Susan Ricken Foundation
Campaign to lower the age in Bowel screening {60-69}Awarness that its not Old Person Disease My name is John Paul Ricken I currently live in Perth, Australia.
On the 19th of November 2021, my wife Susan died from bowel cancer at the age of 35. She was admitted to hospital on 19th October with abdominal pain and passed away a short 4 weeks later. I am starting this foundation in my wife's name, to try and petition parliament and the house of representatives in Feb 2022 to change the current legislation on screening tests for people aged 30 and over, especially pregnant women during and after pregnancy.
10/05/2023
Exciting new study just out assessing what patients with stage IV should have when diagnosed. The study from Japan assessed if patients who do not have a cancer with mutation of the RAS gene should have panitumimab added to their chemotherapy, or Avastin (which in UK we have to pay for). The study demonstrates that patients who had panitumimab had a greater response rate, the response rate lasted longer, more patients became candidates for surgery, and survival was longer than the patients who had Avastin. Some of you may be aware that oncologists tend to only prescribe Panitumimab (or it’s equivalent cetuximab) for left sided bowel cancers as there has been the belief that it doesn’t work for tumours of the right side of the bowel. This study shows that Panitumimab had the greatest effect for patients with left sided BUT it was still superior to Avastin when given to patients with right sided cancers. Link below https://jamanetwork.com/journals/jama/article-abstract/2803803
Big thanks again to mick barry who for the 2nd time raised the issue of bowel screening age to be reduced in the dail today.It might be a slow and long process but the message is out there and in the dail which is a positive thing.Thanks everyone for yer continous support❤
23/11/2022
Big thanks to Clare McCarthy from the Irish mirror for this wonderful written article
Irish dad who lost seemingly healthy wife wants bowel cancer screen age lowered On the one year anniversary of Susan Ricken’s death, her husband John Paul is campaigning to spread the message that bowel cancer isn't just "an old person's disease"
Thanks to James and timmy for letting me come on the podcast and telling my story
19/11/2022
Gone but not forgotten and a year since you left us are 2 phrases will be said today by many and yes it's the 1st anniversasy since you died but you never left us and your never gone I see and feel you through the kids everyday and your legacy will live forever through them and WE LOVED YOU THEN.WE LOVE NOW AND WE LOVE YOU FOREVER❤❤❤❤
18/11/2022
Here's my interview from yday that I did with pj coogan on 96fm for anybody that wants to listen cheers guys❤
I Remember My Susan By Working For Cancer Screening | Cork's 96fm Opinion Line Listen to I Remember My Susan By Working For Cancer Screening from Cork's 96fm Opinion Line. JohnPaul Ricken catches up with PJ about his work to get bowel cancer screening at a much younger age in memory of the loss of his wife Susan.
17/11/2022
'Ireland needs educating about it': Cork man campaigns to prevent bowel cancer deaths John Paul Ricken's wife Susan died at the age of 35. Bowel cancer screening is only available to those aged over 60 in Ireland
14/11/2022
Thanks to Sara Roundtree who wrote a well written article today in the Cork BEO
Cork dad continues fight for bowel cancer awareness one year after wife's death JohnPaul Ricken moved home to Cork city with his two young kids earlier this year after his wife Susan passed away at just 35-years-old
13/11/2022
🎤 Join us in Cork on Friday 25th November for what promises to be a fascinating look into the often undiscussed issues facing men after a life-changing cancer diagnosis.
Follow the link to book your place 👉 https://www.eventbrite.com/e/hybrid-event-life-after-cancer-breaking-the-taboo-for-men-tickets-443194716327
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