IIH Champ Foundation
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My name is Tanya Ward-CEO/Founder of IIH Champ Foundation. I am living with IIH💙💚
A day in my mind living with IIH💙💚
Full episode available on Spotify
Sometimes your story can help someone else💙💚
If you’re living with IIH I would love to hear your story.
I’ve been living with IIH since 2017!!!
05/18/2026
Celebrating our 3 years anniversary💙💚
3 years ago, IIH Champ Foundation started with pain, purpose, and a vision to make sure nobody facing Idiopathic Intracranial Hypertension felt alone.
I am Tanya the founder & CEO of the IIH Champ Foundation and I was diagnosed in 2017.
I felt alone and scared and eventually decided to spread awareness because of this rare neurological condition is not talked about enough.
Today, we celebrate 3 years of advocacy, awareness, education, community, and impact.
From surgeries... to hard days... to victories...
to voices being heard...
Thank you to every supporter, patient, volunteer, donor, listener, and person who believed in this mission.
We're just getting started.💙💚
Just a quick Q&A about living with IIH💙💚
04/23/2026
Episode 6!!!!
https://open.spotify.com/show/7xzJAQn9zA97I0sD1xtrGx
Living with an invisible rare condition (IH) has been life altering but I'm ok.
No sympathy needed just awareness.
Some days are better than others but l have learned to live with IIH.
I am grateful for all of the support that I receive.
I'm not 100% health wise but I will continue to show up!
No one fights alone!!!
What if everyday was a flare day living with IIH?
Someone asked this question….
If you’re having a flare day give yourself grace…..
04/08/2026
Episode 5!!!!!!!!
If you’re living with IIH…. I see you💙💚
You are not alone!!!!
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Chicago, IL