Boston Bleeding Disorders Center

We introduced our Venipuncture Skill Building Initiative and held our first workshop earlier this year and it was a huge success! Maura, our pedi RN, led the workshop and reviewed the importance of learning this skill for self-infusion. Our team and attendees practiced on a dummy arm, built confidence, and even had some great first‑time venipuncture access attempts. We’re already looking forward to hosting our second workshop. If you’re interested in joining, ask your clinical team how to sign up.

May is Mental Health Awareness Month.

Mental Health Awareness Month is a reminder that emotional well-being deserves attention and care just like physical health. In the bleeding disorders community, we see every day how important connection, support, and open conversation can be.

Whether through peer support, clinic social work services, or community organizations, there are many ways to find support and reduce isolation. Checking in on your mental health is part of taking care of yourself and it matters.

💚You don't have to go through it alone. Help is there when you're ready.
🔗Learn more:

Massachusetts Behavioral Health Help Line Massachusetts Behavioral Health Help Line

Reflecting back to World Federation of Hemophilia's , from moderating, to presenting, to connecting and networking with different colleagues, Amanda Stahl had a few takeaways.

🩸Gained a wider international network of psychosocial colleagues to consult, collaborate, and learn from.
🩸World wide equity considerations — considering what care looks like in conflict, displacement, and resource-limited settings.
🩸Appreciation that the psychosocial role is increasingly recognized as being central to comprehensive bleeding disorders care worldwide.

Let’s keep the conversation going and continue pushing this work forward—together.

Every year, The Hemophilia Alliance hosts a meeting for new HTC staff that focuses on understanding the bleeding disorders community and 340B.

Mishon, our financial analyst, attended this year and speaking on his experience, "I really enjoyed the opportunity to learn more about these broader issues, especially around improving communication and understanding how policies and procedures affect our work. It was also great to meet and have meaningful conversations with people from HTCs across the country, sharing challenges we face and learning from one another’s experiences."

This is a great opportunity to network and highlight services that are available through the Hemophilia Alliance.

Introducing our newest team member: Sara Brown, Communications Specialist! Sara is a communications professional with over 10 years of experience in storytelling, digital content, and community-focused work. Sara brings a background in both nonprofit communications and journalism, and enjoys creating clear, engaging content that helps people feel informed and connected. In her downtime, she enjoys attending concerts with her husband, traveling and photography.
Welcome Sara!

Happy National Nurses Week to all of the amazing nurses!

Special shout out to our phenomenal nurses at BBDC! Paula, Natalie, Maura, and Chris - a week is truly not enough to show our appreciation for all that you do. From providing expert clinical care and education, to joining and encouraging our patient community during one of our events, the care, dedication, and compassion never falters. Thank you, thank you, thank you!

Today, April 17th, the bleeding disorders community globally come together to advocate for all inherited bleeding disorders. The first step to receiving treatment and care is a DIAGNOSIS!
To learn more about World Hemophilia Day and how to get involved, visit wfh.org/whd

In a couple of days, Amanda Stahl will be joining many more at the World Federation of Hemophilia's - "I’m really looking forward to the WFH Congress in Kuala Lumpur this April. I’m especially excited to connect with colleagues from around the world and learn how others are supporting patients and families living with bleeding disorders. I’m also honored to be presenting on “Women and Being Heard,” focusing on global disparities in women’s healthcare, and to be part of the ongoing push for greater inclusion of women in healthcare worldwide." -- Amanda Stahl, MSW, LICSW

In a few days, Dr. Connell will be joining many more at the World Federation of Hemophilia's - “I’m looking forward to the World Federation of Hemophilia Congress in Kuala Lumpur as an opportunity to engage with our global community advancing care for inherited bleeding disorders. I support the WFH because it reflects a fundamental principle of medicine: that geography should never determine access to diagnosis or life-saving care. My presentations will focus on improving diagnostic accuracy in von Willebrand disease through multidisciplinary care, and on addressing the unique and often underrecognized challenges of bleeding in women across the lifespan. These conversations are critical to ensuring that progress in our field is both clinically meaningful and globally equitable.” --Nathan Connell, MD, MPH (Associate Director, Boston Bleeding Disorders Center)