Arthritis Consumer Experts

Today we celebrate National Indigenous Peoples Day and recognize the enduring contributions of First Nations, Inuit, and Métis Peoples to communities across Canada.

At ACE, we remain committed to advancing Truth and Reconciliation through education, advocacy, partnership, and action.

We are grateful to the Indigenous leaders and community members who have guided the Arthritis Community Learning Circle and helped shape the arthritis community's response to the Truth and Reconciliation Commission Calls to Action for Health found in the Arthritis Action Now plan.

Together, we can help build a future where Indigenous Peoples living with arthritis have access to equitable, culturally safe, and person-centred care.

Learn more: https://arthritiscalltoaction.ca/



Arthritis Society Canada
Arthritis Research Canada
Canadian Spondyloarthritis Association
Lupus Canada
Cassie + Friends Society

On June 21, people across Canada will mark National Indigenous Peoples Day, a time to celebrate the rich cultures, histories, languages, knowledge, and contributions of First Nations, Inuit, and Métis Peoples. For the arthritis community, it is also an opportunity to reflect on our shared responsibility to advance Truth and Reconciliation in health care.

Arthritis Consumer Experts (ACE) is working alongside Indigenous leaders, researchers, health professionals, and patient organizations through the Arthritis Community Learning Circle (ACLC). Guided by Indigenous leadership, the ACLC was established to create a safe and trusted space for learning, reflection, and action on Truth and Reconciliation within the arthritis community.

In April 2026, Arthritis Action Now, a national strategy developed by 20 Arthritis Ecosystem Champion organizations, released its Response to the Truth and Reconciliation Commission Calls to Action for Health ( #18–24). The document outlines collective acknowledgements, commitments, and actions aimed at improving arthritis care and health outcomes for Indigenous Peoples living with arthritis.

Learn more: https://bit.ly/NIPDAdvancingTRCinArthritisEN

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Le 21 juin prochain marquera la Journée nationale des peuples autochtones. Partout au Canada, ce sera l’occasion de célébrer et de rendre hommage à la richesse des cultures, de l’histoire, des langues, des savoirs et des contributions des Premières Nations, des Inuits et des Métis. Pour la communauté des personnes atteintes d’arthrite, c’est également l’occasion de réfléchir à notre responsabilité commune pour faire progresser la vérité et la réconciliation dans le domaine des soins de santé.

Le comité ACE (Arthritis Consumer Experts) collabore avec des dirigeants autochtones, des chercheurs, des professionnels de la santé et des associations de patients dans le cadre du Cercle d’apprentissage de la communauté de l’arthrite. Avec le soutien des dirigeants autochtones, le CADCA a été créé afin d’offrir un espace sûr et fiable, propice à l’apprentissage, à la réflexion et à la prise de mesures concrètes en faveur de la vérité et de la réconciliation au sein de la communauté des personnes atteintes d’arthrite.

En avril 2026, Action immédiate contre l’arthrite, une stratégie nationale élaborée par 20 organismes champions de l’écosystème de l’arthrite, a publié sa Réponse aux appels à l’action de la Commission de vérité et réconciliation en matière de santé (n° 18 à 24). Ce document présente les reconnaissances, les engagements et les actions collectives visant à améliorer la prise en charge de l’arthrite et les résultats en matière de santé pour les peuples autochtones atteints d’arthrite.

Apprendre encore plus: https://bit.ly/3QnV0bS

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Arthritis Society Canada
Arthritis Research Canada
Lupus Canada
Canadian Spondyloarthritis Association

June is National Indigenous History Month. Arthritis Consumer Experts would like to highlight that arthritis affects Indigenous Peoples’ more significantly and more severely than in non-Indigenous populations.

To understand and practice Indigenous health, there must be respect for Indigenous Peoples, their world views, ways of knowing, and cultural practices. The concept of health for Indigenous Peoples is relational. In other words, the state of being in good health requires alignment of physical, mental, emotional, spiritual, and environmental health.

In this episode of Arthritis At Home, we are highlighting a study with Drs. Whitney Hung and Steven Katz from the Faculty of Medicine & Dentistry at the University of Alberta. The duo provides a summary of their poster presentation: Uncovering Rheumatologic Disease in the Northwest Territories: First Comprehensive Baseline Study and Comparative Insights.

Watch now: https://arthritisathome.jointhealth.org/?p=7003

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Comme juin marque le Mois national de l’histoire autochtone, le comité ACE (Arthritis Consumer Experts) tient à souligner le fait que l’arthrite touche les peuples autochtones de manière plus importante et plus grave que les populations non autochtones.

Pour comprendre et améliorer la santé des peuples autochtones, il est indispensable de les respecter, ainsi que leurs visions du monde, leurs modes de connaissance et leurs pratiques culturelles. Pour eux, la notion de santé est relationnelle; autrement dit, être en bonne santé suppose un équilibre entre la santé physique, mentale, émotionnelle, spirituelle et environnementale.

Dans cette capsule de « À la maison avec l’arthrite », nous mettons en lumière une étude menée par les docteurs Whitney Hung et Steven Katz de la Faculté de médecine et de dentisterie de l’Université de l’Alberta. Le duo présente un résumé de leur présentation par affiches intitulée « Uncovering Rheumatologic Disease in the Northwest Territories: First Comprehensive Baseline Study and Comparative Insights » (Le point sur les maladies rhumatologiques dans les Territoires du Nord-Ouest : première étude préliminaire et comparative exhaustive).

Visionner maintenant : https://arthritisathome.jointhealth.org/?p=7007&lang=fr



Arthritis Research Canada
Arthritis Society Canada
Arthritis Broadcast Network
First Nations Health Authority
University of Alberta

In this episode of Arthritis At Home, we are excited to share the 2026 interview with Dr. Marinka Twilt, a Professor in the Cu***ng School of Medicine in the Department of Pediatrics at the University of Calgary.

