iCanCope

Communication is important as it helps you to stay informed about your condition and any treatments. This way, you can have a say in the decisions that affect you.

It can be hard to talk to others about your experience of your condition, or needing surgery, as well as your thoughts and feelings about your condition. But this is normal, and you can get better with practice and feedback.

Check in later this week for our next post on developing your communication skills!

Today is ! Rare disease impacts 1 in 12 Canadians, 67% being children and adolescents (Canadian Organization for Rare Disorders: https://www.raredisorders.ca/canadas-rare-disease-strategy/). Rare disease can come with pain - which is why the and .cope have been adapting our digital health solutions for youth living with different types of conditions like and .

If you’re looking for pain support, consider trying the Portal. Link to join the study is in bio!

How do you rest after a long day?

Happy Lunar New Year from everyone at the and .cope team!

Wishing all those who celebrate a wonderful fun filled weekend!

Happy Tuesday! Today’s tip is on stretching. Don’t forget you can stretch anywhere, anytime. It’s perfectly valid to stretch sitting or laying down in your bed. The important thing is you’re moving!

Have you made your #2023 vision board? A vision board is a visual representation of the goals you hope to accomplish. It’s a reminder for you when you’re feeling lost or uninspired. Copey and Owee put their brains together to come up with a vision board for 2023. We can’t wait to see what you come up with!

A new year is always a time for reflection. What are some of the things you’re leaving behind in 2022? What do you want to bring with you into 2023? Here are some of our picks!

Happy New Year from the .cope and team! We are grateful for this community of pain warriors. There is lots in store for 2023 so keep an eye on your emails and socials! If you’re interested in participating in research and patient partnership, send us an email or DM.

Another new word in the language of pain is Hyperalgesia. Hyperalgesia is an unusually high amount of pain in response to a painful stimulus, for example, feeling extreme pain after a paper cut.

Yesterday was the Winter Solstice, which means we just made it past the darkest moments of the year. This is your reminder that even in the darkest of times, the sun will rise again. Navigating through darkness isn’t easy - but you have a toolkit that includes a flashlight.

It can be easy to feel guilty about what you need to do to cope with pain and other symptoms. This is your reminder to be proud of all the progress you’ve made this year. Living with pain is difficult and you’re doing your best to cope. Use your tools without guilt this holiday season!

This we challenge you complete 12 days of self care. Try tracking your progress to see if there are any differences in your pain levels!