National Scleroderma Foundation

🔗: https://ow.ly/Zlho50Z5LWY

You're invited to a special Book Club event! ✨

Join us for a reading of our new children's book and learn how this resource is helping children and families better understand scleroderma.

We look forward to sharing this meaningful story with you!

Today marks the start of Scleroderma Awareness Month! 💙

Throughout June, we celebrate the unwavering courage and hope of the scleroderma community.

Our 2026 theme, Beacons of Hope, shines a light on the power of unity, support, advocacy, research, and the shared strength that lifts us all.

Thanks for helping us shine bright and spread awareness this month! ✨

A special thank you to Mediar Therapeutics for serving as a Champion Sponsor of Stepping Out to Cure Scleroderma!

We’re grateful for their ongoing support of the scleroderma community.

Their partnership is instrumental in advancing our mission to improve the lives of those affected by scleroderma.

🔗: https://ow.ly/la0g50Z4J2t

Researchers join us Friday, June 12, for our Global Webinar on Advances in Scleroderma Research!

We're bringing together experts from around the world to share the latest breakthroughs in understanding and treating scleroderma.

Presenters include Kazuki M. Matsuda, MD, PhD, Harry Karmouty-Quintana, PhD, and Shervin Assassi, MD.

Register today and be part of a global community striving for progress!

🔗: https://ow.ly/4BUj50Z4xBe

Have you secured a light up or proclamation for Scleroderma Awareness Month? ✨

Log your outreach, events, and advocacy activities in our Advocacy Tracker.

Your participation helps us measure our collective impact and celebrate progress together!

🔗: https://ow.ly/X5JS50Z4xxm

Young voices matter, especially in rare disease advocacy. 💬

Join the next generation of advocates at Virtual Youth Hill Day on June 18 and help shape policies that impact the rare disease community.

Participants (ages 10–18) will meet with Members of Congress and share their stories to drive real change!

🔗: https://ow.ly/gnpQ50Z4xp8

This Stepping Out to Cure Scleroderma season has been off to an incredible start! 💙

With Scleroderma Awareness Month just around the corner, we’re gearing up for even more action.

Find a walk near you and help make every step count in the fight against scleroderma!

🔗: https://ow.ly/aVcb50Z4eKJ

We’re so excited to introduce our new children’s book designed to help kids and families better understand scleroderma! 💙

As part of our mission to advance education and awareness, we invite you to access this free book for your family or community!

Today, we honor and remember the brave men and women who gave their lives in service to our country.

Their courage and dedication will always be remembered.

Our office is closed today in observance and will reopen tomorrow.

Wishing you a day of reflection and gratitude.