TS 2000 study

The TS 2000 Team are still recruiting for our smartphone app study, looking to track the feelings and symptoms of young adults with TSC! 📱📢

This will help us find new ways to manage and treat TSC!🌟

To take part, follow the link on our website: http://ts2000study.co.uk/take-part

Exciting updates from the TS 2000 Team! Read all about it in our Summer Newsletter 2024 on our website: https://ts2000study.co.uk/news 📰

Want to get involved in TSC research? We are still recruiting for our smartphone feasibility study! We hope to hear from you! 📲💫Click the link to register your interest: https://qualtrics.kcl.ac.uk/jfe/form/SV_5p3UISnuwMiml2m

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Just over a month ago our PhD researcher Kate attended the
Tuberous Sclerosis Association's Big Day 2024! At this amazing event, bringing together the TSC community, Kate got to present our current work on how smartphones could potentially help young adults with TSC track their everyday life!

What an amazing day it was to see what initiatives are currently happening to support and advocate for those with TSC!🌟💚

We are still recruiting for our current smartphone study! If you believe you meet and our criteria and are interested in joining our study click the following link - https://t.co/iDfz6pnl2L. 💫

Big news from the TS 2000 Team! 🌟We are recruiting for the next phase of our study!🎉

We will be testing out a new smartphone app that can help track the day-to-day feelings and symptoms of young adults with Tuberous Sclerosis Complex.📲🧠

Want to take part? Take a look at our advert to get all the information you need and then register your interest by clicking this link: https://qualtrics.kcl.ac.uk/jfe/form/SV_5p3UISnuwMiml2m

We can't wait to hear from you😃

We are recruiting for the next phase of our study! 💥

Are you a young adult with TSC who currently uses a smartphone? We want to hear from you! We want to find out how an app could potentially help young adults with TSC track their everyday feelings and symptoms.

You can register your interest for our study via this link - https://t.co/iDfz6pnl2L

Today the 15th of May marks the Global Awareness day of TSC! 🌎💚The TSC community are coming together to raise awareness of TSC and advocate for it's support and treatment. Join us in sharing your experiences and knowledge of TSC!

Big news from the TS 2000 Team! 🌟We are recruiting for the next phase of our study!🎉

We will be testing out a new smartphone app that can help track the day-to-day feelings and symptoms of young adults with Tuberous Sclerosis Complex.📲🧠

Want to take part? Take a look at our advert to get all the information you need and then register your interest by clicking this link: https://qualtrics.kcl.ac.uk/jfe/form/SV_5p3UISnuwMiml2m

We can't wait to hear from you😃

Today the TS 2000 Team are showing their support for 2024, 💜 which aims to raise awareness of the impact of epilepsy. Around 8 out of 10 people with TSC also have epilepsy and it is one of the first signs in a TSC diagnosis, meaning its early recognition and treatment is vital. For more details on how best to support someone during a seizure visit https://www.nhs.uk/conditions/what-to-do-if-someone-has-a-seizure-fit/.

This week marks Neurodiversity Celebration Week 2024! 🥳

We are proud to support this initiative which aims to both celebrate neurodiversities and de-bunk the misconceptions and stereotypes associated with them. Around 1 in 2 people with TSC are neurodivergent, so join us this week in celebrating our unique differences!

Check out the official website below to see what important events have been happening during Neurodiversity celebration week!🎉

https://www.neurodiversityweek.com/introduction