Cyprus FH

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@ακόλουθοι

Μη χάσετε το πρώτο επεισόδιο της σειράς podcast από το FH Europe - The European FH Patient Network με συμμετέχοντες άτομα με εμπειρία κληρονομικών δυσλιπιδαιμιών!

Link 👇

👋👋👋Congradulations to FH Europe - The European FH Patient Network for continuing to voice the needs of patients in Europe.

Make Your Voice Heard – Take the Rare Barometer Survey!
Your experience matters. By completing the Rare Barometer survey, you help shape policies and improve care for people living with rare conditions across Europe.
As part of the FH Europe - The European FH Patient Network Foundation community, we represent individuals and families affected by Familial Hypercholesterolaemia ( ) and rare lipid disorders such as Homozygous FH (HoFH) and Familial Chylomicronaemia Syndrome (FCS). These conditions are often overlooked – but together, we can change that.
Why is this important?
• Ensure , and are visible in European research and advocacy.
• Influence decisions that impact diagnosis, treatment, and support.
• Join a united effort to improve lives for millions living with rare conditions.
It only takes a few minutes, but your input can make a lasting difference. Let’s amplify our voice and drive change together.
Link: English - EURORDIS-Rare Diseases Europe
👉 Take the survey now and share it with others in the FH Europe community!

🎟️ Calling all passionate patient representatives and advocates!
FH Europe Foundation is delighted to share an exclusive opportunity from our partners at Sprink:
Apply for a complimentary pass (worth £380) to attend the 2025 Global Forum: Creating Health Through Understanding and Personalising Value — taking place 4–5 December 2025 at the Scottish Event Campus, Glasgow, co-hosted by Sprink and the Scottish Government.
This initiative, supported by Cancer Patients Europe, FH Europe Foundation, and the European Alliance of Value in Health, aims to amplify authentic patient voices and ensure meaningful participation in shaping the future of care.

💡 At the Forum, you’ll explore:
• How a focus on value can improve prevention and reduce avoidable harm
• Real examples of person-centred care shaped by patients’ values and preferences
• How technology and AI can enable more personalised, compassionate healthcare

👥 Who can apply: Patients who actively contribute to improving healthcare decision-making in governments, hospitals, charities, or other organisations driving positive change.

📩 Apply by emailing [email protected] with your details (name, role, organisation, and country).

Applications are reviewed on a first-come, first-served basis. Successful applicants will receive a confirmation and registration code.
⚠️ Please only apply if you’re confident you can attend, as passes are limited and highly valued. Travel and accommodation are not included.
🌍 Learn more about the Forum: https://www.sprink.co.uk/2025-global-forum/

Let’s make sure every patient voice is heard in shaping the future of person-centred, value-based healthcare. 💙

Πριν από ένα μήνα στο Ευρωπαϊκό Κοινοβούλιο οι πιο δυνατές φωνές ήταν αυτές των Ασθενών Πρεσβευτών από το FH Europe - The European FH Patient Network.
Ακούμε τις εμπειρίες τους...

FH Europe at EU Parliament Recap Film Recap from the event at the European Parliament (25. 9. 2025): Cardiovascular Prevention as the Cornerstone of a Competitive Europe – Scaling Up Lipid Screen...

, , , Perfecto - FH, , FH Europe - The European FH Patient Network Cyprus University of Technology / Τεχνολογικό Πανεπιστήμιο Κύπρου

, , FH Europe - The European FH Patient Network, Perfecto - FH, , Cyprus University of Technology / Τεχνολογικό Πανεπιστήμιο Κύπρου

Ανοικτή πρόσκληση για διαδικτυακή συμμετοχή στην εκδήλωση γύρω από την καρδιαγγειακή υγεία ως ακρογωνιαίου λίθου της Ευρωπαϊκής ανταγωνιστικότητας στο Ευρωπαϊκό κοινοβούλιο με κυπριακή συμμετοχή.
25 Σεπτεμβρίου, 16:00-18:00 ώρα Κύπρου
Εγγραφές στον πιο κάτω σύνδεσμο 👇

FH Europe - The European FH Patient Network
Cyprus Stroke Association
Cyprus Atherosclerosis Society
@ακόλουθοι

🛎 REGISTER NOW: Cardiovascular Prevention as the Cornerstone of a Competitive Europe - Scaling Up Lipid Screening to Secure Next Generations

📅 Thursday, 25 September 2025
🕒 15:00–17:00 CET
📍 European Parliament, Brussels (Room ASP 3H1) & Online

On behalf of FH Europe - The European FH Patient Network, and under the hosting of MEP Romana Jerković, Chair of the MEP Heart Group and Vice-Chair of the European Parliament Committee on Public Health (SANT), we are pleased to invite you to a high-level hybrid event dedicated to advancing cardiovascular health across Europe.

Taking place just after and ahead of , this event will spotlight the urgent need to scale up lipid screening to prevent avoidable cardiovascular events and secure healthier futures for the next generations.

🔗 Register now for in-person or online participation: https://bit.ly/FHEF-event-2025-09-25

Please note: In-person attendance is subject to confirmation due to limited capacity. Online participation is open to all.