VIPOC

VIPOC

Partager

VIPOC is an international Vitiligo NGO based in Paris. The purpose is to improve the lives of Vitiligo patients by providing support and understanding

26/05/2026

Karen Férez, president of the Mexico Vitiligo Foundation and Vice President for
Latin America at VIPOC shares her message in Spanish on the importance of the Vitiligo Patient Views survey.

This global survey aims to better understand the experiences, challenges, and realities of people living with vitiligo and their caregivers.

If you or someone you care for has vitiligo, take our survey now: https://bit.ly/4etDKLW


Karen Férez, presidenta de la Fundación Mexicana de Vitiligo y vicepresidenta para Latinoamérica de VIPOC, comparte su mensaje en español sobre la importancia de la encuesta Vitiligo Patient Views.

Esta encuesta global busca comprender mejor las experiencias, los desafíos y las realidades de las personas que viven con vitiligo y sus cuidadores.

Si usted o alguien a quien cuida tiene vitiligo, participe en nuestra encuesta ahora: https://bit.ly/4etDKLW

22/05/2026

A message from Paul Monteiro, a VIPOC Representative and Chair of Vitiligo The Netherlands.

If you or someone you care for has vitiligo, take our survey now: https://bit.ly/4etDKLW

Share your experiences and help us uncover the true impact of vitiligo

Help us capture the vitiligo picture!

Photos from VIPOC's post 21/05/2026

Why does this survey matter?

We know that vitiligo affects people beyond their appearance, but we need to know more to truly make a difference

If you are a person living with vitiligo, or a caregiver of a child with vitiligo, take our survey now: https://bit.ly/4etDKLW

Make your voice heard!

15/05/2026

The first-of-its-kind global survey is live!

Vitiligo Patient Views is the first-of-its-kind global patient and caregiver experience survey, led by VIPOC and globally available in 16 languages. Its goal is simple: to capture the real, lived experiences of people with vitiligo and those who care for them, and transform that evidence into meaningful change

If you are a person living with vitiligo, or a caregiver of a child with vitiligo, we want to hear from you!

Take our global survey today: https://bit.ly/4etDKLW

Photos from VIPOC's post 14/05/2026

The first-of-its-kind global vitiligo survey is coming!

The Vitiligo Patient Views Survey is for people living with vitiligo aged 12 years and older, with caregiver consent for those aged 12–17, as well as caregivers of people living with vitiligo.

Mark your calendars - Vitiligo Patient Views: The First Global Vitiligo Patient and Caregiver Experience Survey launches on 15th May.

Read more: https://bit.ly/4ncEO99

Photos from VIPOC's post 13/05/2026

The first-of-its-kind global vitiligo survey is coming!

Vitiligo Patient Views is the first-of-its-kind global patient and caregiver experience survey, led by VIPOC and globally available in 16 languages. Its goal is simple: to capture the real, lived experiences of people with vitiligo and those who care for them, and transform that evidence into meaningful change

Vitiligo Patient Views: The First Global Vitiligo Patient and Caregiver Experience Survey launches on 15th May.

Help us capture the whole vitiligo picture.

Read more: https://bit.ly/4ncEO99

08/05/2026

The first-of-its-kind global vitiligo survey is coming!

Beyond the visible patches, vitiligo can impact every aspect of a person's life. The real burden of vitiligo is significant — and largely undocumented. This survey exists to change that.

Mark your calendars - Vitiligo Patient Views: The First Global Vitiligo Patient and Caregiver Experience Survey launches on 15th May.

Read more: https://bit.ly/4ncEO99

Photos from VIPOC's post 13/04/2026

Without formal membership, your local vitiligo organisation could be missing global strategy, credibility, and advocacy power.

VIPOC now offers a structured membership system tailored for vitiligo leaders because unity isn’t automatic, it’s chosen. Whether you're an emerging group or an established network, joining offers alignment with a global advocacy community.

• Affiliate Membership: For organisations testing VIPOC’s benefits
• Associate Membership: For established advocates needing guidance & shared resources
• Active Membership: For leaders ready to represent vitiligo on the world stage
Membership ensures your organisation gains credibility, access to training, collaboration tools, and advocacy support

Convert your leadership into a global impact officially.

Swipe for membership tiers info, then tap the link in our bio to register your organisation as an Affiliate, Associate, or Active Member of VIPOC, and unlock global advocacy support today.

Photos from VIPOC's post 09/04/2026

🌍 This , we spotlight a valued member from our network.

The Vitiligo Research Group (Macedonia) is an active part of the VIPOC community, contributing to vitiligo awareness and research dialogue within their region.

Their local efforts strengthen the collective global voice of vitiligo patient organisations working together through VIPOC.🙂

Together, we amplify vitiligo voices worldwide.

Vous voulez que votre organisation soit Organisation à But Non Lucratif la plus cotée à Paris ?
Cliquez ici pour réclamer votre Listage Commercial.

Adresse


10 Rue Lacuée
Paris
75012