Team Mikey

Small update: we don’t have results yet, but Mikey made it through like a champ. He realized mom wasn’t there, reached for his Knuckles stuffy, and ended up napping through most of it.

Unfortunately, based on what was being explained to me and how long everything took, we’ll most likely be leaving with a diagnosis or two. Right now we’re pushing fluids to help flush out all the barium and hoping tomorrow he’ll be able to tolerate food again.

Sitting outside the X-ray room while Mikey is inside alone feels suffocating. All I can see is a plain wooden door, but on the other side of it is my whole world.

And all my mind can do is spiral. Are they being patient with him? Are they listening when he’s uncomfortable? Are they treating him like the medically complex kid he is, or just another chart to get through? Then comes the other fear what if they find something? What if this changes everything again?

It’s strange how a simple door can feel so heavy. You just sit there staring at it, waiting, hoping, trying not to fall apart before it opens again.

Mikey has an appointment in the morning and I’m honestly struggling tonight. Every new appointment feels terrifying new people who don’t know him, don’t know our story, and another possibility of hearing something that could change our lives all over again.

I can’t sleep because I already know tomorrow will be another long day in the hospital. Part of me wants answers, and part of me is terrified of what those answers could be. Just send a little extra love our way because I don’t know if I can handle another diagnosis.

I’m exhausted. Burnt out. Moving, advocating, fighting for care, and constantly battling systems that are supposed to help has taken everything out of me. We’re currently waiting on approval for Mikey’s medical formula something he literally needs to survive and that I can’t just buy over the counter. It’s been a week, and in the meantime I’m rationing his food just trying to make it last.

I’m just really tired tonight.

Some families start their day with coffee and vitamins. We start ours with syringes, pills, and a Mexican Coke Zero. Same thing, basically. 😅

Dont forget to go and Vote for Mikey. You can vote Daily until June 15th!

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Making some new friends today 🤣 he's had a cold, but today sounded worse so we decided to try out the urgant care around the corner from us. As I expected by the way he sounded today he's sick sick. Sounds like possibly pneumonia but they don't do Xrays on minors here so they can't confirm that way. His history is enough for them to prescribe antibiotics. And a different neb treatment than his normal, and hopefully some more steroids than his normal to get this kicked and avoid the ER and children's.

Thank you to whom ever nominated Mikey! He is listed in local celebrity. Wed love a vote buuuuut honestly just go vote for all of your favorites!

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Oil City's Best: Readers' Choice 2026 Casper, Wyoming Community News Stream.

Hi, hello, good morning. 💛

I wanted to pop in and do a little damage control before Mikey’s page gets turned into unnecessary drama.

I’m aware of the posts and conversations happening in Arizona regarding Mikey and his sisters’ biological father. We do not have contact with him, nor are we associated with him in any way. I cannot allow someone else’s reputation or actions to jeopardize the funding, support, and community we’ve worked incredibly hard to build for Mikey.

The facts are already out there, and there’s nothing I can do about that. What I can ask is that everyone remembers this is the page of a 10-year-old little boy. Please keep this space drama free. If anyone feels the need to discuss this further, message me (mom) personally rather than bringing it here. Most importantly, please keep all of this away from Mikey and his sisters.

For those around us and new here, our family is Mama (Shantae), Daddy (Roy), Mikey, and sisters K & E. We’ve been a strong family unit for 6 incredible years. Our home is built on love, support, laughter, bravery, peace, and resilience. We simply do not have room for drama, hate, or anger here.

If you’re here to support Mikey, we appreciate you deeply. Support him in whatever way fills your cup whether that’s prayers, shares, kind words, donations, or simply cheering him on. Just please leave anything negative at the door.

Thank you. 💛

https://gofund.me/0bf49795

Back home we had the luxury of an acessable park. You'd think in such a big state with more resources shoot even a big town compared to home there would be anything. Unfortunately the only "acessable" park here is a joke literally some drums and a table not any actual play. While the back yard and a Tonka truck wasn't the request he's enjoying some sun and finally feeling a little better. ❤️ we can't wait for Sully to run around and take his breaks back here too.

https://gofund.me/0bf49795

$sElizabeth10

Mikey saw his new Nerologist, he's now started seziure med number 3 😭 but we are hopeful this will help his random spells of what we think may be seziures but aren't 100% (he like startles it's so weird) we also did some more gentic testing this time blood related. They had this little green light to make his poke easier plus numbing spray and a buzzy. It's been so hard not having the port, but this was the first draw since that they didn't have to fish in his poor arm. He is still dealing with something respiratory but we don't know what because they only do flu and covid checks not the full respiratory swab like he usually gets. Hes extra sleepy and sounds so gunky but we are making progress with extra vest and albutorol treatments.

Someone canceled his formula/feeding Supply shipments and we dont see GI for another 30 days so I'm a little worried. I'm hoping tomorrow I can get them on thr phone and get his shipments coming again I do have extra I always do buuut if I use all my backup when shipments are delayed or short it really puts more stress on me.

Im hoping he gets to feeling better really soon so we can take an adventure on over to Austin in mid June.

https://gofund.me/0bf49795
Venmo
Cashapp $sElizabeth10