Global Albinism Alliance
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🌍 Empowering and Protecting People with Albinism Worldwide: Building Stronger Communities, Amplifying Global Impact, Advocating for Rights and Inclusion.
My name is Pablo. I have albinism.
I’m proud in my skin because by being visible, I help educate society, normalise genetic differences and promote inclusion. 💙
👉Now we invite you to complete the sentence:
I’m proud of my skin because…
Use our editable mockup from the campaign toolbox — link in the first comment.
See the whole person.
Celebrate all skin tones.
27/05/2026
❤️🩹 “Effective skin cancer prevention interventions exist, but they remain too often unavailable or inaccessible.”
At in Geneva, the Global Albinism Alliance and Rare Diseases International delivered a joint statement supporting the adoption of the new Resolution on Radiation and Health.
This Resolution matters for persons with albinism worldwide — especially in regions with high UV exposure, limited dermatological care, and growing climate-related health risks. ☀️
For people with albinism 👩🦳, sun protection, early detection, and skin cancer management are not optional. They are essential health rights.
Building on this Resolution, last year’s WHA Resolution on Skin Conditions, and the inclusion of sunscreen for people with albinism on the EML and EMLc, we will continue engaging with WHO to keep skin cancer in persons with albinism recognised as a global health priority. 💙
👉 Read more on our blog — link in the first comment
Imagine having to be twice as good just to be seen as equal.
After returning to South Africa from studying overseas, Patrick realised that many people doubted whether he was capable.💔
In many places, there is still a false belief that persons with albinism are not intelligent, not competent, or unable to do the same work as everyone else.
Patrick went on to build a career in journalism, public relations, and corporate communications.✨But like many persons with albinism, he felt he had to prove himself more than others just to be seen as equally capable.
Albinism does not define intelligence, competence, or potential.
See the whole person.
Challenge the myth.
Celebrate all skin tones.
25/05/2026
💙I’m proud in my skin because…
This carousel shares messages of pride, dignity, and belonging from our community.
As we continue the countdown to IAAD, we invite you to join the campaign:
1. Use our Canva mockup
2. Complete the sentence “I’m proud in my skin because…”.
3. And share your own post or story.🔥
Every message helps challenge💪colour-based discrimination and celebrate all skin tones.
Tag us and use so we can reshare your contribution.
Link to the mockup: in the first comment 🙌.
Today we launch our IAAD campaign: Proudly in my skin — celebrating all skin tones.🥰
People with albinism are not myths, curses, symbols or curiosities. They are people — fully human, fully themselves, and part of every community.
Over the next 20 days, we will share personal stories, challenge harmful myths 💪, and speak about how colour-based discrimination, staring, bullying and dehumanising language can affect dignity, safety and mental wellbeing.
Our message is simple: see the whole person.
Share the story. Challenge the myth.
Celebrate all skin tones. 💙
22/05/2026
Albinism belongs in global health conversations 💙
Our week at ⚕️brought the Global Albinism Alliance into key discussions on health equity, protection, and inclusion.
On Tuesday, we joined conversations on radiation ☀️ and health — including protection, preparedness, surveillance, and public communication.
On Wednesday, rare diseases were discussed as a catalyst for global health transformation, equity, and inclusion.
On Thursday, the focus turned to implementing the WHA resolution on skin diseases as a global public health priority.
For people with albinism, these issues are connected: skin health, sun protection, diagnosis, research, disability inclusion, access to care — and climate change, which makes heat and sun-safety information even more urgent.
19/05/2026
Advancing health for people with albinism starts with better knowledge. 🧠
The Global Albinism Alliance took part in the 26th International Pigment Cell Conference ✨ in Delhi, India — an important gathering of dermatologists, cell biologists, geneticists, and pigment cell researchers from around the world. 🌏
Our Executive Director was invited as a Conference Faculty Member and gave two lectures 🗣️ on current albinism research, research gaps, and perspectives on living with albinism. 🧑🏻🦳
Advancing knowledge means connecting science with dignity, health equity, and lived experience. 💙
What albinism research gap should receive more attention? Share your thoughts in the comments.
Happy Mother’s Day to all mothers of children with albinism. 🤱
To mothers across Asia, Australia, Africa, Europe, North America, and Latin America 🌏.
To mothers who, because their child was born with albinism, have been abandoned by their husbands, traumatised by years of misdiagnosis or late diagnosis, excluded from their families, or hurt by doctors telling them their child would be blind or severely disabled.
To mothers who have been stigmatised, misunderstood, or unsupported by their families, loved ones, doctors, and teachers.
You are amazing.
You are incredibly strong.
Today, we honour you. 💙
Photo: Harry Freeland/Standing Voice, Patricia Pulido, Tomáš Hudolin, Kasey Davidson
05/05/2026
A shared call for dignity in Delhi.
In Delhi, the Global Albinism Alliance brought together people with albinism and allies from India and Nepal for an important community meeting. 💙
Participants spoke openly about stigma, discrimination, harmful names, and the lack of accessible information on sun protection and skin health — 💔 issues that affect daily life for many people with albinism.
The meeting also created space to discuss a major need: stronger albinism advocacy in India, where there is currently no active albinism organisation.
The meeting was organised with the support of Prakhar Deep Gupta from National Disabled Albino Nepal.
Established in 2013, National Disabled Albino Nepal works to support people with albinism and their families by promoting understanding, creating space for people to share their experiences, and helping build confidence through advocacy and counselling. 🧑🏻🦳👨🏻🦳
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