leading-with-compassion-dr-daniel-dillings-commitment-to-the-lam-community/

🌍 Did You Know? There’s a LAM Treatment Guidelines graphic available in more than 25 languages.

The American Thoracic Society (ATS) and the Japanese Respiratory Society (JRS), alongside a committee of LAM experts, have developed Clinical Practice Guidelines to enhance the diagnosis and treatment of lymphangioleiomyomatosis (LAM). The guidelines graphics are accessible in languages such as Portuguese, French, Spanish, Swedish, Hindi, Telugu, and many more thanks to CHEST and our partners in the Worldwide LAM Patient Coalition.

Download the Graphic: Click the link below to access this essential resource and help spread awareness about LAM treatment!
https://www.thelamfoundation.org/find-support/patient-and-family-resources/

Race day is finally here!

Over 12 rides, the Easy Breathers have raised more than $1 million to move us closer to better treatments and ultimately a cure for LAM. This year, they're aiming to raise $30,000.

Can you help them cross the finish line?
https://charity.pledgeit.org/MillionDollarBikeRide/teams/

Be sure to cheer on the team in the comments!

The LAM Foundation continues to be recognized as a global leader in health research. Recently, more than 100 professionals from across the pulmonary research community, along with 14 patient representatives, gathered at the French Embassy in Washington, D.C., for the inaugural Pulmonary Clinical Trials (PCT) Workshop.

PCT’s mission is to foster collaboration, spark innovation, and enhance clinical trial design to better serve the global pulmonary medicine community. The LAM community was well represented, with LAM Clinic Directors Dr. Vincent Cottin (co-chair), Dr. Frank McCormack, Dr. Nishant Gupta, Dr. MeiLan Han, Dr. Kevin Flaherty, Dr. Cormac McCarthy, and Dr. Abdellatif Tazi serving as speakers and participants.

We were also proud to have our Director of Patient Services, Cindy Beasley, represent the LAM community by sharing the patient perspective and highlighting the importance of incorporating the patient voice into clinical research.

Team Easy Breathers is over half way to their goal of raising $30,000 to fuel better treatments and ultimately a cure for LAM. The The Million Dollar Bike Ride for Orphan Disease Research is just a few days away. Can you help them cross the finish line?

Donate Now: https://ow.ly/XCQC50Z9REE

While the average age at diagnosis for lymphangioleiomyomatosis (LAM) is 35, the disease can affect people of all ages, from teenagers to older adults.

Why awareness matters: Understanding LAM is crucial for supporting those impacted by this condition. By raising awareness, we can help ensure timely diagnosis and better care for everyone affected.

Join us in spreading the word: Share this post to help educate others about LAM and make a difference in the lives of those living with this disease!

Beth Hull Daugherity spent 17 years seeking answers before being diagnosed with LAM. That diagnosis opened the door to managing lung collapses, hormone suppression, and treatment with sirolimus, the only FDA-approved therapy for LAM.

For those with rare or chronic conditions, an accurate diagnosis can be life-changing, bringing clarity, validation, and better care.

The next COPD Foundation OxyTalk is tomorrow, Wednesday, June 10, 4:00 pm - 5:00 pm ET

Join the oxygen community the second Wednesday of every month for this virtual coffee hour! OxyTalk is open to anyone on supplemental oxygen. It’s an opportunity to ask questions of a respiratory therapist and hear from others on supplemental oxygen. Please feel free to send any questions ahead of time to [email protected], or just stop by to enjoy some time together.

Register: https://us06web.zoom.us/meeting/register/tZEvf-uhpjoqG9fhEov5dwfjSS__bf6BGfj0?fbclid=IwY2xjawLOZu9leHRuA2FlbQIxMABicmlkETF5RE1CTXE3ZjZFWVVrVVVJAR51K5N5vmvSJJZ20LaPRNm5skq7QX_8xqpamq9-iVWLPPgw1jw-gjto82grFA_aem_PEuRfTsWnun8k_aXBDx6mg&mc_cid=a5f441ae64&mc_eid=10d95f45e0 #/registration

Welcome! You are invited to join a meeting: COPD Foundation OxyTalk. After registering, you will receive a confirmation email about joining the meeting. Join us for our next oxygen community virtual coffee hour! Please feel free to send any questions ahead of time to [email protected], or just stop by to enjoy some time together!