The Mermaid Manor

"A's" mom shared their story with us. We're glad we could help!

A is now 11 and started getting regular fevers and other symptoms at age four. After many other diagnoses, loads of ED visits, and years of being told “it might be stress” - she received the diagnosis of Behcet’s Disease and USAID at the age of ten. Untreated Behcet’s/USAID looks like regular high fevers, GI pain and wasting, unremitting ulceration of the nose/mouth/GI tract, inability to absorb food, diarrhea, headaches, joint pain, eye pain and vision loss, fatigue, weakness, elevated CRP/SED rates, hair loss, and missing out on childhood.

The Autoinflammatory Alliance gave me the tools needed to push for a proper diagnosis and treatment team for my daughter.

Hope means to me that with increased awareness no one ever feels like they have to do this alone and diagnoses happen more quickly.

(USAID = undifferentiated systemic autoinflammatory disease)

Help us help more families like A's by donating now.>>>https://www.facebook.com/donate/2967354543336527/

Art therapy humor for today...

This!!!

Researchers Recommend Diagnosing Social Adversity Rather than Individual Disorders Existing codes provide a diagnostic alternative to biomedical models of health by contextualizing suffering within psychosocial conditions.

Talking with kids about emotions in daily life Anthropologists say that Inuits, whose world is full of snow, have at least 50 words for variations of snow. Inuit children learn those words and attach them accurately to the many varieties of snow simply by hearing them used in context. Similarly, when parents talk about a wide range of emotions,....

Mermaiding....

Mermaid Camp (for adults) at Weeki Wachee Springs State Park Appearing in Disney’s animated film and on Starbuck’s coffee cups, mermaids are way more real than you might think. And if you want to be one, we’ll tell you how to make that happen.