Herscot Center for Tuberous Sclerosis Complex

Listen to Dr. Thiele talk about epilepsy and her new book, Epilepsy for Dummies, on Talk About It with Greg Grunberg!

https://www.youtube.com/watch?v=OEdoGXpCRSY

https://www.youtube.com/watch?v=fIVU5x_QcScerg

S0516: Epilepsy For Dummies - The Podcast Interview - Part II In another inspiring episode of "Talk About It with Greg Grunberg," Greg sits down once again with Dr. Elizabeth Thiele and Lauren Aguirre, co-authors of Epi...

Exciting news! Dr. Thiele and Lauren Seeley Aguirre have spent the last several months writing a book called Epilepsy For Dummies. Barnes & Noble is running a 25% off campaign for members for all pre-orders, including this book. The sale goes through Friday, July 11th. If you would like to pre-order, use the code PREORDER25 at checkout.

Promotion Details:
25% OFF all pre-orders for Barnes & Noble Members
Premium Members get an ADDITIONAL 10% off print book pre-orders
Includes ALL formats: print books, eBooks, and audiobooks
Coupon code: PREORDER25
Anyone can join the free B&N Rewards program instantly with just an email address at barnesandnoble.com/membership

We’re gearing up for the Sunflower Syndrome conference on Sat, July 26 - only 32 days away! Book your tickets now to gain insights from experts, hear the latest updates on the condition, and connect with other families.

Secure your spot: https://because.massgeneral.org/event/2025-sunflower-syndrome-family-symposium/e664277

Join us on Sat, July 26 for an informative and inspiring day dedicated to Sunflower Syndrome. Gain insights from experts, connect with families, and learn about the latest research, treatment, and resources.

Secure your spot: https://because.massgeneral.org/event/2025-sunflower-syndrome-family-symposium/e664277

Hi everyone, Happy TSC Awareness Day! We are thinking of all our patients and their families today. We advocate for TSC awareness today and everyday, and we hope you will too!

The Epilepsy Foundation of New England is hosting a special conference for epilepsy caregivers: A Caregiver’s Journey from Resilience to Resources. Join them on Sunday, May 18th, from 9:00 AM-3:00 PM at the Crowne Plaza in Woburn. This event uplifts and empowers caregivers with practical tools, expert insights, and a supportive community to help navigate the challenges of caregiving with resilience. Attendees will also have the opportunity to participate in two breakout sessions focused on topics of their interest. Don’t miss this chance to connect, learn, and grow alongside others on the caregiving journey.

Considering college and looking for guidance?

THRIVE is your chance to get advice from our experts on navigating college with epilepsy and connect with other college students embarking on this new life chapter. This program provides seniors and their parents with valuable insights, tips for managing epilepsy at university, and resources to help your child transition smoothly into this exciting new chapter.

From managing epilepsy and university to connecting with student accommodations, we're here to help you THRIVE in college 🎓.

For any inquiries or questions about THRIVE email: [email protected].

Join us on February 13 at 8 PM Eastern Time for the first session of the six-part Transitional Webinar series about transitioning to adulthood, presented in collaboration with the TSC Alliance! Elizabeth Thiele will kick off the series with Medical Transition Guidelines and Toolkit, which delves into the transition of medical care from the pediatric to the adult health system and how to use a transition toolkit. Don't miss this webinar to make the move from pediatric to adult care.

The Carol & James Herscot Center for TSC is 5 days away from hosting our virtual conference about TAND (TSC Associated Neuropsychiatric Disorders) on Saturday, October 5th, from 1:00-3:00pm EST. Conference participants will hear our featured speaker: Dr. Robert Doyle, the Herscot Center's Psychiatrist, speak about TAND, along with other members of the Herscot Center who will discuss TAND and current MGH TAND research projects. A question and answer session will follow. We hope you will join us!

Click here to purchase a virtual ticket: https://because.massgeneral.org/event/2024-herscot-center-for-tsc-virtual-conference/e591960

We're 12 days away from hosting our virtual TSC conference on TAND (TSC-Associated Neuropsychiatric Disorders). As part of our count down to Saturday, October 5, we are sharing another fact about TAND.

Did you know? TSC-Associated Neuropsychiatric Disorders (TAND) can have an impact on the quality of sleep that you get.

If you'd like to purchase a virtual ticket, please go to: https://because.massgeneral.org/event/2024-herscot-center-for-tsc-virtual-conference/e591960

On Saturday, October 5, you will hear from the Carol & James Herscot Center for TSC clinical social worker, Leigh Horne-Mebel. Leigh often helps people cope with anxiety, depression, concerns about relationships, and concerns about decision making. She will be sharing information about TSC-Associated Neuropsychiatric Disorders (TAND) from the perspective of a social worker.

To purchase a virtual ticket, go to: https://because.massgeneral.org/event/2024-herscot-center-for-tsc-virtual-conference/e591960

As a nurse, Erin helps offer hope, support, consistency, and a sense of calm in a world where having a child with complex medical needs may be chaotic. She loves the opportunity to create a relationship with patients and families. Every patient is unique, and she learns from each patient she encounters. At this conference, Erin will be speaking on TSC-related research projects occurring at the Carol & James Herscot Center.

To purchase a virtual ticket, go to: https://because.massgeneral.org/event/2024-herscot-center-for-tsc-virtual-conference/e591960