Haemo_Pal

The Haemo_Pal community of health professionals, experts and patients would like to express their most heartfelt and sincere condolences to dr Osama Najar's colleagues and family. With immense sadness we received the news that dr Osama is no longer with us. He will be greatly missed, not only as a valuable colleague but no doubt also as a friend, putting a smile and a sheer human touch to all our meetings and work commitments.

May Allah ease your pain and fill your heart with peace and patience.

A registry of congenital hematological diseases that will enable the assessment and improvement of diagnosis and management of Palestinian patients affected by hemophilia and other congenital bleeding disorders, as well as thalassemia and other hemoglobinopathies. It is the result of the work carried out by our team, thanks to the funding of Agenzia Italiana per la Cooperazione allo Sviluppo and to the partnership established between the وزارة الصحة الفلسطينية /غزة Palestinian Ministry of Health and Centro Nazionale Sangue. The project has continued to operate in the field despite the severe challenges posed by the ongoing humanitarian crisis in Palestine and now this target has been reached.

The inauguration of the Registry in Ramallah was attended by the Palestinian Minister of Health, Dr. Maged Abu Ramadan, and the Director of AICS Jerusalem, Mirko Tricoli and by the representatives of all the most important patient associations in Palestine, جمعية اصدقاء مرضى الثلاسيميا-فلسطين TPFS-Palestine, Palestinian Bleeding Disorder Society, Palestinian Avenir Children Foundation.

The Italian Federation of Thalassemias, Rare Hemoglobinopathies and Sickle Cell Disease (United ETS) promptly responded to an urgent appeal from the Palestinian patient community, represented by the Thalassemia Palestinian Friends Society (جمعية اصدقاء مرضى الثلاسيميا-فلسطين TPFS-Palestine), with a generous donation of medical devices for the infusion of iron-chelating agents and related disposable supplies, to help address a severe local shortage.

Heartfelt thanks from the coordination group of the Haemo_PAL project (AID 11719), funded by the Agenzia Italiana per la Cooperazione allo Sviluppo and coordinated by the National Blood Centre (Centro Nazionale Sangue), whose on field personnel delivered the donation despite the immense challenges posed by the ongoing humanitarian crisis in Palestine.

Special thanks also go to the FORANEMIA Foundation, a Haemo_PAL partner, which supported and contributed to the success of the initiative.

Through this generous act, a strong bond based on shared goals has been established between UNITED and TPFS, reaffirming the transnational brotherhood among patients across different regions and the steadfast commitment to sharing knowledge, expertise, and best practices for the protection of patients.

✈️On June 8, a new shipment of life-saving plasmaderived medicinal products meant for the Palestinian population was delivered to the competent authorities in Ramallah. The shipment, organised by the National Blood Centre in collaboration with the Agenzia Italiana per la Cooperazione allo Sviluppo brought to the Palestinian territories 3,648 vials of coagulation Factor VIII, 544 vials of Factor IX and 416 vials of Prothrombin Complex.

💊These medicinal products, produced thanks to plasma donated by Italian volunteer donors, exceed the national requirement and will help treat patients with haemophilia and other severe coagulopathies.

For more info
https://bit.ly/4jRI46J

The third cycle of training, entailing internships has just concluded as part of the Haemo_PAL project, coordinated by Centro Nazionale Sangue and the Istituto Superiore di Sanità, in collaboration with the Italian Regions project partners and their clinical centres.

Despite the challenges posed by a highly complex geopolitical situation, the project brought 12 Palestinian healthcare professionals from the to Italy. At the haematology centres of Azienda Ospedaliera di Perugia, AO Dulbecco of Catanzaro, Ospedale Policlinico di Milano, Policlinico Umberto I of Rome, and at the Thalassemia Centre of Ospedale Gaslini di Genova, general doctors, specialists, nurses, physiotherapists, and laboratory technicians had the opportunity to deepen their practical knowledge of the diagnosis and management of and and of and orher haemoglobinopathies.

Since 2021, a total of 23 professionals have been trained in a project funded by Agenzia Italiana per la Cooperazione allo Sviluppo (AICS), through a programme that has integrated online courses and in-person training in , aiming at strengthening local capacities, with the firm belief that health is a universal right.

Today, April 17, 2025, World Hemophilia Day, despite the tense geopolitical climate, the widespread state of emotional exhaustion, and the practical difficulties in moving around the territory, the Palestinian Society for Bleeding Disorders (PSBD, الجمعية الفلسطينية لامراض نزف الدم - الهيموفيليا) has brought together patients and stakeholders, including authorities and the representative of Palestinian Ministry of Health (وزارة الصحة الفلسطينية /غزة) , AICS Jerusalem, and the technical coordination of the Haemo_Pal project. The event aims to highlight the local and global need to continue raising awareness about these disorders and the most critical aspects that significantly affect the daily lives of patients, their families, and the broader social and healthcare systems.

