ALK Positive

ALKtALK is back for Season 7!

We could not be more excited to kick off Season 7 of ALKtALK with the one and only Dr. Eric Singhi of MD Anderson Cancer Center!

ALKtALK Season 7 Premiere: A Fireside Chat with Dr. Eric Singhi
Sunday, September 27
7:00 p.m. ET
Live on Zoom | Recorded and available on YouTube

You may know Dr. Singhi from social media as , where he is known for making complex cancer information accessible, engaging, and actually understandable. If you're not already following him, you should be!

We'll cover the latest updates from the World Conference on Lung Cancer, while also taking it back to the basics with real-life topics that matter when you're living with ALK-positive cancer.

And we want your questions, too. Bring the things you've wondered about, forgot to ask at your last appointment, or simply want an expert to weigh in on.

Whether you are newly diagnosed, have been living with ALK-positive cancer for years, or are a care partner or loved one, this conversation is for you.

Learn more and join the session here: https://alkpositive.org/event/alktalk-dr-eric-singhi/

IASLC World Congress on Lung Cancer never disappoints. From the research to the community - there is nothing like it.

Among the many great meetings we were proud of so many in our community who had major roles on the stage.

Our Executive Director & Medical Director Ken Culver was not only attending sessions to stay on top of the research, but meeting pharma and biotech companies to be sure we are pushing for our community.

On the closing day we held our first ALK Global Alliance meeting where we convened other national ALK groups - like ALK Positive Cancer Australia ALK Positive Belgium Alk Positive India ALK+ Lung Cancer UK Support | Empower | Advocate, ALK Spain, other broader lung cancer groups like Afectados Cáncer de Pulmón LEAP Singapore Oncogene Cancer Research, Move Against Cancer Africa Caleb Egwuenu, Lung Cancer Research Foundation (LCRF) Lung Cancer Europe ✧ European Lung Cancer Advocacy Network, One Step Japan - and various independent, amazing advocates like Sydney Barned MD | Dr Yola | Lung Cancer Shirley Muñoz Graciano and many more.

Beyond the research and the science, this week was about being stronger together, pushing for better outcomes for everyone and understanding we won’t stop until we have cures.

This is what we want research to make possible.

More time. More ordinary days. More appointments where someone living with stage 4 lung cancer gets to hear the words:

Chest clear. Brain clear.

We know that isn’t everyone’s reality. This week especially, our community is holding good news alongside immense sadness — mourning someone much loved, while others we care about are facing progression.

That’s why we keep pushing for research. For more effective treatments. More options when treatments stop working. And more people living longer and living well with lung cancer.

Yesterday, those precious words — chest clear, brain clear — were heard by our co-founder Yvonne, five years after her stage 4 ALK-positive lung cancer diagnosis and still on her first targeted therapy.

We’re incredibly grateful to Professor Sanjay Popat and to every researcher, clinician, patient and family helping move lung cancer research forward.

Here’s to more good news. For all of us. 🩵

Great discoveries begin with great ideas! Let's encourage more of them.

Great discoveries start with great ideas.

TOGA's Inspirational Research Grant supports research that addresses important questions in thoracic oncology, with the potential to influence future clinical practice and improve outcomes for patients.

Grant details:
💰 Amount: $50,000
📆 Duration: Two years
🤝 Eligibility: Projects must involve consumer representatives

Could your research be the next step forward?

Applications close 20 September 2026.

Find out more and apply > https://thoraciconcology.org.au/inspirational-research-grant/

Join us for Clinical Trials Connect this Thursday, August 20, at 7:00 PM ET!

Dr. Ken Culver, ALK Positive’s Executive and Medical Director, will review a year of progress in ALK research and treatment, highlighting new clinical trials, publications, and important data updates from our medical committees and collaborators.

We will then open the floor to connect with community members about their clinical trial experiences, including what motivated them to participate, what the experience was like, and what they learned. Participants in TRI-611, gilteritinib, BNT-116, ivonescimab, neladalkib, and other trials are invited to share their perspectives.

📅 Thursday, August 20
⏰ 7:00 PM ET
🔗 Join us: https://alkpositive.org/event/clinical-trial-connect-2/2026-08-20/

Cancerversaries are more than a date.

Our old lives irrevocably changed. Yet somehow, a new life emerges.

Every day we step forward into an uncertain future, grateful for the wonderful people who walk alongside us. Thankful for the researchers who dedicate themselves to progress. For the people we see, and those we never will, who make a difference along the way.

Today, our co-founder and Chair, Yvonne, marks five years since her stage 4 ALK+ lung cancer diagnosis. We’re celebrating everyone marking an anniversary of their own and those hoping to reach the next one.

Here’s to more birthdays, more ordinary days, and more time together.

At diagnosis many of us hear or fear:
“You have months, maybe a year.”

That’s what a stage 4 lung cancer diagnosis used to mean.

Diane is 12 years in. Marc is nearly 13. Frank is 10.

Not everyone gets this kind of time yet. But this is what research has made possible for some, and it’s what we’re working to make possible for everyone.

Diane — 12 years w EGFR & MET amplification
Marc— ~13 years w ALK+
Brittany— 5 years w RET+
Teri — 4.5 years w EGFR exon 19
Frank— 10 years w EGFR T790M
Amy — 6 years w RET+
Jim— ~5 years w extensive-stage small cell lung cancer

Seven people. Seven different stories. Seven reminders of how far lung cancer research has come, and how much further it still needs to go.

More time can mean more birthdays. More milestones. More memories. More chances to benefit from the next treatment, the next clinical trial, the next breakthrough.

This is our August dose of hope. 💚

📍 Tag someone who needs this today.