National Scleroderma Foundation
A relentless force in finding a cure and improving the lives of people affected by #scleroderma. Information is provided to keep the readers informed.
The National Scleroderma Foundation is a 501(c)(3) nonprofit organization founded in 1998 to advance medical research, promote disease awareness, and provide support and education to people with scleroderma, their families and support networks. Supported by a network of thousands of individuals across the United States, the Foundation helps those living with scleroderma by providing support and education at the same time that it funds peer-reviewed scleroderma research. Since its founding, the Foundation has committed over $30 Million to discover the cause, understand the mechanism, and overcome scleroderma forever. The Foundation is home to the National Scleroderma Conference—the only educational program of its kind and scope in the U.S.—which provides access to leading scleroderma experts and up-to-date information while serving as the central meeting ground for the scleroderma community. In addition, the Foundation's Stepping Out to Cure Scleroderma walks are the country's premier awareness and fundraising events which are organized by the Foundation’s local chapters and take place throughout the year at multiple locations and virtually across the country. The Foundation is led by a dedicated, volunteer Board of Directors that exercises its fiduciary responsibilities, an extraordinary, volunteer Medical & Scientific Advisory Board comprised of world-renowned physicians and scientists, and an exemplary professional staff committed to advancing its mission through the organization's cultural values of care, connection, diversity, integrity, meaningful work, and trust. Disclaimer: The National Scleroderma Foundation in no way endorses any drugs, treatments, clinical trials, or studies reported on our page. Because the manifestations and severity of scleroderma vary among individuals, personalized medical management is essential. Therefore, it is strongly recommended that all drugs and treatments be discussed with the reader’s physician(s) for proper evaluation and treatment.
09/29/2026
🔗: https://scleroderma.org/advocacy-tealtalk
Join us for our next !
Learn how current legislative developments impact the scleroderma community and discover the Foundation’s advocacy priorities.
Whether you’re involved in advocacy or just want to learn more, we hope you’ll join us!
09/26/2026
You won't want to miss this webinar led by the Upper Great Lakes Chapter's Cami Novachek!
Cami will lead a conversation about how people living with scleroderma can move from patient to partner in their healthcare journey through self-advocacy.
Join us October 7 at 2:00 p.m. ET. Register at scleroderma.org/self-advocacy.
09/24/2026
🔗: https://ow.ly/IX3S50ZurzL
Stay connected with the latest in scleroderma news, events, and research! 📬
Sign up for Scleroderma Connections, our weekly e-newsletter, and get updates in your inbox every Friday!
09/23/2026
Whether you’re newly diagnosed or have been part of the scleroderma community for years, you deserve trusted information for every step of the journey. The National Scleroderma Foundation’s Resource Center brings together helpful basics, research updates, and support-focused resources in one place.
Explore resources made for you: scleroderma.org/resources-center
09/22/2026
The first day of fall is here! 🍂
While we welcome the beauty of the season, cooler weather can be a challenge for many in our community.
Remember to layer up, keep warm, and take care of yourself this autumn.
How do you stay active as the temperatures drop? Let us know in the comments! ⬇️
09/20/2026
The HOPE Line is the best way to connect with our team for any questions you might have! 💬
This free service offers information, resources, and support for people living with scleroderma, caregivers, families, and the public.
📞 Call (800) 722-4673 (Mon–Fri, 8:30 am–5 pm ET) or email [email protected].
Our trained team will ensure you get the answers and help you need!
09/19/2026
🔗: https://scleroderma.org/steppingout/
Summer may be winding down, but Stepping Out season isn’t over yet! 👟
Walks are still happening across the country this fall, with upcoming events in Little Rock, St. Louis, Palo Alto and more!
There’s still time to join your local scleroderma community and Step Out with us.
09/18/2026
Register today for our next webinar: https://scleroderma.org/sept23!
Lauren N. Smith, MD, assistant professor of medicine at MedStar Georgetown University Hospital, will lead an important conversation exploring the role of clinical trials in advancing scleroderma research and improving health outcomes within the BIPOC communities.
09/17/2026
Not all symptoms of scleroderma are visible.
Fatigue, pain, and other challenges can impact daily life even if someone “looks fine” on the outside.
By learning the facts, we can better support those living with scleroderma and help spread awareness.
💬 What’s one thing you wish more people understood about living with scleroderma?
Click here to claim your Sponsored Listing.
Category
Website
Address
PO Box 411533
Boston, MA
02241
Opening Hours
| Monday | 8:30am - 5pm |
| Tuesday | 8:30am - 5pm |
| Wednesday | 8:30am - 5pm |
| Thursday | 8:30am - 5pm |
| Friday | 8:30am - 5pm |