My Name Is PLS

My Name Is PLS

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My Name Is PLS and My Brother Is ALS , written by Deborah Revels, tells her story of having PLS.

Sincerely Deborah 12/19/2024

Christmas can be hard for people struggling with disabling diseases. Read Deborah's story. Then purchase a book for yourself or give a gift that can make a difference for someone in 2025!
Copy and share with your friends too.

Sincerely Deborah Welcome to “Sincerely Deborah”. Here you will we find books written by Author Deborah Revels as she shares her journey and tips of PLS

Sincerely Deborah 06/29/2024

Do you know anyone with PLS, ALS, or any other disabling disease? If so, please read and then share this post.

Sincerely Deborah Welcome to “Sincerely Deborah”. Here you will we find books written by Author Deborah Revels as she shares her journey and tips of PLS

Sincerely Deborah 06/26/2024

A Neghborly Note

You've heard of ALS disease (aka Lou Gehrig Disease). The ice bucket challenge donations funded to find a cure for ALS.

Well, there is also PLS disease (aka Primary Lateral Sclerosis). This is a rare disease that is very similar to ALS.

Let's help educate and bring awareness to PLS. My neighbor has been diagnosed with PLS and wrote two books, introducing and telling how to live with PLS. Let's support this local author and help with purchasing and educating yourself and others.
See the links below:
https://sincerelydeborah.bigcartel.com/
Email: [email protected]

Sincerely Deborah Welcome to “Sincerely Deborah”. Here you will we find books written by Author Deborah Revels as she shares her journey and tips of PLS

05/14/2024

I am excited to let you know that Deborah Revels' second book has released. Her new book focuses on living with PLS (or any chronic illness) and learning to manage various aspects of your changing life (physical, everyday life, spiritual, emotional). If you would like information on how to purchase the book, please contact Deborah: [email protected]

10/05/2023

Author Deborah Revels is ready to open another Q and A post—this time for Chapters 2 and 3 of her book, My Name Is PLS. If you haven’t purchased the book, please consider doing so and help bring awareness to PLS.

Read the excerpts below. What are your questions? Feel free to post them here and/or reach out to Deborah at [email protected].
Blessings to you!

Chapter 2 “Before I Got My Name” Excerpt

One late December day in 2004 in the early morning hours, I was lying in bed with ‘my husband’. I felt sick, hot, and it was hard to breathe. I went downstairs to the family room because it’s always cooler there. I laid on the couch. There was a pain inside my right chest. I felt like this for days. I finally went to my primary care provider. After she examined me, she wanted me to get some X-rays. Then came the CT, followed by an MRI. She wanted me to see a specialist......
What followed for Deborah was as story of emotional highs and lows that led to multiple tests, a diagnosis of cancer, and surgery. Here’s more of her story:.....
After the surgery (March 2005), the doctor came to my room and said to ‘my husband’ and me, “I have good news. I have bad news. And I have better news. Good news: You don’t have cancer. Bad news: You have histoplasmosis. Better news: You can’t get it again once you’ve had ‘histo.’ But you have to see a specialist.”

Chapter 3 “Post-Operation” Excerpt

More years. At one point, my primary care provider diagnosed me with cervical spondylotic myelopathy (CSM).

Then more years. I wrote my primary care provider a letter about how challenging and worse my day-to-day living was becoming. In her office, she asked, “Would you like to see a neurologist? I can find one for you and write a referral.” I said yes.

After many tests, procedures, blood work, etc., the neurologist began telling me about my condition. I felt like I’d finally found a doctor and his team who understood me. They were diving in headfirst. They hit the nail right on the head. They told me what I was to look further to and what I was going to start experiencing. They were not wrong.

The year was 2012. I was finally able to put a name to who I have become. MY NAME IS ... PLS.

09/06/2023

From author Deborah Revels:
"All the chapters in my book are very significant to me. I would like to open up a Question and Answer post--one chapter at a time. Any topic or discussion is welcome. What would you like to ask or know? It's up for discussion. If you have not purchased the book, please consider doing so and help bring awareness to PLS."
What is your Q & A? Please feel free to post it here and/or reach out to Deborah at:
[email protected]
First chapter for Q & A...AMA
Chapter 1: An Author's Introduction
Includes: Embarking on My New Journey, Little Known Facts (About Me), Gifts, and more!

07/13/2023

Independence Day was celebrated last week. Consider your own independence and step out in faith. Sign up for a PLS clinical trial study. Or if you know anyone who has PLS, try to convince them to sign up. Remember, no pressure."

07/04/2023

From author Deborah Revels:
"Happy Fourth. of July!
Independence Day
Let freedom rule

06/15/2023

From author Deborah Revels: Don't forget these upcoming special days:
June 18, 2023--
Happy Father's Day!
Live. Love. Laugh.
For those fathers in Heaven, warm wishes.
June 19, 2023--
Juneteenth National Independence Day!
Emancipation,
Freedom, Jubilee Day!
Live. Laugh. Love.

06/12/2023

This week's thoughts from author Deborah Revels:
"All the chapters in my book are very significant to me. I would like to open this as a Q&A post. (I may be one of the first authors to do so.)
One chapter at a time. Any topic or discussion. What would you like to ask or know? It's up for discussion. If you have not purchased the book, please consider doing so and help bring awareness to PLS. What is your question? Please feel free to post and/or reach out to me at:
[email protected]. First chapter is coming." :-)

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