Taryn’s Tale
Taryn was a sweet girl that suffered from a rare genetic epilepsy disorder SMC1A DEE.
While her story may have ended, her tale will continue 💜❤️
10/17/2022-02/02/2026
💜❤️Making Her Dash Count❤️💜
04/26/2026
Always be thankful you took the pictures, so when you’re feeling sad, you can do this. I’m pretty sure big brother wasn’t always smiling when I made him take the pictures.
04/22/2026
Still recognizing Taryn’s wonderful OT’s for occupational therapist month but today is also Claire’s birthday! Claire was Taryn’s very first therapist all around and stayed with her until the end of early steps at age 3. Taryn knew Claire as her safe space of cuddles and arm massager. Happy Birthday Claire, Taryn will show up on her own today to tell you!
So it’s occupational therapist month. In no particular order, I’ll share Taryn’s wonderful OTs. Every therapist she had was supposed to be on her team. The very last therapy she had was OT with Hannah. I never dreamed when I was taking pictures & videos that day, it would be the last time. Even though she was only with her for 8 months, it felt like we had known her forever. Taryn was blessed with the best.
04/14/2026
A behind the scenes of the interview from our 2nd EAL race. What I love is big brother being the protector he is, the love he has for his little sister and the camera.
04/13/2026
2 years ago we made the news sharing Taryn’s tale for the first time. I will continue to share her tale any time I can. My girl fought a battle that we will never understand but can always raise awareness for others like her. She will always be my inspiration. 💜❤️💜❤️
Team Taryn takes on Epilepsy Alliance Louisiana's 20th annual Seize The Day 5K run BATON ROUGE- Saturday marked the Epilepsy Alliance Louisiana's 20th annual Seize The Day 5K run, a fundraiser for those with epilepsy.
04/12/2026
She showed up while we are at her brother’s tournament, they had just won to move on to the semifinals. It’s a rainbow around the sun.
04/10/2026
This picture popped up this morning. So many pictures the last year in this chair at therapy. 💜❤️💜❤️
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