We received confirmation that the humanitarian shipment of PDMPs, leaving Italy on July 19th, has safely reached the West Bank.
We hope that these life-saving medicines can be readily available to the local haemophilia patients community.

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Abbiamo ricevuto conferma dell'arrivo in Cisgiordania dei farmaci plasmaderivati partiti dall'Italia il 19 luglio.
Speriamo che questi medicinali salvavita possano essere resi disponibili alla comunità di pazienti locali nel più breve tempo possibile.

🗓️ Giornata Mondiale Del Donatore Di Sangue e Plasma🩸
La generosità dei donatori italiani salva ogni anno una media di 1.750 pazienti al giorno.
Donare plasma consente di produrre medicinali plasmaderivati che garantiscono il trattamento di pazienti con varie patologie croniche, come l'emofilia, in Italia e all'estero, grazie ai programmi di cooperazione internazionale e aiuto umanitario.
Per programmare la tua donazione di plasma puoi consultare l'elenco dei centri qui: https://www.italiaplasma.it/dona-anche-tu-il-plasma/

📆 International Thalassemia Day acts as a powerful reminder to raise awareness on this condition and to highlight the importance of equal access to treatment worldwide.
One of the aims of Haemo-PAL project is the improvement of diagnostic pathaways and treatment protocols for patients with thalassaemia and other haemoglobinopathies.
🩸 Ensuring comprehensive care and a better quality of life is crucial, especially in low-income countries with a high prevalence of this disease such as Palestine, where about 4% of the population are known thalassemia carriers.
In these unprecedented times, we are particularly close to the thalassemia patients’ and caregivers’ community in Palestine.

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📆 La Giornata Internazionale della Talassemia è un appuntamento fondamentale per accrescere la consapevolezza collettiva su questa condizione e per ricordare l’importanza della parità di accesso ai trattamenti in tutto il mondo.
Uno degli obiettivi di progetto Haemo-PAL è il miglioramento dei protocolli diagnostico-terapeutici e dei percorsi di cura per i pazienti con talassemia e altre emoglobinopatie.
🩸 Garantire terapie efficaci e una migliore qualità della vita è fondamentale, soprattutto in Paesi a basso reddito nei quali la prevalenza di questi disturbi è elevata. È il caso della Palestina, dove il 4% della popolazione è portatore sano.
In questo drammatico periodo storico, siamo particolarmente vicini alla comunità dei pazienti talassemici in Palestina.



جمعية اصدقاء مرضى الثلاسيميا-فلسطين TPFS-Palestine

The ongoing war continues to cause unimaginable suffering. Palestinian patients with haemophilia and other clotting disorders are experiencing unprecedented hardship and treatment shortages, Palestinian Society for Bleeding Disorders (PSBD), implementing partner of the Haemo-PAL project, collected and shared some first-hand testimonies.

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La guerra in corso continua a provocare sofferenze inimmaginabili. I pazienti palestinesi con emofilia e altri disordini della coagulazione stanno vivendo in condizioni di assoluta precarietà e scarsità di cure. La Palestinian Society for Bleeding Disorders (PSBD), implementing partner di progetto Haemo-PAL, ha raccolto e condiviso alcune testimonianze dirette.

جمعية اصدقاء مرضى الثلاسيميا-فلسطين TPFS-Palestine
الجمعية الفلسطينية لامراض نزف الدم - الهيموفيليا

Condividiamo un comunicato stampa trasmesso dal Ministero della Salute Palestinese ieri, 17 aprile, in occasione della Giornata Mondiale dell’Emofilia.
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Here we share a press release transmitted by the Palestinian Ministry of Health yesterday, 17 April, on the occasion of World Haemophilia Day.

📊 La raccolta dei dati sanitari ha un ruolo centrale nella gestione ottimale dei pazienti emofilici e influisce sulla corretta presa in carico, sulla ricerca clinica e sulla programmazione sanitaria.
Durante l’evento organizzato da FedEmo in occasione della XX Giornata Mondiale dell’Emofilia, il registro nazionale delle coagulopatie congenite è stato al centro degli interventi presentati dai rappresentanti istituzionali partecipanti alla tavola rotonda.

📌 Tra le azioni previste nell’ambito di progetto la creazione di un registro nazionale di patologia costituisce uno degli interventi fondamentali a sostegno dei pazienti palestinesi con emofilia.







Palestinian Ministry of Health
AICS Jerusalem
Centro Nazionale Sangue
Istituto Superiore di Sanità