Dr. Twilt highlights key points from her workshop at this year’s meeting titled “Demystifying ‘That Mysterious Joint (TMJ)’: A Succinct, Hands-on Approach to TMJ Assessment”. She defines what is meant by temporomandibular joint (TMJ) and highlights how a TMJ assessment tool available online can help people living with arthritis.

Watch now: https://arthritisathome.jointhealth.org/?p=6989

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Dans cette capsule de « À la maison avec l’arthrite », nous sommes ravis de vous présenter l’entrevue 2026 menée auprès de la Dre Marinka Twilt, professeure au département de pédiatrie de la Cu***ng School of Medicine de l’Université de Calgary.

La Dre Twilt revient sur les points clés de son atelier présenté lors de l’Assemblée de cette année, intitulé « Démystifier cette articulation mystérieuse (ATM) : une approche concise et pratique de l’évaluation de l’ATM » (That Mysterious Joint (TMJ): A succinct, Hands-on Approach to TMJ Assessment). Elle définit ce qu’on entend par articulation temporo-mandibulaire (ATM) et explique comment un outil d’évaluation de l’ATM disponible en ligne peut aider les personnes atteintes d’arthrite.

Visionner maintenant: https://arthritisathome.jointhealth.org/?p=6990&lang=fr



Arthritis Society Canada
Arthritis Research Canada
Arthritis Broadcast Network
Cassie + Friends Society

Arthritis At Home 325 – A succinct, hands-on approach to temporomandibular joint (TMJ) assessment | Arthritis At Home This episode of Arthritis At Home features Dr. Marinka Twilt, a Professor in the Cu***ng School of Medicine in the Department of Pediatrics at the University of Calgary.

Our partner Crohn's & Colitis Foundation has published a to help people understand patents clearly and encourage patients and caregivers to promote more timely availability of generics and biosimilars.

Watch now: https://bit.ly/AccesstoCarePharmaceuticalPatentWebinar



Arthritis Society Canada
Arthritis Research Canada
Arthritis Broadcast Network
Crohn's & Colitis Foundation

Are you curious what people living with arthritis thinks about artificial intelligence use in their care?

If you are at , please visit Ellen to learn more at Poster View VIII on Saturday, June 6 at 10:15 BST! She will be presenting a poster titled "Understanding, Trust, Awareness, and Readiness for Artificial Intelligence in Arthritis Care: Results From a National Patient Survey" and highlighting findings from our on and arthritis care.

See the poster here:https://jointhealth.org/pdfs/ACEAISurveyatEULAR2026.pdf



Arthritis Broadcast Network
Arthritis Research Canada
Arthritis Society Canada
EULAR
Canadian Arthritis Patient Alliance
University of British Columbia
Massachusetts Institute of Technology (MIT)
Lupus Canada
Canadian Spondyloarthritis Association

In this episode of Arthritis At Home, host Cheryl Koehn speaks with Laura Wingate, Chief Education, Support, and Advocacy Officer of the Crohn’s and Colitis Foundation of the USA, about the Patients and patents campaign.

The interview will explore what the Crohn’s and Colitis Foundation does for patients, why the Patients and patents campaign is important for patients in the USA, and discuss ways patients can help share the information. Laura also talks about a recent webinar titled “Access to Care: Pharmaceutical Patents” that was recently published on the Foundation’s website.

Watch now: https://arthritisathome.jointhealth.org/?p=6978

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Dans cette capsule de « À la maison avec l’arthrite », l’animatrice Cheryl Koehn s’entretient avec Mme Laura Wingate, directrice générale de l’éducation, du soutien et de la défense des droits des patients auprès de la Crohn’s and Colitis Foundation des États-Unis, au sujet de la campagne « Patients and patents » (Patients et brevets).

L’entrevue porte sur les initiatives de la Crohn’s and Colitis Foundation en faveur des patients, sur l’importance de la campagne « Patients and Patents » (Patients et brevets) pour les patients des États-Unis, et sur les moyens dont ils disposent pour contribuer à la diffusion de ces informations. Laura évoque également un webinaire intitulé « Accès aux soins : les brevets pharmaceutiques » (Access to Care: Pharmaceutical Patents ), récemment mis en ligne sur le site Web de la fondation.

Visionner maintenant : https://arthritisathome.jointhealth.org/?p=6979&lang=fr



Crohn's & Colitis Foundation
Arthritis Broadcast Network
Arthritis Society Canada
Arthritis Research Canada

Research from ACE’s 2025 National Survey on AI and Arthritis Care will be presented at the European Alliance of Associations for Rheumatology (EULAR) 2026 Congress in London, England, one of the world's largest and most influential rheumatology scientific meetings.

As artificial intelligence (AI) becomes increasingly integrated into healthcare, ACE wanted to better understand how people living with arthritis perceive these technologies, how much they know about them, whether they trust them, and what information they need to feel confident using AI-generated health information. To answer these questions, ACE conducted a national survey of people living with rheumatic diseases across Canada between June and August 2025.

While respondents expressed considerable interest in the potential benefits of AI, the survey also identified important gaps in awareness, understanding, and confidence.

Learn more here: https://bit.ly/ACEArtificialIntelligenceSurvey_EULAR2026



Arthritis Broadcast Network
Arthritis Research Canada
Arthritis Society Canada
Canadian Arthritis Patient Alliance
Canadian Spondyloarthritis Association
Canadian Physiotherapy Association/Association canadienne de physiothérapie
Canadian Medical Association
EULAR
University of British Columbia
Stanford Institute for Human-Centered Artificial Intelligence
Lupus Canada
First Nations Health Authority
Cassie + Friends Society