CLL Support

📣 Last chance to tell us about your experience 📣

If you are living with CLL/SLL in the UK, or supporting someone with CLL/SLL, please take 10-15 mins to complete the relevant survey.

Your responses help us understand what life is really like and what needs to change.

Partners, carers, family and friends often go unheard - but your experience matters too.

Click here if you have CLL/SLL:
https://opinions.research-interactive.com/survey/selfserve/1c3c/260101?list=5

Click here if you support someone who has CLL/SLL:
https://opinions.research-interactive.com/survey/selfserve/1c3c/260400?list=5

Every 14 minutes someone in the UK is diagnosed with a blood cancer. CLL is the most common of these blood cancers in adults.

On let's honour those we have lost, support those living with blood cancer and raise awareness for better diagnosis and treatment options.

Help us help others 💜

If you are living with CLL or SLL - or support someone who is - our surveys are still open.

🩺 Survey for people with CLL/SLL:
https://opinions.research-interactive.com/survey/selfserve/1c3c/260101?list=5

❤️ Survey for partners, family members, carers and close friends:
https://opinions.research-interactive.com/survey/selfserve/1c3c/260400?list=5

Your experiences help us understand what matters most and shape future support.

The recordings from our recent Birmingham Conference are now available on our YouTube channel.

Topics include:

Control what you can, let go of the rest, Dr Helen Parry, Associate Professor and Honorary Consultant

Nutrition & CLL, Lewis Oakley, Registered Haematology Dietician

Patient stories

and more 🙂

https://www.youtube.com/playlist?list=PLiJKYfC3lB_WoulQVwW3TKIbQUNPVfXOZ

CLL Support Birmingham Conference 2026 Del dine videoer med venner, familie og verden

📣 We want to hear your experience.

If you are living with CLL/SLL in the UK, or supporting someone with CLL/SLL, please take 10-15 mins to complete the relevant survey.

Your responses help us understand what life is really like and what needs to change.

Partners, carers, family and friends often go unheard - but your experience matters too.

Click here if you have CLL/SLL:
https://opinions.research-interactive.com/survey/selfserve/1c3c/260101?list=5

Click here if you support someone who has CLL/SLL:
https://opinions.research-interactive.com/survey/selfserve/1c3c/260400?list=5

The recordings from our recent Leeds Conference are now available to watch on our YouTube channel.

CLL Support Leeds Conference 2026 Del dine videoer med venner, familie og verden

For more information, or to take part and release your inner 🕺💃 email [email protected]

The Scottish Medicines Consortium (SMC) approved an additional treatment for CLL earlier this month, on 13th April. The combination therapy of acalabrutinib and venetoclax with or without obinutuzumab was approved for first line therapy in previously untreated patients with CLL. The treatment is available for restricted use on the NHS via the NHS Scotland Patient Access Scheme (PAS)

Further information is available via the SMC website: https://scottishmedicines.org.uk/medicines-advice/acalabrutinib-calquence-abb-smc2893/


🏴󠁧󠁢󠁳󠁣󠁴󠁿

📣 Bookings are now open for our free to attend Birmingham Conference.

Our keynote speaker is Dr Helen Parry, Honorary Consultant Haematologist at The Queen Elizabeth Hospital, Birmingham. Helen will be joined by Lewis Oxley, Specialist Dietician - Haematology and Oncology.

Invitations to book have been emailed to everyone on our mailing list. If you would like to attend the conference but haven't joined our mailing list you can do so here: https://cllsupport.org.uk/newsletter-sign-up/

You will receive an invitation to book shortly afterwards.

COULD DANCE HELP WITH FATIGUE IN CLL? A research study recruiting in the South West of England.

Dr Claire Hutchinson, Consultant Haematologist in Plymouth writes:

We know that fatigue can be a real challenge for many people living with CLL, and we are interested in exploring whether a gentle, social dance programme could be a helpful and enjoyable way to support wellbeing and improve fatigue.

This study is a collaboration between Plymouth Marjon University (which runs cancer exercise programmes supported by Macmillan) and the University of Plymouth.

We are running a 10-week study to see whether this type of activity is practical and enjoyable for people with CLL. We hope this will help us develop a larger study in the future, potentially including local hubs or online options so that more people can take part.

You may be able to take part if you are living with CLL, experiencing fatigue, and currently on active monitoring (“watch and wait”), and are able to attend weekly sessions in the South West (Plymouth area). At the moment, we are not able to include people who are receiving treatment or expecting to start treatment during the study period.

If you choose to take part, you would be invited to attend weekly, supervised latin dance sessions in a relaxed and supportive setting, along with some simple questionnaires and physical checks before and after the programme.

There is no cost to take part. Participation is entirely voluntary, and taking part will not affect your medical care in any way.

Email [email protected] for more information.





💃🕺

The link to watch the livestream of today's conference has been emailed to everyone on our mailing list. Check your inbox 😊 The conference starts at 10am