TOFS

Do you have questions about tube feeding? Join us for our live Q&A with a panel of experts from BAPEN’s Patient Network Group multi-professional team.
Note: This Live Q&A is relevant to both both paediatric and adult patients.

Find out more & register at:
https://tofs.org.uk/event/live-qa-tube-feeding/

There are just over two weeks until the Great North Run, and we would love your support in celebrating this year’s TOFS runners. We are incredibly lucky to have a brilliant team tackling the challenge for us.

A huge thank you to Clare Johns (using her own place), Graham Rowley, Matthew Johnstone, Neil Johns, Shaun Martin and Thomas Burke.

Whether you can donate online or join us on the day to cheer them on in person on Sunday 13th September, your encouragement means the world to the team.

Read their stories and support the runners here:
https://tofs.org.uk/2026/08/meet-our-great-north-run-team/

Respiratory issues and tracheomalacia can be one of the most challenging parts of living with OA/TOF.

In this presentation from the TOFS Seminar 2026, Dr Caroline Love shares an update on the latest thinking around breathing problems, tracheomalacia, chronic cough, airway clearance, surgery, and long-term follow-up.

Watch the presentation in full on the TOFS website or YouTube channel:
https://tofs.org.uk/oa-tof-information/oa-tof-videos/latest-respiratory-tracheomalacia-updates-from-inoea-and-ers-congress/

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We are happy to release the first presentation from our 2026 Seminar held at the Institute of Child Health (ICH) in London.

In this presentation, Dr Alex Stewart, Speech and Language Therapist at GOSH, explores the common eating, drinking, and swallowing difficulties experienced by children born with Oesophageal Atresia (OA/TOF).

Watch now over on the TOFS website or YouTube channel:
https://tofs.org.uk/2026/08/watch-eating-drinking-and-swallowing-difficulties-in-children-born-with-oa-tof/

Calling all adults born with OA/TOF.

You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.

Next meet-up: 25th August 2026, 8:00pm (UK)

Register at: https://us02web.zoom.us/meeting/register/1upZO_HUTkew8XHY8JF_wg #/

This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.

So, come along, enjoy a relaxing cup of coffee (or tea) and meet others in the / and community!

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Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed, it’s likely that individuals will not be admitted to the meeting.

Final 2 places remaining! We have just 2 places left on the TOFS London Landmarks half marathon team in 2027.

Run past London’s most iconic landmarks including Big Ben, St Paul’s Cathedral, Nelson’s Column, the Gherkin, the Shard, the Tower of London and the London Eye for TOFS!

Find out more at:
https://tofs.org.uk/event/london-landmarks-half-marathon-2027/