Reverse Rett

October is Rett Syndrome Awareness Month 💜

Throughout October, Michelle Inglis is swimming 15km — that’s 600 lengths — to raise money for Reverse Rett, inspired by her 10-year-old niece, Emilia 😍

Michelle has set herself a huge challenge, alongside working full time. Every length is helping to raise funds and, just as importantly, awareness 💪🏊‍♀️💜

Go Michelle! We’ll be cheering you on for every one of those 600 lengths 🏊‍♀️ 💜

A fantastic display in Wetherspoons, Buxton for Rett Syndrome Awareness Month 😍

Thank you, Simone for sharing your twincesses, Ivie and Edie 💜

October is Rett Syndrome Awareness Month 💜

Thank you to everyone who has already added their loved one’s photo to our Reverse Rett awareness frame. If you would like one please add your child's photo and name in the comments below 😍

It’s lovely to see our news feed filled with your beautiful children helping to raise awareness of Rett syndrome throughout October.

Alongside telling the wider public about Rett syndrome, this October we’ll also be sharing important information within our UK Rett community.

Because Raising awareness also means helping our own community feel informed and better equipped to support the people we love.

This month’s focus will be respiratory health: practical information to help families and carers understand the significance of respiratory issues and recognise potential concerns before serious illness sets in.

Look out for our respiratory health posts throughout October and please share them with anyone involved in your loved one’s care. 💜

Protect respiratory health this winter 💜

Energy prices rise from 1 October for households on standard variable tariffs in England, Scotland and Wales.

For someone with Rett syndrome, keeping warm is an important part of winter care. Aim for at least 18°C in the rooms they use, including their bedroom, and keep them comfortably warm with suitable clothing and bedding.

Take these steps to check your energy costs:
• Find your latest bill and annual energy usage.
• Compare tariffs at uswitch.com/gas-electricity — and check your current supplier’s deals.
• Compare the full annual cost and any exit fees before switching.
• If heating is becoming unaffordable, ask your supplier about payment support, hardship funds and Warm Home Discount eligibility.
• Ask to join the free Priority Services Register.
The price cap limits energy rates, not your total bill. Checking your tariff could help, but switching will not save everyone money.

Keeping warm is one part of protecting respiratory health.

Continue the person’s respiratory care plan and recommended vaccinations.

Please share with a family or carer supporting someone with Rett.
Lung health information:

reverserett.org.uk/respiratory/

“Three runners. One little girl. One huge reason 💜

For our Ava, we’ll run every mile, through every ache and every tired step, because she deserves the chance to have back the things Rett syndrome has taken from her.

We’re running together - Mummy, Daddy and Auntie Charlotte - to raise money for Reverse Rett, to help fund the research that could one day change Ava’s future and give her the life she deserves.

For Ava. For all the girls living with Rett. For a future where Rett is reversible. 💜

Every step is for our girl.”

Hayley Moy, Ava's mum 💜

Thank you, Hayley, James and Charlotte for joining the Reverse Rett team at this year's Royal Parks Half, we are delighted to have you 😍

Joining the Reverse Rett team at one of our many events throughout the year is a fantastic way to meet other people passionate about our work and do something really positive. If you are interested in finding out more then please contact Mark Reilly at [email protected] 💜🙏

"Back in 2010 I ran my first ever half marathon (GNR) to this day that is still my best half time.

Back then I ran to raise funds and awareness for Reverse Rett an amazing charity helping families.

I signed up to the Preston half marathon this year, not for anything other than to finally train properly and try and beat that PB from all those years ago.

Sadly, last month Aimee, my cousin's daughter passed away at just age 18. After attending the funeral, I decided I wanted to try and raise even just a small amount for this amazing charity to continue to help the wonderful work they do."

Sam Smith 💜

Despite the hills Sam got a new PB yesterday, congratulations 🥳

Thank you so much for running in memory of Aimee 💜

https://www.justgiving.com/page/samantha-smith-13

October is Rett Syndrome Awareness Month 💜

Help us turn social media purple this October and raise awareness of Rett syndrome and the work we do at Reverse Rett 🙏

Our special Rett Syndrome Awareness Month profile frames are now available so just share your child's photo and name in the comments and Wesley and Ewelina will get to work 😄💜