TOFS
TOFS: lifelong support those born with OA/TOF (Oesophageal Atresia / Tracheo-Oesophageal Fistula)
TOFS (Tracheo-Oesophageal Fistula Support) is a small charity dedicated to helping all who were born unable to swallow. Tracheo-Oesophageal Fistula (TOF) and Oesophageal Atresia (OA) are rare congenital conditions that occur in around one in every 3,500 births. The incidence is similar all over the world and there is no single known cause. Learning that their child has TOF/OA can be an extremely d
12/06/2026
The countdown is on! Just 1 week left to register to take part in this year's Teddy Toddle - the fun challenge where you can walk, run or even skip 5K for TOFS.
From the 20th to the 28nd of June we challenge you, your friends and family (and your teddy!) to get involved in this event that can be completed anywhere in the world.
You can even make it a group affair and get your whole school class involved.
Plus, join in and you can get an exclusive Teddy Toddle 2026 medal too!
Register today at: https://tofs.org.uk/event/teddy-toddle-2026/
08/06/2026
TOFS supports Carers Week 2026.
is an annual campaign to raise awareness of caring and recognise the vital contribution that unpaid carers make in the lives of so many people.
Visit https://www.carersweek.org to learn more about this year's theme of Building Carer Friendly Communities.
08/06/2026
A big thank you to our amazing supporters who raise free funds for us on .
If you're not signed up yet, please join today and you can raise free donations for TOFS every time you shop online this summer. All the big names like eBay, John Lewis & Partners, Argos, Just Eat and many more are ready to make a free donation at no extra cost to you.
Plus, when you reach your first £5 in donations, easyfundraising will match it:
You shop. TOFS gets money. For free. Help us when you shop with 7,000+ brands. Join now.
05/06/2026
We are happy to promote a new resource created by, and for, those living with VACTERL Association. The site aims to provide peer support and signpost information that has been found to be useful. (You may also recognise some of the site's creators from their volunteering with TOFS.)
https://www.vacterlvisionariesuk.com/
Just 2 weeks left until the Teddy Toddle begins!
Join in the exciting fundraising event that challenges you to walk, run or even skip 5K for TOFS and claim an EXCLUSIVE medal.
Register today at:
https://tofs.org.uk/event/teddy-toddle-2026/
04/06/2026
Did you know that TOFS Local Contacts (TLCs) volunteers are all parents of children born with OA/TOF and are on hand to offer personal support to our members?
So, if you are a new parent and have questions - or just want to speak to someone with similar experiences - please get in touch. You can find our TLC’s contact details in the Members’ section of the website:
https://members.tofs.org.uk/tofs-local-contacts.aspx
Not yet a member? Sign-up today for free at:
https://tofs.org.uk/join-tofs/
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03/06/2026
Work for TOFS! We are recruiting for an Office & Fundraising administrator (Nottingham based)
Please feel free to share this vacancy with any friends or family who you think may be interested.
About the role:
We are looking for an office and fundraising administrator (part-time, 18 hours per week) to join us in our Nottingham office.
Reporting to the CEO, the role covers a range of administration and finance tasks to support office management, financial management and fundraising, and is one of the first points of contact for our supporters and members.
This position is pivotal in ensuring that our administrative and fundraising functions run smoothly, supporting fundraisers, members, trustees and team effectively.
Closing date: 10th June, 2026
Find more info at:
Vacancy: Office and fundraising administrator (on-site, NG4 2NN) – TOFS | OA/TOF Support Closing date:10th June, 2026 The benefits: Salary of £24,608 – £26,631 per annum (pro-rata for part-time) Employers’ pension contribution Work from our office in Nottingham NG4 (free parking) Scope to […]
01/06/2026
This week is National Volunteers’ Week, a chance to say thank you to our amazing volunteers for all that they do.
Please join us in celebrating them for the time and hard work they give to help TOFS support our / community.
If you are interested in getting involved and volunteering for TOFS, please visit: https://tofs.org.uk/support-tofs/volunteer-for-tofs/ to find out more.
01/06/2026
Keep your eyes peeled for the latest issue of Chew via post or email.
You can also access it (and previous editions) on the members site at https://members.tofs.org.uk/newsletter.aspx
If you are not yet a member of the TOFS Charity, please sign-up via: https://tofs.org.uk/join-tofs/
Why Join TOFS?
TOFS Members receive:
* Access to member only events and resources
* Direct support from TOFS’ Local Contacts (TLCs)
* 3 copies of Chew magazine a year by post (UK only) or email – PLUS access to the Chew magazine archive!
* Invitation to our annual conference
* An opportunity to influence and inform research into OA/TOF
Click here to claim your Sponsored Listing.
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Telephone
Website
Address
St. George’s Centre, 91 Victoria Road
Nottingham
NG42NN