Panhandle Down Syndrome Guild

Don’t feel like cooking tomorrow night, come by Raising Cane's on Coulter and pick up dinner!!!
Mention Spectrum Support Society!!🎉

PDSG Gives Back in action! We are supporting our friends at the Spectrum Support Society and their inaugural walk.

Did you just get an email from us? We just sent an email on a game night and taco feast. If you didn’t get it, please send us an email at [email protected] so we can add you to the list. We received many bounce backs.

She played Catwoman on screen — sleek, untouchable, dangerous.

In real life, she became something far more powerful:

A mother who refused to let the world define what her son could be.

Julie Newmar was 48 years old when she gave birth to her only child — after three devastating miscarriages and years of being told her body might never carry a baby to term.

The doctors warned her. The world whispered. But John arrived.

And almost immediately, the tests began.

Down syndrome.

At three, meningitis nearly killed him — and when he survived, it stole his hearing.

Eventually, he lost his ability to speak.

In the space of one year, Julie’s son became deaf, mute, and profoundly dependent on her in ways most parents never experience.

One year later, in 1984, her marriage ended.

She was in her fifties, single, raising a child with significant disabilities in a world that still quietly whispered that people like John were “limited.”

There were no magazine covers for this chapter. No standing ovations. Just a mother and her son, learning to navigate silence together.

So Julie learned sign language the way you learn to breathe underwater when drowning isn’t an option.

She fed him by hand, every single meal, every single day.

She built a life around his silence without ever treating it like a tragedy.

Years later, a writer visited Julie’s Los Angeles home and watched her sit with her grown son, feeding him one careful spoonful at a time. The writer called her a “real-life superhero.” The love between them, she said, was brighter than anything Julie had ever done on screen.

When John was younger and Julie was in her sixties, they traveled the world together — Bali, Thailand, Southeast Asia. John couldn’t hear the ocean, but he could see it. He couldn’t hear music, but he could see color. And because his world was silent, everything he could see became sacred.

He started painting. His art was displayed in galleries. The boy the world might have dismissed became someone whose work the world wanted to hang on its walls.

But time, as it does, began to take its toll.

Around the year 2000, Julie’s legs started failing her. By 2008, she was diagnosed with Charcot-Marie-Tooth disease, a progressive condition that slowly steals your ability to walk. John, too, developed scoliosis, his spine curving under its own weight. The globe-trotting stopped. The adventures shrank.

But they didn’t disappear.

Julie built them a garden — 8,600 square feet of earth, filled with more than eighty varieties of roses. Every day, she and John go outside together. She once said that every time she sees a new bloom, it stops her in her tracks. For John, whose entire world lives in what he can see, that garden is everything.

Two assistants live with them now. They help with meals, with driving John to his art lessons, with the daily mechanics of life. But it’s Julie who remains his center. At 91 years old, she is still there, every single day.

In interviews, Julie has never called John a burden. She’s called him a teacher. She told one magazine that having a child with Down syndrome was “very helpful.” She told another that he was “a blessing and a jewel.” She told the Los Angeles Times he was “such a highly developed human being.”

But the words that matter most — the ones that cut straight to the bone — came when she said this:

“He’s the cause of the great expansion of my outlook on life. He’s responsible for my understanding and practice of unconditional love. John is what makes my life great.”

Julie Newmar once played a villain on screen — beautiful, clever, unforgettable.

In real life, she has spent more than forty years playing the hardest and most beautiful role there is:

A mother who chose love when the world gave her every reason to walk away.

A mother who learned to speak with her hands when words were taken.

A mother who feeds her son by hand, who tends roses in silence, and who still says, after all these years, that he is the reason for everything.

The spotlight fades. The costumes get packed away. But love — the kind that shows up every morning with patience and presence — that love is the only thing that lasts forever.

TOMORROW is the BIG DAY 🎉💛
And Olivia & Charli are already counting down the minutes!!

Join us for Olivia Day at Hope Village—an afternoon full of fun, smiles, and community you won’t want to miss 🥳

✨ FREE food (while it lasts!)
🎈 Bounce houses
🎨 Face painting
🖍 Crafts & activities
…and so much more!

🗓 Sunday, March 22nd
⏰ 1:00 PM – 4:00 PM
📍 5197 S. Washington @ Hope Village

🚗 Extra parking available next door at Advo!

Grab your crew and come make some memories with us 💫

Happy 3.21!!!!! How are you celebrating today???? WE ARE THE LUCKY FEW💛💙💛💙💛💙💛💙💛💙💛💙💛💙